|
|
09-25-2008, 06:36 PM
|
#21
|
Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
|
Christine, BIG CONGRATULATIONS! Wooooo hoooooo! You have no idea how VERY happy I am for you! Such wonderful news...bring out the party hats. lol Thanks for sharing your fantastic news with us.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
|
|
|
09-25-2008, 06:36 PM
|
#22
|
Senior Member
Join Date: Oct 2006
Location: Southern California
Posts: 900
|
Simply wonderful Christine!!! Thanks for sharing your uplifting news. It gives all of us such hope!
__________________
Gerri
Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
********** Enjoy the little things, for one day you may look back and realize they were the big things. - Robert Brault
|
|
|
09-25-2008, 06:39 PM
|
#23
|
Senior Member
Join Date: Nov 2007
Location: Brentwood, CA
Posts: 76
|
wow- great news
So happy to hear your wonderful news, Christine!!!! Amazing!
__________________
Janelle
Diagnosed October 2006 at age 37 wtih grade 3 IDC and high grade DCIS
Stage 1c triple positive, no node involvement but
vascular invasion
multifocal disease
Lumpectomy November, 2006
A/C every 3 weeks (started Jan., 2007 and finished March 2007); followed weekly Taxol (finished June 2007) concurrent with Herceptin (finished March 2008);
Bilateral Mast with immediate recon in Sept 2007; finished recon Dec. 2007
Started 5 years of tamoxifen Nov. 2007; started peptide vaccine clinical trial at MD Anderson October 2008 and finished active part of trial in April 2009 (monthly injections of AE37 peptitde (HLA type specific) with GM-CSF or GM-CSF alone depending on if I was in experimental or control group); started Zometa infusions June 25, 2009- 4mg every 6 months for 3 years (taking it "off-label" to try to prevent mets)
|
|
|
09-25-2008, 06:55 PM
|
#24
|
Senior Member
Join Date: Oct 2005
Location: Boise, Idaho
Posts: 758
|
I echo everyone's praise and gratitude. We love. you and Joe. Somedays I just cry for joy and this is one of them.
Love & hugs,
Marlys
|
|
|
09-25-2008, 07:45 PM
|
#25
|
Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
|
Dear Christine,
You have made so many days bright to so many.
I am so thrilled to hear your wonderful news.
Yippee, Yahoo, and Thank you God!
Love,
jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
|
|
|
09-25-2008, 08:19 PM
|
#26
|
Senior Member
Join Date: Oct 2006
Location: Louisville KY
Naples FL
Posts: 665
|
Just The Greatest News. Wow. Congratulations, You Deserve This.
Patb
__________________
patb
Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
|
|
|
09-25-2008, 08:49 PM
|
#27
|
Senior Member
Join Date: Feb 2006
Posts: 1,014
|
Thank God! I had read earlier about the results and was praying everything was going to be fine for you. I know you are so relieved...sherryg683
__________________
Sherry
Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year
Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
|
|
|
09-25-2008, 08:53 PM
|
#28
|
Senior Member
Join Date: Sep 2005
Location: South Dakota.
Posts: 621
|
Wonderful news, Christine! Praise the Lord
__________________
Blessings and Peace,
Barbara
DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.
Accepting the gift of life, I give thanks for it and live it in fullness.
|
|
|
09-25-2008, 09:11 PM
|
#29
|
Senior Member
Join Date: May 2006
Posts: 3,142
|
The results are in !! Yippeee
That is great news !! Congratulations !! You are a champion and a great role model for the rest of us.
|
|
|
09-25-2008, 09:36 PM
|
#30
|
Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
|
Christine, that is such awesome news! Thank you so much for providing such a wonderful home for us. Joe, I think you got a "keeper"
__________________
For Nicola
|
|
|
09-25-2008, 10:09 PM
|
#31
|
Senior Member
Join Date: Dec 2006
Location: Oregon
Posts: 715
|
Christine,
What wonderful news. We are all so happy for you and for Joe.
Hugs, Catherine
__________________
Catherine
Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
|
|
|
09-25-2008, 11:34 PM
|
#32
|
Senior Member
Join Date: May 2006
Posts: 157
|
Christine,
I am very happy for you. Thanks for sharings this wonderful news, it gives hope to all of us. God bless you and Joe always.
Hugs,
KarlaV.
|
|
|
09-25-2008, 11:37 PM
|
#33
|
Senior Member
Join Date: Dec 2005
Location: Walnut Creek, CA
Posts: 438
|
What great news. Congratulations!
Karen
|
|
|
09-26-2008, 12:04 AM
|
#34
|
Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
|
Christine....AWESOME news!!! Congratulations!!!
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
|
|
|
09-26-2008, 12:57 AM
|
#35
|
Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
|
YIPEEEE!!!! Great news!
Christine, you are my inspiration and your courage and generosity is so appreciated.
You deserve good news.
hugs and love
sarah
|
|
|
09-26-2008, 03:40 AM
|
#36
|
Senior Member
Join Date: Oct 2007
Posts: 1,851
|
Christine,
This is wonderful news. You are an inspiration to everyone on the board and in particular to me now that I have been diagnosed with a brain met.
Joe is right about the compassionate board this is and you lead that charge.
Joan
__________________
Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2023 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
|
|
|
09-26-2008, 05:47 AM
|
#37
|
Senior Member
Join Date: Sep 2005
Location: Central Florida
Posts: 503
|
Great news Christine--- I am really thrilled for you. I hope you know that your story is truly amazing.
I know I may have said this before, and I will say it again: This website saved my life. Please know that had I not found this website when I was first diagnosed, I would not have had the insight to get the tests needed to find out if I was HER2 pos... living in a small, rural town, the knowledge here was (and remains) limited. So I traveled to a real breast center and received the treatment I needed.
Thank you !!!!
xo
Maria
__________________
--------------
Dx'd 8/04 at 41
Stage 1 for some onc's; Stage II for others (if you add up the sizes of all tumors).
Infiltrating DCIS
HER2+, ER+10% & PR-
.9cm tumor not visible on mammo, but palpable; visible on ultrasound
Lumpectomy/ clear margins, no nodes
Had Breast MRI after lumpectomy that revealed two more tumors in same quadrant(.4cm and 1.6cm) that were not visible on either mammo or ultrasound.
Re-excision
DD AC+T; Herceptin one year
Rads
NED/Taking Tamoxifen reluctantly
--------------
|
|
|
09-26-2008, 07:01 AM
|
#38
|
Senior Member
Join Date: Sep 2005
Location: OH
Posts: 385
|
Christine
That's simply wonderful! Thanks for everything and for being such a trailblazer.
__________________
Diagnosed 4/03/03, age 50
3.5 cm, 0/19 positive nodes
Stage IIA
Her2++, ER & PR++
RB Mastectomy, 4 AC,
|
|
|
09-26-2008, 09:01 AM
|
#39
|
Senior Member
Join Date: Sep 2005
Posts: 38
|
That is wonderful news!
Bonnie
|
|
|
09-26-2008, 09:42 AM
|
#40
|
Senior Member
Join Date: Sep 2005
Posts: 208
|
Thank you for the big ole smile on my face - that is just a lovely rainbow of news to share and thank you for sharing it. With hugs and hope, Diane
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 11:19 PM.
|