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Old 02-09-2009, 08:56 PM   #1
atdec05
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Join Date: May 2006
Posts: 144
That certainly is an eye-opener about Facebook.
That said, I do have an account and have friended several Her2 members.
It's nice to share photos that way.

There are other groups on FB like Susan B. Komen, so I wonder how they get around the individual thing.

- Anna
on FB at http://www.facebook.com/people/Anna-Fang/632381336
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- Anna

Stage I - DX 9/2005
ER/PR-, HER2+, grade 3, DCIS, IDC multi-focal (1.05cm)
DD 4 A/C finished Jan 31, 2006
Herceptin weekly finished Jan 31, 2007
recurrence to chest wall on last month of Herceptin
Stage 3B - 3/15/07 - 2 carcinomas in dermal lymphatic
Rads finished 6/5/07
12x TH finished 9/10/07
12/07 - Clear scan!
3/08 - 4 month Melatonin trial
1/09 - osteoperosis -
start Alendronate
2/09 - 4-month Simivastin trial
3/13 - take drug holiday after 5 years of Alendronate
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Old 02-09-2009, 09:26 PM   #2
ElaineM
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Wink ???Joe...Facebook anyone???

I am not fearful of Facebook. I am selective.
I am a pretty private person. One cannot be too careful about "what's out there" for the whole world to see and use. I don't want a site like Facebook to have rights to my information.
I don't even click on forwarded messages my friends and relatives send me. I just delete them unopened and
move on to real e-mails from real people bringing me news and friendship.
I also think having one meeting place like we do here is better than having two meeting places. I like our her2support.org site and probably wouldn't visit Facebook anyway.
I would like to suggest that our friends who have Facebook sites, websites or blogs and want visitors from our site feel free to put your contact information in your profile, so thoe who from our site who wish to visit you at other places on the internet can do that.
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Peace,
ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
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