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Old 01-13-2009, 09:18 AM   #1
Terri B
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Unhappy Freaked out over new lump

That's right, ladies and gentlemen.

I was playing with my new boobs (as i do quite often lately because they feel so soft!) and I felt a small lump. Same side as the cancer, about 1:00 position (if I had a nipple). I would estimate it less than a cm. It is right on the edge of the implant. It almost feels elongated like part of a blood vessel or something. But it is hard.

After pouring over Lani's reports on radiation to Christie, I guess with my ER/PR - status, I'm at extra risk for recurrance. but DANG. I haven't even finished rads yet!

I'm seeing my plastic surgeon for a follow up on Thursday. I will point it out to him and see if it might be part of the implant or something. After that, i guess it's back to biopsy-land for me .
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Terri B.
46 yrs. young
Dx IDC 3/6/08
1.5 cm & .6 cm grade III, Stage IIA
es/pr- Her2+++, 9/9 richardson
Double Mast w/expanders 4-14-08
3/9 nodes positive.
additional excision rt breast 4-25-08
weekly T/H x 12 (6-2-08) Done!
FEC x4 (9-8-08) Last one 11-10-08!
Herceptin complete 8/10/09!!
33 RADS DONE 2/13/09!
rt. breast biopsy 3/20/09 .. B9!!
reconstruction complete!
DEEEEEEported on 5/19/10!!
almost 5 YEARS NED!!
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Old 01-13-2009, 09:30 AM   #2
freyja
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Uh, what you must be feeling right now. I'll be waiting to hear the results and thinking of you. My cat is saying he purrs for you, too.
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"Dancers Against Cancer" in the Eugene, OR Komen Race for the Cure 2010
Diagnosed 8/7/08 with stage 3 invasive ductal carcinoma, micropapillary pattern, Her2 3+, ER+,PR-, grade II, positive lymph nodes.
Received 6doses of Taxotere, Carboplatin with Herceptin continuing for a year...DONE.
1/28/09 Left Modified Radical Mastectomy, Right Simple Mastectomy.
Surgery pathology: No invasive carcinoma present and 17 lymph nodes removed all negative! Only small amount of carcinoma in situ in left breast.
March/April '09, Radiation to left chest wall.
Currently involved in Neratinib clinical trial.

"Well being I won
and wisdom too,
I grew and joyed in my growth;
from a word to a word
I was led to a word
from a deed to another deed." (Odin)

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Old 01-13-2009, 09:43 AM   #3
mimiflower07
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hi Terri
Just thought i'd add my 2 cents. I also found a lump pea size while still on herceptin. They removed it(plastic guy) he was fairly sure it was fat necrosis or part of scar tissue. In fact it was a fatty necrosis, it was sent off and came back neg! So there is a strong possiblity it may be something other then that D..cancer!
Wishing you strong vibes
suzanne
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dx aug10/07
3 pos high, grade 3
tumor 2.5cm multifoc
bil mast recon sept 24/07
neg snb/neg lymph vascular
clear marg
chemo a/cx 4 rds
tomoxifan started feb11/08
herceptin to begin soon
herceptin completed feb/09
aromacin(A.I)for as long as i can
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Old 01-13-2009, 10:16 AM   #4
Lien
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I'd be totally freaked out too! Although I think that so soon after surgery it's quite likely something benign. As: "Don't worry" doesn't really help, I'll just say: Hang in there friend! We're all here with you. Just a few days until your visit with your doc. You'll know more by then. Keep breathing. In and Out. In and Out. This too shall pass.

Jacqueline
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Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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Old 01-13-2009, 10:36 AM   #5
Terri B
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Smile

Wow, Suzanne, thanks for that! Makes me feel better knowing there might be some other kind of explanation! Wheeew! I know I still have to get it checked out, but it still allows me to breathe a bit.

Thanks to everyone else for the good vibes! It's so much appreciated!

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Terri B.
46 yrs. young
Dx IDC 3/6/08
1.5 cm & .6 cm grade III, Stage IIA
es/pr- Her2+++, 9/9 richardson
Double Mast w/expanders 4-14-08
3/9 nodes positive.
additional excision rt breast 4-25-08
weekly T/H x 12 (6-2-08) Done!
FEC x4 (9-8-08) Last one 11-10-08!
Herceptin complete 8/10/09!!
33 RADS DONE 2/13/09!
rt. breast biopsy 3/20/09 .. B9!!
reconstruction complete!
DEEEEEEported on 5/19/10!!
almost 5 YEARS NED!!
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Old 01-13-2009, 10:39 AM   #6
Shobha
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Terri, I have a very strong feeling that it is just scar tissue. I can totally understand what you are going through. I had some hardning within 6 months of surgery as well. I had freaked out as well.

They performed an MRI and found it to be just benign fat and scar tissue.

Sending you prayers and lots of positive vibes.
__________________
DX: 06-30-2007 - left breast -stage IIIB, Her2/Neu 3+++, ER weakly positive, PR-
Taxol+herceptin weekly for 3 months
FEC+herceptin every 3 weeks for 3 months
BRCA 1 and 2 - Negative
Jan 2008 - Bilateral mastectomy, prophylactic Rt. side.
Radiation for 5 weeks
Completed my yr of herceptin on 07-14-2008
Brain MRI - 3/2/09 Clean
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Old 01-13-2009, 12:59 PM   #7
Believe51
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Thumbs up

Terri.....watch out 'cause here comes more positive vibes your way. I'll be praying until we hear what good news you have to share with us. I'm also praying that we never have to say the word biopsy-land while speaking about you ever again. Here's to breathing a bit easier my Friend!>>Believe51
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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Old 01-13-2009, 01:30 PM   #8
Terri B
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Talking

Just came from my rads appt and I had my radiologist feel me up. He had the same thought as you guys! He says he's almost sure it's scar tissue from surgery! He said follow up with the PS and Surgeon!

Whew! I feel better now! Thanks you guys! )
__________________
Terri B.
46 yrs. young
Dx IDC 3/6/08
1.5 cm & .6 cm grade III, Stage IIA
es/pr- Her2+++, 9/9 richardson
Double Mast w/expanders 4-14-08
3/9 nodes positive.
additional excision rt breast 4-25-08
weekly T/H x 12 (6-2-08) Done!
FEC x4 (9-8-08) Last one 11-10-08!
Herceptin complete 8/10/09!!
33 RADS DONE 2/13/09!
rt. breast biopsy 3/20/09 .. B9!!
reconstruction complete!
DEEEEEEported on 5/19/10!!
almost 5 YEARS NED!!
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Old 01-13-2009, 02:49 PM   #9
Believe51
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Talking

Terri, we all feel better too!>>Believe51
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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Old 01-13-2009, 03:02 PM   #10
caya
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Terri,

I'm glad it seems to be nothing. Ah, BC, the gift that keeps on giving...

Eat some chocolate.

all the best
caya
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ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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Old 01-13-2009, 04:46 PM   #11
Laurel
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Terri,

Great news! I'm teary-eyed for you. Please know you'll be in my prayers until confirmation of the scar tissue dx!
__________________

Smile On!
Laurel


Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

15 Years NED
I think I just might hang around awhile....

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Old 01-14-2009, 07:12 AM   #12
Terri B
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Caya,

How'd you know I'd reach for the chocolate?

You guys know too well!

I probably won't rest completely until the surgeon sees it. But like you said, BC, the gift that keeps on giving!
__________________
Terri B.
46 yrs. young
Dx IDC 3/6/08
1.5 cm & .6 cm grade III, Stage IIA
es/pr- Her2+++, 9/9 richardson
Double Mast w/expanders 4-14-08
3/9 nodes positive.
additional excision rt breast 4-25-08
weekly T/H x 12 (6-2-08) Done!
FEC x4 (9-8-08) Last one 11-10-08!
Herceptin complete 8/10/09!!
33 RADS DONE 2/13/09!
rt. breast biopsy 3/20/09 .. B9!!
reconstruction complete!
DEEEEEEported on 5/19/10!!
almost 5 YEARS NED!!
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Old 01-14-2009, 09:31 AM   #13
flynny
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This subject just came up last night with one of my friends. She had a double mast a number of years ago and she said that a lump appeared too. What happened was she was reaching a little too much and pulled one of the inside stitches out. Just a thought too. I believe everything will be just fine on Thursday.
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-Sarah-

Jan '07 felt lump (PCP "thought" it was a cyst)
Nov '07 "bloody nipple discharge" (OB-GYN "thought" I had fibrocystic breasts and told me to take 400 IU's of Vitamin E)
Note: Mother was dx w/BC in 2004 (ER/PR+ & HER2+) & mets to brain April 2007 (she passed away June 17, 2008)
2/1/08: Biopsy Dx: DCIS (age 34)
2/22/08: Surgery R-side Mast
2/28/08: 1st Path Rpt Dx: IDC 1.8cm tumor & DCIS 2.1cm
2nd Path Rep DFCI - IDC (0.9cm) & DCIS (2.1cm)
Stage 1b/Gr 3; ER+(5%), PR+(2%), HER-2+++
5/5 nodes NEG; Clear Margins
Chemo: AC 4 rnds (1st one 3/31/08) finished 6/2/08
TH (Taxol/Hercepin) 12 weeks (1st one 6/25/08) finished 9/8/08
Herceptin 9 mos (every 3 weeks) finished 6/8/09
BRCA 1/2 NEG
Bio: Age 39, married to James 1999, 2 boys 12 & 10 yo
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Old 01-16-2009, 07:14 AM   #14
WomanofSteel
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Glad to hear our resident experts were right again. This board is so great! I hope that all goes well with your follow up and I am confident it will. I will say a special prayer for you.
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dx aug 03
invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
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Old 01-16-2009, 01:35 PM   #15
Terri B
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Thanks guys, this is definately the best place to come when a girl needs some extra support and comfort.

I saw my plastic surgeon yesterday and he said "yeah, it could be scar tissue" but he advised me to see my breast surgeon to get her opinion. He said it might require a biopsy (

I won't relax until I know. I'm not running around like a screaming mimi or anything, but I will definately have a couple of beers tonight!
__________________
Terri B.
46 yrs. young
Dx IDC 3/6/08
1.5 cm & .6 cm grade III, Stage IIA
es/pr- Her2+++, 9/9 richardson
Double Mast w/expanders 4-14-08
3/9 nodes positive.
additional excision rt breast 4-25-08
weekly T/H x 12 (6-2-08) Done!
FEC x4 (9-8-08) Last one 11-10-08!
Herceptin complete 8/10/09!!
33 RADS DONE 2/13/09!
rt. breast biopsy 3/20/09 .. B9!!
reconstruction complete!
DEEEEEEported on 5/19/10!!
almost 5 YEARS NED!!
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Old 01-16-2009, 04:09 PM   #16
freyja
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kudos.

Keep up the updates. I'm holding my breath for you, too. Good thing you're aggressively attacking the situation. Get those answers.
__________________

"Dancers Against Cancer" in the Eugene, OR Komen Race for the Cure 2010
Diagnosed 8/7/08 with stage 3 invasive ductal carcinoma, micropapillary pattern, Her2 3+, ER+,PR-, grade II, positive lymph nodes.
Received 6doses of Taxotere, Carboplatin with Herceptin continuing for a year...DONE.
1/28/09 Left Modified Radical Mastectomy, Right Simple Mastectomy.
Surgery pathology: No invasive carcinoma present and 17 lymph nodes removed all negative! Only small amount of carcinoma in situ in left breast.
March/April '09, Radiation to left chest wall.
Currently involved in Neratinib clinical trial.

"Well being I won
and wisdom too,
I grew and joyed in my growth;
from a word to a word
I was led to a word
from a deed to another deed." (Odin)

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Old 01-17-2009, 06:50 PM   #17
Sherryg683
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It probably is scar tissue, I have lumps around where my lumpectomy was done. And seeing that you just got your "new boobs" last month, it probably is scar tissue forming. But please have it checked with a biopsy or scan or something. Not to scare you, but my good friend had a mastecomy done almost 4 years ago and 6 months ago was diagnosed with a reoccurance. She had 2 lumps show up in her breast, they lit up on a PET scan and it was indeed cancer. So it is always good to have things checked when they appear suddenly....sherryg683
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Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year

Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
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Old 01-19-2009, 04:47 PM   #18
TriciaK
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Dear Terri, I have had a lump like that , actually rather a large one, since about a month after my bilateral mastectomy in 1985. It really scared me, but it turned out to be scar tissue. It's still there 23 years later. I did have reoccurance but in my spine in 1990 and in my lungs in 2004. The first two BC's were regular breast cancer and the last one was her2. You are doing the right thing keeping track of it and following through with your medical team. I would almost bet the farm, though, that it is scar tissue or something similar. Remember your online team here is thinking of you and praying for you. Keep us informed! Hugs, TriciaK
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Old 01-22-2009, 11:23 AM   #19
Terri B
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Well, just came from my breast surgeon and she doesn't seem to be concerned about it. She did ultrasound and measured it this way and that, so that we would have a baseline for Marchs appointment. She said that's about all she could do right now because i'm being radiated.

On that note, my collarbone sure is burnt. I'm red all over the area, but this area is particularly angry and itchy. using aloe and Aquafor. 17 done and 16 left to go. UGH!

Thanks for all the support, though! I don't know what i would do without you guys!
__________________
Terri B.
46 yrs. young
Dx IDC 3/6/08
1.5 cm & .6 cm grade III, Stage IIA
es/pr- Her2+++, 9/9 richardson
Double Mast w/expanders 4-14-08
3/9 nodes positive.
additional excision rt breast 4-25-08
weekly T/H x 12 (6-2-08) Done!
FEC x4 (9-8-08) Last one 11-10-08!
Herceptin complete 8/10/09!!
33 RADS DONE 2/13/09!
rt. breast biopsy 3/20/09 .. B9!!
reconstruction complete!
DEEEEEEported on 5/19/10!!
almost 5 YEARS NED!!
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