Please post your two cents on Herceptin "side effects" real or perceived!

[Catherine]

Dx April 2006, Er/Pr-negative and Her2+++, Chemo given first, 4 rounds of adrimyicen and cytoxin. Then 4 rounds of taxol. All tumors and lymphs shrunk to nothing. Then bilateral mast, followed by 33 rads and then one year of Herceptin. Dx at age 58, postmenopausal.

Herceptin side effects:
Bloody nose at first. Dry eyes, crusty nose. Weight gain, rings are too tight. Achey joints and muscles. Difficulty finding words, I speak backwords sometimes. Read a lot, but can not remember what I read. I work part time, and actually do a very good job with my clients. My last Herceptin is in 2 days. Right now my back hurts. When I go to bed at night everything hurts. Mugas every 4 months, all is well. Actually my side effects were light, but they were still there and I think Gentech should know.

Catherine

[kat in the delta]

Katherine,
Do you still have these poor memory and pain..all side effects? I sure do.. as you can see I agree that Genetech should know. Is this NOT the site ..that reports the after effects of their great drug..(which we really don't know if it helped up or not..) HERE at this thread?
I did not mean to type so MUCH and ... 3 X's.. !!! I can't believe what I did last night... Oh well,,,, afterlife chemo. has not been so good.. as you well can tell ..... RSVP when you can.. here..
Kat in the delta