| Keeping Your Mind Off of BC Fun things and posts that do not apply to BC |
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12-06-2007, 05:21 PM
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#1
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Senior Member
Join Date: Oct 2005
Posts: 3,519
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Sorry to hear about your son! I hope he is ok! Hey Barb, if you can just get her to me by Dec 11, then I can take her to the San Antonio Breast Cancer Symposium and hand her off to Sheila.
__________________
Brenda
NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)
Nov'03~ dX stage 2B
Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg
Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~ Started Tykerb/Xeloda, no WBR for now
June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~ PET/CT & MRI show NED
Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.
"I would rather be anecdotally alive than statistically dead."
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12-07-2007, 09:53 PM
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#2
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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TipToes Next Stop
TipToe is ready to take on his next adventure. I wasn't able to get TipToe shipped out to Barb on time due to the fact that my son ended up in the hospital and I have been consumed with that. Barb asked that I just send TipToe on to Texas to be with Brenda but I need Brenda's mailing info. Barb said when she is feeling better she will schedule another visit with TipToe. So I f someone could give me Brenda's info I will send TipToe to her. Thank you and i will be sorry to see the little princess go.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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12-08-2007, 03:20 PM
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#3
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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I have'nt had much free time to log on lately and see how Tip is doing but had requested she stay with me whenever its convinient to her schedule?? I'm away week comm Feb 23rd to march 2nd but home any time before or after that date..
I'm sure we can make her comfortable here, it IS wet and cold so she'll need to wrap up well and maybe bring her brolly! Christmas would be nice if she could make it. Pics may be a problem as I don't own a digital camera as yet but have dropped lots of hints as to what I'd like for a Christmas pressie 
I do have an ok camera on my phone though, Pink girl I have a question...would Tip object to spending time with my six cats do you think?? They're mostly friendly and like visitor's but I've never had such a distinguished guest before so want to make sure I have a word with them beforehand to ensure they perform the correct protocol for Tip??
They have lots of toys she may enjoy for amusement and a ten foot cat tree which they insist is tremendous fun if climbed at speed..she may well enjoy the whole experience and I'll be certain to they keep their drinking and swearing under control!!!!
P.S...I think it may be good for Tip to broaden her mind and travel a little to Ireland..does she have an up to date passport does anyone know??
The Paddys day parade here in Dublin would be great if Tip can make it,I'll try to keep the Guiness to a minimum but sure she's enjoy the different culture!
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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12-08-2007, 07:40 PM
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#4
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Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
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Tricia,
Tip's very easy-going. I think the cats will
be fine. She was very quiet with me but Andi
found her chatty. But, Andi could probably get
anyone talking.
I'd be careful with the beer. Remember Kathy S
from Tokyo told us about Asians missing a
certain enzyme that processes alcohol. I would
keep a close eye on her with the booze.
She has a current up-to-date passport from
the People's Republic of China (with a picture
of Chairman Mao) on the front.
__________________
PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
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12-13-2007, 02:12 PM
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#5
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Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
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hmmm
I hate to be a stickler for words, but I am .....
I have noticed that Tiptoe has been referred
to as "he" or "him".
Tip is definitely a female..... remember this all
started because of her ovaries
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PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
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12-13-2007, 09:32 PM
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#6
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Senior Member
Join Date: Aug 2006
Location: So California
Posts: 223
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oops
oops. sorry. Hopefully, SHE is the forgiving type!
Somehow I missed Tiptoe's beginnings.
Lisa
__________________
Leslie's Sister (Lisa)
Diagnosed 5/17/06
Left breast Stage II
5 cm. Her2Neu+++, ER-, PR-
1 positive node out of six,
double mastectomy 6/9/06;
TCH started 7/12/06
last chemo 10/25/06
herceptin ended 6-11-07
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12-14-2007, 03:27 PM
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#7
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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Brief Synopsis. The Birth Of Tiptoe...
WELL, we all found out that -- Herceptin is derived from Chinese hamster ovaries. So Pinkie got the bright idea  to adopt a Chinese hamster and have HER travel around from HER2 Sister to Sister. This is in appreciation for the sacrifice the little critters have made to help save our lives! And, PinkGirl thought it would be great to share pics of Tiptoe in everyone's various home base and give some insight into our lives. The Pink One hails from Canada. She sent Tipsy (who has a drinking problem, but is spiritually grounded now and doing well on her world tour) to me, in Boca. (Fla.) I sent Tippy to Marie (Believe) and you can follow HER itinerary, created by her personal travel agent, Brenda (Hitchibk). Each *hostess* is supposed to update us on Tip's activities and give us a running commentary of her witticisms and post pics.
There is also a JOURNAL which each Sister has been contributing to and passing on along w/TipToe. And are acquired wardrobe, including blue stud earrings, a bc necklace w/a hope charm, a little bc blanky (for the cold weather), a sweater and I can't remember. Tiptoe also has a passport! What with coming to Pink from China and all...
Andi 
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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12-11-2007, 09:19 PM
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#8
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Senior Member
Join Date: Dec 2006
Location: Massillon, Ohio
Posts: 247
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I would love to have tip toe visit. I am glad to hear he lots of sweaters, its cold in Ohio. I am free for lat week on Jan. or anytime in Feb. I will coordinate his visit with my "I'm done with treatment party". I think we are shooting for the last week in Jan. or first of Feb.
__________________
Laurie
Diagonsed 8/10/06 (found own lump)at 35
Her 2 +++, er-/pr-
4 A/C 8-29-06 to 11-06
Lumpectomy, node dissection- 11/30/06
Pathology report stage IIIC
1 tumor 3 cm
10 of 15 nodes +
12 Taxol 12/18/06-03/06/07
Herceptin 12/18/06- 12/11/2007 done!!! yeah!!!
33 rads started 3/22/07, done!! yeah!! 5/07/07
Lymphedema diagonsed 2/1/07
BRCA1/BRCA2 negative
port out 1/10/08
pregnant after 6 yeas of trying- due mid feb.
Ryder David Kessel Hunter born feb.6th 2009
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12-12-2007, 09:39 PM
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#9
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Senior Member
Join Date: Aug 2006
Location: So California
Posts: 223
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following tip toe
hi everyone:
I have been following the travels of Tiptoe not thinking that I would fit into his travel plans but realized that he might want to join me next year. In Feb 2008, I plan on running the Inaugural National Marathon to Fight Breast Cancer in Jacksonville. My travel dates are Feb 15 to Feb 18, with the race being on the Feb 17. I could commit to carrying the little critter during the race-please tell me he isn't too big as it is 26.2 miles of running! Anyhow just a thought. It might be fun for him to run in a marathon esp if I am doing all the work. If he is already booked up, that is fine. I know that he is one busy critter!
Lisa
__________________
Leslie's Sister (Lisa)
Diagnosed 5/17/06
Left breast Stage II
5 cm. Her2Neu+++, ER-, PR-
1 positive node out of six,
double mastectomy 6/9/06;
TCH started 7/12/06
last chemo 10/25/06
herceptin ended 6-11-07
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12-13-2007, 07:13 AM
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#10
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Senior Member
Join Date: Aug 2006
Location: So California
Posts: 223
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links
sorry. I meant to attach a link to the marathon website.
http://www.breastcancermarathon.com/
and a link to an article announcing Mayo Clinic's support and ultimate receipt of funds from the marathon
http://www.mayoclinic.org/news2006-jax/3517.html
Lisa
__________________
Leslie's Sister (Lisa)
Diagnosed 5/17/06
Left breast Stage II
5 cm. Her2Neu+++, ER-, PR-
1 positive node out of six,
double mastectomy 6/9/06;
TCH started 7/12/06
last chemo 10/25/06
herceptin ended 6-11-07
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01-07-2008, 03:42 PM
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#11
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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New Tiptoe visit dates?
Hey Brenda -
Can you revise the "travel schedule" with some more realistic dates from Christmas on??
That would be great since my turn to host is coming up and am planning a short trip to Rancho Mirage at the end of the month. Don't want to hang up the happy couple here if I can help it.
They need to stay on course for spreading around all the healing energy they can ("they" since now there is Tex to consider).
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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