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12-13-2007, 08:22 PM
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#1
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Senior Member
Join Date: Sep 2005
Posts: 312
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Bill,
You had a special life with Nikki.
Namaste
__________________
Janet
Endometrial Cancer 2002
Mammogram 11/2004
Lumpectomy 12/2004
Stage 1, 9mm DCIS, grade 2, Her2+++, ER/PR negative
Refused A/C as recommened by two oncs.
35 treatments of radiation that ended March 4, 2005
Changed oncologists and began
Taxotere/Herceptin August 2005. Finished Herceptin July 2006
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12-13-2007, 08:50 PM
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#2
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Bill,
Nikki was a very special woman who touched many hearts here. She always had such a postive attitude and offered such encouragement and hope to others. She was fortunate to have such a loving husband. Know that she is at peace and looking down on all of us. She is one of our special angels.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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12-13-2007, 09:01 PM
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#3
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Bill, your Nikki was blessed by your closeness and love for her, just as you were blessed in return.
Thank you for sharing your poem, it's really beautiful.
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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12-14-2007, 02:32 PM
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#4
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Senior Member
Join Date: Nov 2005
Location: Lincoln, Rhode Island
Posts: 371
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Dear Bill,
What a beautiful poem I am so glad you are here with us. Nicola was a beautiful soul and was so loved by us all here. Please keep in touc with us.
__________________
Love and Hope
Karen
IDC
DX 1998 STAGE I ER+/ PR+
AC CHEMO TILL FEB 1999
Tamxofin till 2001
2001 exstensive liver mets and mets to lungs
Started weekly taxol
Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex
2005 Navelbine herceptin had RFA Then back on taxol with herceptin
April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin
Feb 2007 started Doxil
August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas
October 2007 Had to stop Carboplatin due to sever allergic reaction
Jan 2008
Stopped Taxotere due to progression now on Gemzar and Herceptin
March 2008 Starting Carboplatin, Abraxane, and Herceptin.
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12-22-2007, 02:06 PM
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#5
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Senior Member
Join Date: Mar 2007
Location: Greendale, WI
just outside Milwaukee
Posts: 211
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Bill, First and foremost - YOUR POEM IS BEAUTIFUL - I am so sorry that when you called last weekend, I was not abe to provide you with the support I so desparetly wanted to give you. I have been having a bout w/ depresion and I could not talk about Nicola w/o breaking into a million pieces. I just wanted to let you know that my CT was negative. No Acities, No mass. I am just very bloated (9lbs in a month). I was sure there was something amiss! It may be a change in two medications. I changed from tamoxafin to Femara and from Lisinopril to Diovan. I have since gone back to Lisinopril, and my bloating has decreased significantly. My energy level and spirits are getting back to normal just in time for Christmas and our trip to Miraval SPA in AZ. What a blessing! Thank you for all your kind words last week when I was falling apart. You are a wonderful and caring individual and Nikki was extreemly lucky to have fallen in love w/ such a great guy. Peace Karen
__________________
04/05 Onset 49, DCIS, solid, Hist 2/3, Nucl 2/3, 7cm R Brst
04/05 E & P + HER2+++
05/05 Mediport
05/05 Cytoxan & Adriamycin every 3wk x4
08/05 Taxol every 2wk x 4, Herceptin every wk x1yr
10/05 Bilat Mast - my Choice
10/05 3/19 lymph nodes Pos, Stage IIIa
11/05 Rad x 37 Rx, R Brst & Axcilla
02/06 Herceptin stopped (L vent HF 40)
03/06 Started & Stoped Arimidex after 2 mos.-QOL side effects
05/06 Started Tamoxafin
06/06 Bilat Free Flap Reconstruction
12/06 Cardiomyopathy reversed-HF normal
01/07 Bilat Saline Implants
07/07 CA 27-29 steadily rising from 28 in 12/06 to 46 in 7/07
07/07 PET Scan NED, but inflamation at prev surg site.
09/07 Started Femara
10/07 CA 27-29 down to 39
06/08 CA 27-29 down to 32
09/08 Lg joint pain & QOL side effects from Femara, will live w/ to keep CA markers within normal range.
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12-22-2007, 03:06 PM
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#6
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Bill, I think as you so perfectly tried to fulfill your purpose, your Nikki fulfilled hers here! She blessed us with her genuiness (sp) and beauty of spirit! Peace and love at this Christmas time.
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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12-22-2007, 09:15 PM
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#7
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Oh Karen! You don't owe me any apology whatsoever. I understand how upsetting that phone call was for us both, i'm just so glad you made it. I realize that we have all lost Nicola, only in different ways, and it really hurts for those that knew her best. She had alot of good friends on this site. I'm so glad that you had positive results on your scans, and that your energy level is picking up for the holidays. Thanks for letting me know. I hope you have a great time on your spa trip. I've been sitting here debating with myself on whether or not I should tell you this next part, but I feel like I'm in a group of friends, so here goes.....I went to the doctor weeks ago,for depression and anxiety, etc., understandable, I guess. He gave me a script for Ativan and Ambien to help me sleep. Anyhow, while I was talking to you on the phone, I walked back to the medicine cabinet and took an Ativan. Then, after we finished talking on the phone, I noticed my Ativan bottle was on the kitchen counter, so I checked the bottle in the medicine cabinet and discovered I'd taken an Ambien by mistake! It was early in the afternoon! And I had alot of stuff to do! I thought about trying to run out real quick before it kicked in, but realized that was stupid, so I just grabbed a pillow and blanket and laid down on the couch, lol. It was a good nap. I hope you have a Merry Christmas! Love, Bill
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12-22-2007, 09:20 PM
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#8
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Hi Mary Anne! Thank you for your support and kind words. I hope you and everyone here have a wonderful and peaceful Christmas. Love, Bill
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