Your thoughts on Memorial page

[kcherub]

Was the original idea of a memorial page to move posts from our lost friends? That was not what I thought the original intention was, but now I am not so sure (after reading Becky's post about failed chemos). That would be just silly, time-consuming, and kind of offensive! I need to go back and make sure I didn't miss what the original idea was!

Young Survival has a separate area called the "remembrance board" which is very nicely done. People post about members there, and even post about others that might not have posted on the site, but for whom they want to post a note about. Take a look at it--I think this would be a nice format.

Being a newbie last year was scary no matter what--I do check the remembrance area on Young Survival often, so that I can offer comfort to those who may be posting for a friend, family member or even someone they didn't know personally. I don't post very often on that board in other areas, but do send a short note to that area.

Not sure if this makes sense--I swear the Tamoxifen is giving me brain cell loss!

Just a thought!
Take care,

[PinkGirl]

Krista,
The first post from Love and Light Lisa did not
mention anything about including treatment
history etc. Some of the subsequent posts by
other members did mention this.

My idea of some kind of memorial page does not
include lists of failed chemo attempts. I am talking
about a page of photos to remember and show
respect to our members who have died.

[kcherub]

Pinkgirl,

That is exactly what I was thinking. If I could find a way to set something up on one of my sites, I would. They just don't seem appropriate and would be hard for anyone to find (I couldn't just put a link on the home pages--one is a pregnancy loss site and the other is for my children's boutique).

Maybe the idea will come up again at another point. It was a good discussion, nonetheless.

Have a great night!

[Marlys]

I, for one, feel very strongly that Joe and Christine's wishes must prevail. That being said I did as PinkGirl and made my own memorial page with those who have left since I joined. I, in fact, have put it in the same folder with all the pictures of TipToe so that I can cry and laugh at the same time. I loved the scene in Steel Magnolias where Sally Fields expresses her anger about her loss and Olympia Dukakis tells her to hit Shirley McClaine and I found myself laughing & crying at the same time. It is so cathatic.
Love & hugs,
Marlys

[chrisy]

I've not commented on this thread; I remember when the original thread was posted after a similarly difficult time. I agree with Becky and especially with Joe and Christine's wishes.

I have another suggestion, tho. As flori said in the other thread, we miss the opportunity for remembrance and closure we would in a real life community because we are a virtual community.

We do have a way to do this - why not set a chat room date/time. True, cyber hugs will never really substitute for real ones, but it would be way to come together, say good bye, share memories.

[ElaineM]

Hi,
The suggestions about a separate memorial page or a separate chapel where people can drop in and remember people who are no longer with us is a good idea. Those things give everyone a choice about whether or not to view memorials as part of the main her2support.org site. It would also continue to provide the information, support, sharing and encouragement the majority of the people who log on seem to benefit from whenever they log on to her2support.org. Maybe the folks who suggested the memorial page or chapel could volunter as monitors of those things.

[Catherine]

Just wanted you to know that I am lurking (and I have no idea why this is typing in bold). As usual, I am impressed with the conversation and the love and thoughfulness of each member. It took me 8 months to find this site after my Dx in April 06. My Her2 sisters here and in heaven mean the world to me. I, too, see both sides to this memorial page idea. I, too, do not want to scare any newbies away. It might have scared me away. When I first signed on, I was excited to see so many gutsy women that were sharing information. I had a lot of questions that I only seemed to be able to get answered on this site.

Hugs to all of us here and in heaven,
Catherine

[Andrea Barnett Budin]

When I was first dx I had the usual stunned disbelief and the "all but paralyzing" fear". I quickly began buying books about bc. My DH Paul and I read voraciously, informing ourselves, aware that knowledge is always empowering! Whenever I got to the statistics I immediately tossed the book aside.

It wasn't that I couldn't handle it, and not that I was in any kind of denial, I just KNEW I needed to focus my attention on healing and becoming well (versus all the negative potentialities). No matter what, I fully intended to be in the little group described in all the books as surviving 5 years. Additionally, right off I KNEW I would be *starting* w/5 years. I needed to read different books. Ones that would inspire me, not discourage me. Ones that knew I was not a statistic, but a unique human being.

I yearned for others LIKE ME. (3 yrs after my '95 dx my bc had spread throughout my liver AND I then knew I was HER+!) However, at that time -- I could not handle this wonderful site! I was focused on thinking positively, fighting the cancer and the fresh fear, as my odds had dwindled to a new and staggering low. The few posts I happened to read scared me away. I saw so much suffering and searching. I had to distance myself to protect my fragile state of mind.

I guess I somehow missed the encouraging posts, the tales of victory. I needed to meditate and envision myself as a Survivor, unimpeded by all things depressing. I needed to come to own my Knowing that I would prevail. To BELIEVE! I Knew I needed to live AS IF what I wanted so much was truly on its way to me!

Yes, death is quite the downer, as we all know. I decided not to consider death by bc as being my destiny. I would die of something entirely different, far into the future. I intended to be at my then 2 yr old grandchild's wedding. And, at her 40th birthday, if you must know!! I was adamant. This was the energy I consciously chose to send out into the Universe. I learned that from the books I'd been drawn to.

So I certainly understand a newbies state of mind, and in particular w/this marvelous site. I would return years later, as a Survivor (somewhat firmly established in NED, beyond cautious remission). I would offer my experience for others to feel inspired. That worked for me. As a senior in Life Lessons I can handle anything thrown at me now. I have grown stronger and braver, tougher and more gentle all at once. All because of ca.

Still, I learn every day from my Sisters on this board. I am open. I continue to grow. I fall in love...

As most of you know, I have been hanging out in chemo rooms (in New York and in Florida) for most of the last 13 yrs. You can check out my signature below for details.

My point being, I have come to know a lot of dead people. When I first began losing chemo mates it hit me in my gut. It was wrenching. Frightening. As many of you can readily relate.

In '95, I knew, for example, that Florence was not doing well all of a sudden. She was a lovely older woman I sat with weekly and had come to know well. When she did not show up, Paul and I asked for her. A few times, her counts were down and she could not get her chemo, the nurse explained reluctantly, smiling sweetly. She was trying to be gentle. She had been down that road many a time, I now can see, in my rear view mirror. Then came the time I asked and there was that long pause. The nurse, Mary Lynn, locked my gaze into hers and softly told me, She's gone...

That was '95. Today, as I have had the good fortune to know many wonderful chemo mates and Sisters, I have also lost far too many. I've attended some of their funerals. Written cards and a special letter to the 7 year old daughter of one who I dearly wanted to be able to remember her mother and know how hard she fought to stay with her. How completely this child was loved. So that became a mission for me, to ensure that this darling child could have the essence of her devoted mother in words, to look at through the years as she grew.



Forgive my digression please. I plead guilty. I just want to give you my view from where I stand. The various Cancer Centers I *frequent* (I am laughing at the irony) have something in common. They do not dwell on those who have lost their battle. Surely the nurses clearly form affection for all entrusted to their care. We who know these warrior women of extraordinary valor hold them in our hearts forever, and in the highest of esteem. Whether they survive or not. But I believe it is felt (by the powers that be, at each Center) that it is in the best interests of those who do manage to be victorious, not to be brought down by our unwanted and painful losses.

Still many wish to properly honor our fallen soldiers. To remember them. To have a place they can go to touch them when we feel the need. To have a page of FORGET-ME-NOTS -- for those who have evolved to a point that they can handle tiptoeing among the gravestones, if you will... I respect that need! How could I not?! I am one with my Sisters and Brothers.

I believe we best honor those whose battle with ca has ended by planting ourselves firmly in each moment of each new day. Not lingering in yesterdays or worrying about tomorrows. Tough challenge, yes indeed! That is a Life Lesson I have learned well on this journey!

In carrying on our fight with as much grace as we can muster -- we pay tribute to those who are gone and to Life itself!! And this is surely what the loving Sisters they have parted from would ant for us.

Last year I was in a bit of an emotional slump. A social worker at the Center who sees me every 3 weeks, forever, sensed that I was not myself. We have exchanged views on positivity, cognitive behavior and Spirituality on numerous occasions. We are on the same wave length. This young woman is a bc Survivor. She pulled up a chair beside my recliner as I was getting my *fix* and asked, What's going on? Suddenly I realized and gushed -- in a matter of years, I had lost my dearest friend, I had lost my buddy who sat beside me at every chemo for 5 yrs, I had lost my friend of 25 years who was like a brother to me and more, more, more... I began to realize my list was quite long.

Kathy suggested to me that I go home and write their names down on a piece of paper. And then to put my finger on each name, one at a time, and say a prayer, thanking God for allowing me to know that person and have them be a part of my life. Then to say a prayer for them, that they may rest in peace, and know that they are still much loved.

I had accumulated several dozen names much to my surprise! I did as was suggested. It was a very powerful ceremony. It was cathartic. Clarifying. Elevating. A most profound experience. I mention this as a possible means of coping for you.

So, though I began reading this great thread that is full of much wisdom and substance, I thought I favored a memorial page absolutely. Now, I find I am conflicted. Certainly, I do not want to sweep our fallen heroes under the rug. And I do not want to bow to, and perpetuate, our society's inability to deal gracefully with death and dying (as I have come to duly note and scoff at as something that urgently needs rectifying). However, it is essential to me that we uphold the hope, inspiration and promise of this beautiful site at all cost. What to do?

I favor a special chat room session in which those of us who feel the need to come together as a virtual community and speak of our feelings, our remembrances and our admiration for Sisters who have gone on ahead of us. Perhaps it could be sporadic, suggested in a thread proposed by a member for a specific upcoming date and time, as needed. Those who do not wish to, or can't bring themselves to for whatever reason (as their personal journey dictates), simply will not log in. Some are fresh from traumatic events and their emotions are overwhelming. They need time to heal, understandably. We are human beings after all and humans are chock full of emotion. (What a great suggestion, Chrisy! Thank you, my sweet.)

I also rush to add that I feel it would be disrespectful to delete those who have passed on into non-existence. That is too austere, too drastic. Whoever wishes to familiarize themselves with certain old friend's faces and words of encouragement should have access to such beauty at any time. That's what I think. Much benefit could potentially be derived in my view at any time... I cherish Kate's words, Michelle's, Nicola's, and so on. Please allow me to reach out and reconnect at will, Joe and Christine.

Could there be a special category on the board where we could honor each and every Warrior? A part of the board, yet apart. Separate. For all who wish to reminisce in a bittersweet way, to post their sentiments. FORGET-ME-NOT. Courage is seeing what must be done and doing it anyway. Yet courage at certain times is all about getting through the next hour. Both these points of view must be dealt with in the interest of us all, for the betterment of us all.

<B>With much love always, Andi

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