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Old 11-14-2007, 12:13 PM   #1
Believe51
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Unhappy Mammogram Question

I have had a mammogram in June of this year and although I am only 42 I wonder what I need to do now Mom has been diagnosed?? She has DCIS but until the rest of the reports comes back we do not know if it is invasive or not. When should I have another mammogram?? How Often?? Should I get bloodwork done?? What do I need to do to watch myself??

Although I deep down know the answers to some of the questions posted I would like to hear your comments about this. I am not scared, just a tad concerned about my health and the stress I am under. Don't want to forget about me!! Tehehe!!>>Love Ya>Believe51
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
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Old 11-14-2007, 01:29 PM   #2
chrisy
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Marie,
I'm sure you must feel like somehow you've become a BC magnet. But this is just fear, not fact. True, your mom's diagnosis does place you in a higher risk category but that just means you need to be more vigilant than the ordinary person. And since you are extraordinary, that should come naturally to you.

Other factors to consider is if there is MORE breast cancer in your family (blood relatives that is).

You should get regular mammos - annually now because of the higher risk - and discuss this with your doctor. You're already ahead of the game because you quite naturally have a higher sense of alertness about this.

You're right - take care of yourself, too! You've got a heck of a lot to deal with - but we'll keep our fingers crossed that your mom's just dealing with DCIS and can get that resolved easily. She sounds delightful - I read her post on the other forum. You two must be quite a pair!

Love
Crhis
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June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
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Old 11-14-2007, 02:46 PM   #3
Colleen007
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Hi Marie,

I have a twin sister who is also concerned about how often she should be screened. She just had a mammogram and her doctor is now sending her for a breast MRI since we are young and have dense breasts. Some information came out in May saying that this was a good idea for younger women, so it is something that insurance is more likely to cover.

You should at least be getting mammograms once a year since you are over 40, but should probably also see if you can get those supplemented with the MRIs.
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Sept-2006: PET/CT scan of mets to liver, spine and femurs - Stable. Activity in R breast & mediastinum (not seen in prior scans).
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June-2007: PET/CT Scan - activity in mediastinum. Back on Navelbine as of July-2007.
Scanned Quarterly since Oct-2007 - a few small scares, but otherwise stable due to continuing weekly Navelbine, Herceptin and Quarterly Zometa.
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Old 11-15-2007, 08:28 AM   #4
Joanne S
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Believe, Continue getting your mamms every year and be sure to perform monthly self-breast exams.

Note: DCIS (Ductal cancinoma in SITU) is considered pre-cancerous and not invasive.

Click: http://breastcancer-answers.com/brea..._precancer.asp
As more American women are screened for breast cancer with mammograms, doctors are seeing more of a condition called ductal carcinoma in situ (DCIS). Sometimes called a pre-cancer and sometimes Stage 0 breast cancer, DCIS is a non-invasive lesion that is confined within the lining of the milk ducts of the breast that is more benign than a cancerous tumor in that it does not have the ability to invade other parts of the body


My best wishes to you, your hubby and mom,
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Aug06...Dx Age 50, IDC Left Breast, 6+/16 lymph nodes, Stg 3, ER+/PR+/HER2+
Sep06-Jan07...Mediport. Chemo: AC x 4, T x 4
Dec06-Nov07...Herceptin
Feb12,2007...Surg MRM Left & SM Right, reconstruct w/expanders
Mar07-Jun07...Saline Exp
Jun07...Start Tamoxifen
Jun07-Aug07...Rad x 25
Jun07-Oct07...Persistent fevers-unknown origin
Jun07-Nov07...PT for Severe PMPS & Capsular Contracture
Nov07...Surg Capsulectomy, Gel Implants, PMPS pain gone instantly.
Feb08...NED 1st CANCERVERSARY!!!!!
Feb08...2 months post surgery Caps Cont again :(
Mar08...Stop Tamoxifen. Start Arimidex.
Apr08...Sudden high fever, Hosp ICU 10 days, staph infect, emerg surg, implants removed. Outpt IVantibiotics Daily x 6 weeks
Feb11...NED 5th CANCERVERSARY!!!!!
Feb12...NED 6th CANCERVERSARY!!!!!
Aug12...Spotting. Surg=D&C
Sep12...STAGE IV = RARE BC METS TO UTERUS ILC ER+/PR+/HER2-Negative) (Different BC than originally diagnosed = IDC ER+/PR+/HER2+).
Sep12...Stop Arimidex. Start Afinitor & Aromasin.
Jan13...MRI = no progression no reduction
Apr13...Progression. Stop Afinitor & Aromasin.
Apr13...Start Chemo: Taxol & Carboplatin.
Nov13...Scans & Pelvic 95+% Reduction. Nueropathy>Stop chemo start Fareston.
Jan14...PET scan = no progression stable.
May14...Pelvic > Bleeding & cramps. TMs up.
May14...PET scan = uterine progression :(
May14...Stop Fareston. Start Chemo: Xeloda.



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Old 11-15-2007, 08:29 AM   #5
Joanne S
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Believe, Continue getting your mamms every year and be sure to perform monthly self-breast exams.

Note: DCIS (Ductal cancinoma in SITU) is considered pre-cancerous and not invasive.

Click: http://breastcancer-answers.com/brea..._precancer.asp
As more American women are screened for breast cancer with mammograms, doctors are seeing more of a condition called ductal carcinoma in situ (DCIS). Sometimes called a pre-cancer and sometimes Stage 0 breast cancer, DCIS is a non-invasive lesion that is confined within the lining of the milk ducts of the breast that is more benign than a cancerous tumor in that it does not have the ability to invade other parts of the body


My best wishes to you, your hubby and mom,
__________________
Aug06...Dx Age 50, IDC Left Breast, 6+/16 lymph nodes, Stg 3, ER+/PR+/HER2+
Sep06-Jan07...Mediport. Chemo: AC x 4, T x 4
Dec06-Nov07...Herceptin
Feb12,2007...Surg MRM Left & SM Right, reconstruct w/expanders
Mar07-Jun07...Saline Exp
Jun07...Start Tamoxifen
Jun07-Aug07...Rad x 25
Jun07-Oct07...Persistent fevers-unknown origin
Jun07-Nov07...PT for Severe PMPS & Capsular Contracture
Nov07...Surg Capsulectomy, Gel Implants, PMPS pain gone instantly.
Feb08...NED 1st CANCERVERSARY!!!!!
Feb08...2 months post surgery Caps Cont again :(
Mar08...Stop Tamoxifen. Start Arimidex.
Apr08...Sudden high fever, Hosp ICU 10 days, staph infect, emerg surg, implants removed. Outpt IVantibiotics Daily x 6 weeks
Feb11...NED 5th CANCERVERSARY!!!!!
Feb12...NED 6th CANCERVERSARY!!!!!
Aug12...Spotting. Surg=D&C
Sep12...STAGE IV = RARE BC METS TO UTERUS ILC ER+/PR+/HER2-Negative) (Different BC than originally diagnosed = IDC ER+/PR+/HER2+).
Sep12...Stop Arimidex. Start Afinitor & Aromasin.
Jan13...MRI = no progression no reduction
Apr13...Progression. Stop Afinitor & Aromasin.
Apr13...Start Chemo: Taxol & Carboplatin.
Nov13...Scans & Pelvic 95+% Reduction. Nueropathy>Stop chemo start Fareston.
Jan14...PET scan = no progression stable.
May14...Pelvic > Bleeding & cramps. TMs up.
May14...PET scan = uterine progression :(
May14...Stop Fareston. Start Chemo: Xeloda.



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Old 11-15-2007, 10:14 AM   #6
mts
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Believe,
Mammos did not work for me (don't work for about 30% of women). Nor did the ultrasound. I have dense breasts and only the breast MRI was able to reveal my DCIS. I could feel the tumor, which is how we knew something was there. One does not have to have large breast to be dense either... If you have already had a mammo, look at the report and it will tell you if you have dense breasts! There will even (usually) be a disclaimer at the bottom that mammos don't work for a % of the population). Before mammos, I did not know this. You do.
My onc still recomends that I do get all three modalities (mammo, US and MRI) anyway since mammos pick-up microcalcifications and the MRI does not. Yes, it costs more, but peace of mind is priceless.
My onc also told me that despite bc did not run in my family - it was a good idea that my daughter begin screening 10 years before my age of diagnosis (I was 43). I am especially concerned for her because my mom, father-in-law, mom-in-law and now me, have had some kind of cancer... At this point, I will be OK, but I really fear for my little girl...

By the way, I happened to buy a cancer policy 1 week before diagnosis (I guess you can say I was "lucky"), which really saved a ton on co-pays and allowed me to air travel (with a companion), paid hotels, paid ME for chemo treatments, mileage etc to see other onc's and actually was the incentive for me to get the breast MRI. Whodathunk a cancer policy could save a life ?!
You may want to look into that... not to say that you will get bc, but boyohboy- that was a good thing !
Anyway, you are doing the right thing in getting informed. That is POWER!

Stay well!

maria
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