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Old 02-27-2008, 05:16 AM   #1
Sheila
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Tonya
What premeds are you getting...chances are, if you are getting a steroid, you feel wired for a couple days....mine hits the night of chemo, and lasts for 3-4 days straight, the I get it out of my system. My Dr ordered Ambien, although i rarely take it...just don't want to do the sleeping pill thing...some have had great luck with Lunesta, also a prescription. Start by taking a Xanax, and see if it helps...the Vicodin will make you sleepy usually, but is more for pain...just don't mix the 2 or mix with alcohol.....hope this helps, sweet dreams
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Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 02-27-2008, 07:27 AM   #2
PinkGirl
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Hi Faith
I had this problem too. The first
night was the worst one. My chemo
nurse suggested taking an Ativan at
bedtime - it did help me sleep but my
husband told me that my arms and legs
moved all night - like I was running a
marathon. I am careful with the Ativan
and only took it for the first few nights
after a treatment.

Hope you find something that helps. You
need your sleep. Good luck with this.
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Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



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Old 02-27-2008, 08:14 AM   #3
MJo
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I stayed awake many nights during chemo. I'm sure the premeds had something to do with it, but I also think chemo turns our bodies inside out and upside down. Any positives? There are some great movies on at 3 a.m.
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IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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Old 02-27-2008, 09:44 AM   #4
Carol Carlson
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I'm a bit of an insomniac anyway, so when I was on chemo, my Dr. gave me Ambien which worked well. Her feeling was that " you need your sleep" while going through chemo. A good night's sleep is important and helps you heal .But like anything , else, moderation and common sense is key. I stopped taking it after chemo but still have a prescription for it and if I have a particularly difficult night sleepng, I'll take one.
Talk to your doctor about it. They all differ as to their opinions re: taking something for sleep. Some hand them out like M&M's while others are overly cautious about the risk of addiction.
Mine is kind of common sense about it and so am I. Use it but don't abuse it I guess is good advice.
Good luck.
Carol C.
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Old 02-27-2008, 10:07 AM   #5
Emelie
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I took Ambien after a minor surgical procedure and used it during chemo. It worked great for me. I only take it now if I haven't slept for several days in a row due to hot flashes, and stress.
Talk to your doctor and let them know you are having difficulty sleeping. I am sure they can help you with this problem
Good luck,
Emelie
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Old 02-27-2008, 01:58 PM   #6
Chelee
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Tonya, Those pre-meds will keep you wired up a bit for a couple days. So yes...the problem of sleeping is very common while going through chemo. Sleep is important so I would try your xanax first...that should help. If not *most* onc's are good about making sure you have something to help you sleep. So if the xanax doesn't work ask your onc about it. Many like the Ambiem but for me that didn't work at all. Ambiem is really to help you fall asleep...but not keep you asleep. Actually there is a newer version of Ambiem so it might be better then what I tried.

The xanax and Ativan worked the best for me. But you will want to try something because its bad enough going through chemo without having to worry about not getting any sleep. Again...this is a very common problem so tell your onc if the xanax doesn't do it. Hang in there.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 02-27-2008, 06:18 PM   #7
Lolly
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I takd 2 mg of melatonin and 25 mg of benedryl about an hour before bedtime. It usually works pretty well, even on chemo nights after pre-meds which for me include steroids. Check with your onc first.

<3 Lolly
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Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.

Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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Old 02-27-2008, 06:36 PM   #8
Bill
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Hi Tonya, i know the not sleeping thing can be miserable. You've already gotten alot of great advice from the sisters. I think trying to reduce the premed steroid a little might help. Just a couple thoughts from me. I don't know what your routine is after chemo., and I know you have young children, but maybe, on chemo nights, if you don't already, you could just slip into a nice, hot bath, with fragrant candles lit and nice soft music playing, and after your bath, take an Ambien or melatonin tablet with a soothing cup of herbal tea and slip right into bed (Maybe preheated with an electric blanket) Your husband seems like a wonderful man. Perhaps on chemo. night, if it works for you and your family, it could be "pizza and movie night" or whatever, for him and the kids while you relax. I have sleep apnea, and we used to let our Rottweiler, Wyatt, sleep in our bedroom, and he would bang around all night, and once I went to sleep and then "got woke up" I had a terrible time going back to sleep. If this is similar to your situation, maybe your husband could "camp out" with the kids in the living room and give you more quiet time in the bedroom as you try to relax. Uh oh, please don't think I'm comparing your husband to a big dog, because I'm not, I just meant if you have the room to yourself and go through a relaxation process, you might be able to relax and stay asleep better. Nikki used to play a CD of "ocean music" set to replay over and over of waves crashing on the beach, gulls, etc. and it was soothing and relaxing. Also, if changing your day of treatment might help, consider that. Love and prayers to you, Bill
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