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04-27-2008, 08:11 PM
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#1
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Member
Join Date: Apr 2008
Posts: 23
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lumpectomy update
Hey everyone! Had the lumpectomy w/ snb Tue. Did really good til Fri.- had TERRIBLE pain under staples in breast- just took major pain meds & rode it out!!! It's benn grdually better since then... Didn't get good news- 2/4 nodes were +. Onc wants the rest taken out, so back to the surgeon in the a.m. to schedule that & the placement of the port. I think I'm still absorbing it all- everyone else seems more upset than I am... I know it will eventually hit me. I'm just trying to get through it the best I can... Please keep us in your prayers. Blessings, Kelli
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04-27-2008, 08:33 PM
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#2
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Senior Member
Join Date: Feb 2006
Posts: 1,014
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I'm sorry Kelli that you are having such pain. I do remember that time very well. I had my surgery 3 days before Christmas, I hurt so bad. I went to church on Christmas Eve and ended up getting the flu real bad for Christmas day. That tube is so uncomfortable. Be sure to take care of yourself right now because your immune system is probably low. When I had mine done the first 5 they took out were bad, so they went ahead and took out most of the others. I didn't get the results back for a week but I remember being in shock when they told me all 5 were bad...it turned out to be at least 13 or more. I'm sorry that they are having to go back in so soon for the port and other lymph node removals. I had the port put in also a week after my bout with the flu and lumpectomy. I was so upset at having to put my body through another surgery so soon. I was upset that when the surgeon saw the bad lymph nodes that she didn't just automatically put the port in then, she knew I was going to need chemo. Plus the fact that the second surgery occured on January 1 and we had to pay our deductable all over again. Yes, it will probably all hit you very soon but it's better that you are feeling the way you do right now. You have a lot to absorb and go through. Take a deep breath and take it one day at a time, that's all you can do. And if you start having anxiety attacks, don't hesistate to ask for anxiety medication to help you through this time...be easy on yourself...You are in my prayers..sherryg683
__________________
Sherry
Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year
Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
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04-27-2008, 08:48 PM
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#3
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Senior Member
Join Date: Jun 2006
Posts: 153
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I am sorry Kelli,
This is the hardest part of the journey, it does get better, ever so slowly.
Sending prayers your way as we speak.
__________________
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04-27-2008, 09:40 PM
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#4
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Senior Member
Join Date: Apr 2008
Location: WA State
Posts: 199
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Kelli,
I'm new here but just wanted to say that I am thinking about you and asking our loving Lord to embrace you during this time. Lean on Him and I'll be praying for you.
Cindy
__________________
Cindy
L/IDC, 1.2 cm, Stage 1, Her2+, ER+/PR+ at age 48
4/15/2008 Lumpectomy + sentinel node biopsy
Margins neg and Nodes neg (2 tested)
MUGA score 55 on 5/6/2008
Treatment starting 05/08/2008:
Chemo 4 cycles, 3 weeks apart with Taxotere & Cytoxan - Chemo - Done 7/24/2008!
Herceptin for 1 year
Radiation starting in 9/2008
MUGA score 61.9 on 9/04/2008
33 Rads with boost - Done 10/13/2008
MUGA score 58 on 12/01/2008
MUGA score 59 on 3/16/2009
Herceptin for 1 year - Done 4/27/2009
MUGA score 64 on 6/22/2009
All scans - NED 6/24/2009
MRI - NED 11/10/2009
All scans - Still NED 8/25/2011
Still NED 2017!
I am calling this my pink journey
Follow my journey into the pink at my blog here
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04-28-2008, 05:19 AM
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#5
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Hey Kelli!
Sounds to me that you're doing it just right...taking it one step, one day at a time. For me, it's the only way to keep stress down and to stay calm enough to make "sane" ( not sure about that one) decisions. Good luck and keep believing in your victory. ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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04-28-2008, 05:35 AM
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#6
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Senior Member
Join Date: Apr 2008
Posts: 1,477
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Kelli,
Sorry that you experienced such pain on Friday and that you must have more surgery. I think what you are going through in terms of emotions is normal- dx and treatment are a bit surreal and it IS hard to absorb. Just take things one day at a time and be strong and you will get through this. You will be finding out how strong you are. You have my thoughts and prayers. Please keep us posted.
Best wishes,
Karen
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04-28-2008, 02:08 PM
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#7
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Member
Join Date: Apr 2008
Posts: 23
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Thank you all for your encouragement!! My next surgery is May 9th- axillary node disection & port placement. Chemo will start following week. I will keep you informed, again, thanks- it really helps to "talk" w/ people who truly understand. Blessings, Kelli
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04-28-2008, 03:14 PM
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#8
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Kelli,
I am sorry that you have to go back for additional surgery, the waiting is often the worst part. Please know that you remain in my prayers.
Kind Regards,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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04-28-2008, 03:58 PM
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#9
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Senior Member
Join Date: Jan 2008
Location: Carmel, Indiana
Posts: 98
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Kelli,
Hang in there and keep up that positive attitude!
Love,
Beth
__________________
DX 9-19-07 at age 40
DCIS, Inv. Duct. Car. 3 cm
Positive lymph node biopsy
Er+Pr+Her+++
Carboplatin/Taxotere/Herceptin
10-1-07 -- 1-16-08
Herceptin every 3 weeks until 9/24/08
Lump. and node dissection 2-12-08
BRCA1 and 2 negative
30 rads finished 4-23-08
oophorectomy 5-6-08
Femara started 5/25/08
Zometa for osteoporosis every 6 mo. started 9-24-08
Married 16 years!
3 kids - daughter (10), twin sons (7)
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04-28-2008, 04:13 PM
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#10
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Hi Kelli! I'm sorry you had such pain, but at least you had something to take to help. You will be in my prayers. Try to take it easy on yourself and just get through it one day at a time. Best wishes, Bill
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04-28-2008, 05:25 PM
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#11
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Senior Member
Join Date: Jan 2008
Posts: 305
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Kelli - I am sorry your news wasn't better, good luck with your next surgery.
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