to those who recently went off Herceptin

[Marily]

Vicky, and Brenda
Thank you for the information I do take the b and c vitamins, but will try increasing the b.

Hugs Marily
"Worry looks around, sorry looks back, Faith looks up.."

Nov. 1999 small lump r breast.
Jan 2000 Stage IV her2+++e+++p+++ liver lungs bones
chemo A/C followed by Taxol/herceptin
2001 surgery r breast, 13 lymph nodes
severe infection day 3 t 104, lost r breast and open wound abdomine , Neutropenia hospitalized x 4,

on wound vac 4 months.
due to failure to heal (missed window for radiation... Which was ok by me)
Herceptin until 2008, with tamoxofin 3 years,
2003 oophorectomy to go off tamox and go on Aromasin
continue with Aromasin
2004 CHF muga left ventricular failure ..@21
cardiac meds and diuretics O2 at night
2005 capped two teeth due to canals found in teeth
2007 neck surgery replace 3 bones disintegrating failed to grow third bone (damage to nerve, l side face eye lid droop, paralyzed pupil and l vocal chord. (Some response to pupil back and learned to redirect vocal tones.)
2008 redid neck surgery added 4th bone replacement and brace. New bones have compressed and need surgery to tunnel and relieve arm and face pain. Lower back bones now have no cushioning causing leg pain, spasm and weakness...
Oct 2008 Dancing with NED off Herceptin (two strong allergic responses to Herceptin increased choice to go off)
no tumor markers... so do Alysa going up from 6 to 9.9 CTC from 0 to 1 in six months off
will have ct/pet next week.