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Old 10-13-2007, 07:53 AM   #1
KRISS
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You know before all this started I was a pretty hard core drinker. Around 3 drinks a day, every day for years. I have no family history of BC and often wonder if I did this to myself. But since chemo and all I can hardly drink at all. For one the taste is not the same. I used to love red wine and now find it hard to go down. Every now and then I crave a glass of white and go for it but all other alcohol does not appeal to me( ok a margharita at our mexican place, but a small one not the big honker I used to knock back). Maybe this is Gods way of saving me from some other illness or problem. But moderation is the key.
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DX IDC AT 42 12/7/06
2.2CM STAGE I GRADE 2
NODE NEG
PARTIAL 12/18/06
HER2+ /ER+(75%) PR+(5%)
4 DD AC CHEMO STARTING 1/10/07
4 DD Taxol Starting 3/5/07
1year weekly Herceptin starting 3/5/07
finished 2/18/08
changed to every 3 weeks 4/23/07
completed 33 radiation treatments 7/6/07
TAH and BSO 9/24/07
start Femarra 10/8/07
Started Neritinib trial 12/14/09
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Old 10-13-2007, 07:57 AM   #2
KRISS
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Marlys, you crack me up! I love your spirit and zest for life!
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DX IDC AT 42 12/7/06
2.2CM STAGE I GRADE 2
NODE NEG
PARTIAL 12/18/06
HER2+ /ER+(75%) PR+(5%)
4 DD AC CHEMO STARTING 1/10/07
4 DD Taxol Starting 3/5/07
1year weekly Herceptin starting 3/5/07
finished 2/18/08
changed to every 3 weeks 4/23/07
completed 33 radiation treatments 7/6/07
TAH and BSO 9/24/07
start Femarra 10/8/07
Started Neritinib trial 12/14/09
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Old 10-13-2007, 09:41 AM   #3
Hopeful
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Wine is my hobby and a very big part of my life. I enjoy wine three to four times a week with wine friends. We pour a lot, but pour out a lot, too - we taste rather than drink, but the tastes add up. I would say it comes to to two three glasses on those occassions.

All of the doctors involved in my treatment are aware of this, and not one of them has suggested to me to cut down or cut out the wine. I have no intention of changing my consumption habits. I have added a folic acid supplement to my diet since dx.

Hopeful
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Old 10-13-2007, 10:32 AM   #4
Vic
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You Women are the Greatest!

Hi Wonderful Wise Women,

Wow, I am blown away by the great response to me posting and that's why I love each and every one of you! It's nice to know we can count on each other for sage advice and support and it's fun to see everyone's special personality shine through.

Thanks, Becky, for the pleasant reminder of our great time together and, yes, I do recall Mr. Onc. from Mississippi telling us about the 1,000 mg. of folic acid. So, I will continue to eat my greens and go to the health food store and buy some folic acid when I imbibe. I also take milk thistle on occasion after I've had some drinks, too, as I hear it's good for liver cleansing. This sounds like I live in a "bottle," and I really don't; I just want to watch what I'm doing internally while I'm enjoying life. (Becky, I look forward to talking with you online!).

So, here's a toast to each of you for keeping everything in perspective. Thanks again.

Love and hugs from Calif. and have a great weekend,

Vicki
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Old 10-13-2007, 10:42 AM   #5
Sheila
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Funny. my Mom has never drank in her life...she has breast cancer, and me, I like an occasional martini, margarita, bloody mary, glass of wine, and oh don't forget the Miller Lite...or the new Miller Freeze!....but all in moderation.... and I have breast cancer... I live life each day! Last night I tasted a Bacardi Mohito for the first time....didn't like it at all...taste like cough medicine!
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Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 10-13-2007, 12:49 PM   #6
Grace
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I love wine but stopped drinking in 2001 when my husband stopped because he had been diagnosed with diabetes. The day I was diagnosed with BC in 2006 I stopped at the local wine shop and purchased a bottle of champagne. Herceptin altered my taste buds so I didn't drink much in the last year, but now that I'm off herceptin I have my wine and enjoy it immensely. I don't enjoy the folic acid supplements as much, but I take those as well.
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Old 10-13-2007, 01:16 PM   #7
StephN
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Thumbs up Estrogen neg - no harm done

I am in with those who say a bit of alcohol in moderation adds to their quality of life. Can recall some gals here posting on another "alcohol thread" that they needed a glass or two of wine to help them sleep after their diagnosis.

During treatment my med onc was all for a glass of wine with dinner. He also recommended the folic acid, which I no longer use as a supplement by itself, but get in other ways. Again the taste buds were badly affected as well as stomach acid from the chemos. Managed to enjoy lighter wines such as Beaujolais and low alcohol German wines or from the Loire Valley.

This quote from the article in Vic's link was something I noticed in some other research:

Indeed, wine, beer and spirits can cause both the increase in breast cancer risk and the reduction in heart disease risk. In lab studies alcohol increases the amount of the female hormone estrogen, which could account for its effects on both heart disease and breast cancer.

Being estogen neg, my question was answered.
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Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 10-13-2007, 01:53 PM   #8
Patb
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Here's to folic acid with a little wine. I agree everything in moderation.
Chicken, beef, etc is full of hormones so I really watch that and I
found a new wine called New Age that is lower in alcohol but very
good on ice with lime. In fact I plan to have one tonight. Cheers!
patb
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Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
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