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Old 09-09-2008, 03:06 PM   #1
Rich66
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Anyone use remote onc with a local onc as team?

Do oncs ever agree to team up or are they always territorial? I'm also wondering about getting tx plan from one onc and having another local onc to implement it.
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Old 09-09-2008, 03:29 PM   #2
chrisy
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Rich,
I did this and for me it worked out great. It is important that they are willing to work together and communicate but this need not be a problem, particularly if you end up doing a "standard" therapy.

There are some oncologists that are as you say 'territorial', but many will welcome the opportunity to team up with a specialist at a major cancer center. My local oncologist was a great doctor, but referred me to a breast cancer specialist at UCSF -one who he thought was on the "cutting edge" of breast cancer research - for a second opinion .

I ended up deciding to have the UCSF doctor direct the treatment (which was initially a fairly standard regimen) but to be seen/treated by the local oncologist. I continued to see the UCSF specialist every few months, but was considered to "belong" to the local doctor.

Both doctors were fine with this arrangement, it helped that they knew and respected each other. Because I have now been in clinical trials at UCSF (which means I have to be treated there) the roles are sort of reversed for now, I see the local oncologist every few months and keep him apprised of my status. This is important because at some point I will likely "come home", and as he noted, if I ended up with an emergency, he would be a local contact.

One other thing, doing it the way I did meant I had good - and quick- access to the specialist when I needed it.

My only advice would be, make sure both doctors really ARE ok with it - you don't need anyones ego to get in the way.
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June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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Old 09-09-2008, 04:51 PM   #3
jones7676
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My oncologist in Marquette MI sometimes consults with the oncologist I saw in Chicago. They have a great relationship as far as I can tell.
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10/03 Radical Mastectomy 3 cm tumor - 1/17 Nodes Stage II B, Her 2 +++ ER-/PR- 11/03 4 AC 4 Taxol 12/05 Stage IV - Lung met , Bone mets - Carbo, Taxotere, Herceptin 9/06 - 2 cm brain tumor 10/06 - Tumor removal surgery - Herceptin Halted 12/06 gamma knife tumor base.1/07 Navelbine/Herceptin 4/07 Rads to R femur 5/07 Stereotactic - new 2 cm brain tumor 4/07 Start Xeloda 5/07 Tykerb added 7/07 Brain MRI clean 10/07 .055 cm brain met found. 12/07 Stereotactic -1 cm brain tumor Start Tykerb 11/07 Abraxane/Herceptin 5/08 Cisplatin, Gemcitabine/Herceptin 6/08 Stereotactic to 1cm 9/08 Stereotactic repeat (growth). 11/08 Pet Scan Good but new tiny met on L lung/dead Brain surgery (no cancer cells found/scar tissue) 1/09 Chemo restarted 2/09 Pet Scan Bad - R larger very active/active L active lymph nodes both sides of chest MRI- mets slight increase 2/09 Start Doxil/Tykerb Treatment
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Old 09-10-2008, 04:23 PM   #4
ElaineM
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Smile Anyone use remote onc with a local onc as a team

I write to my former oncologist and ask him for advice once in awhile. I share his advice with my local docs. I don't know if this qualifies, but I value my former oncologist's opinion. My current docs sort of have to listen. Smile !! My former oncologist still has a financial interest in his former practice and he hired them.
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Old 09-10-2008, 04:30 PM   #5
Carolyns
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Rich,

I asked that very question prior to going to visit a major cancer center doctor. I told her my intentions and where I lived. The large cancer center happened to have a very close working relationship with the cancer center close to my home and the one that I wanted to use.

In the end, everything I wanted was at my local center but my experience made me see that it could work.

Good luck, Carolyn
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Old 09-11-2008, 05:07 AM   #6
mts
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My "real" onc is at UPenn and the middleman onc is in Orlando (I live 75 miles south of Orlando, FL).

I visit UPenn once a year for my own peace of mind. My Orlando onc actually encourages me to go to Philadelphia because he is a UPenn grad as well !

Both onc's have different views, but fortunately for me, they have no problem communicating with one another. It took me nearly 3 months and 4 different oncology centers to get what I felt was right for me.

maria
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Dx'd 8/04 at 41
Stage 1 for some onc's; Stage II for others (if you add up the sizes of all tumors).
Infiltrating DCIS
HER2+, ER+10% & PR-
.9cm tumor not visible on mammo, but palpable; visible on ultrasound
Lumpectomy/ clear margins, no nodes
Had Breast MRI after lumpectomy that revealed two more tumors in same quadrant(.4cm and 1.6cm) that were not visible on either mammo or ultrasound.
Re-excision
DD AC+T; Herceptin one year
Rads
NED/Taking Tamoxifen reluctantly
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