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Old 01-30-2009, 03:38 PM   #1
dhealey
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Join Date: Jun 2007
Location: moved to Lancaster, Pa in June, 2010
Posts: 576
I am always asked " so are you cured" when I answer no I'm in remission" They look at me weird and I have to explain when you are herceptin positive there is a great risk of it coming back. Our I get told "my mother only had to have a mastectomy and she is fine. Why are you putting chemicals in your body." I get tired of the questions, but then I remind myself these people have no clue!
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Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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Old 01-30-2009, 05:07 PM   #2
Becky
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Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
I think I've told everyone that I got Herceptin alone kind of later - 4 months after my last chemo and 2 months after rads were done. I thought I was done - scared out of my mind but DONE. Then I was able to get Herceptin - So, I went to my boss to say I was going to work but I had to get the Herceptin. I even brought all the articles about the great results of the trial.

He said - "Are you going to die?" I almost died! But I said "yes, and you are too. We will all die one day".

And they think we are dazed and confused from chemo. Humpff!
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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