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Old 10-10-2007, 04:54 PM   #1
Mary Anne in TX
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Join Date: Jun 2006
Location: San Antonio, TX
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Andi, I loved reading your list of supplements! My husband takes a couple of handfuls (well, maybe that's a bit of a stretch) each morning after his oatmeal doctored with ginger, garlic, red pepper, etc (yes it is dreadful smelling)! He had a major heart attach 12 years ago and began a serious study to take care of himself! He has had heart tests every year and always comes out smelling like a rose! (Actually, he amazes them each time. They couldn't get his heart rate up any higher while running this past week) He is faithful to exercise, eating no trans fats, meat, etc...you know the routine....and taking those yucky supplements! I say yucky because he chews them up! Ugh! But he does it. He gets criticism from people who think he "needs" some meat (including his mother) and his just overdoing it! He's 65, works every day outside in the heat and loves his life. He had spent 25 - 30 as a marriage and family therapist (still slips now and then and says yes to helping folks) and so doing stuff with his hands in the heat is wonderful to him.
Anyway, I say all that to say that for 10 years he has continued to get even more healthy and be so happy. He has been an inspiration to me to add supplements (one at a time....I'm such a hesitant pill taker) as I watch him be so healthy!
I know we need to be careful what we do, but for a "doubting Thomas" like me, I need to be a bit more open minded. I'm getting there!
I know that he comes from a family that is basically "long livers", except for his dad who had 3 major heart attacks and died a bit early.
My family has kinda, "one of each" disease to run from. But I have to think that what he has done would do me good, so I'm working on adding a bit every few months to see how it goes.
I totally admire the "healthy eaters, tea drinkers, supplement takers, and all who have such great self discipline. I'm really trying to be one! Well, part one anyway!
Thanks to all who question and make us think!
Mary Anne
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MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 10-11-2007, 08:49 AM   #2
Andrea Barnett Budin
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Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
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Cool One By One, Step By Step...

Hi Mary Anne, That's how I add supplements -- one at a time. What a few wks to see how I feel. Better, worse, AOK, stomach issues. Then I go off for a few days. Then I retry. Then I either eliminate or incorporate. I was previously not a pill taker. Swallowing one was a studied swallowing ordeal, like a drama queen. Still I take one at a time.

My husband pops a batch in his mouth and swallows it down. He can take a pill without water. He also doesn't understand why I need a knife (to cut up my food) as he just shovels in large mouthfuls. Paul had a heart attack in '85. Father died age 47, big bro at age 53, middle bro quadruple bypass +++. But Paul is under control and robust and (I can't believe I'm saying this) is turning 70 next week! He looks fabulous. I met him when he was 28 and I was 21. Wow!

I am still thinking about thinking about exercising. Actually my goal is a 10 min walk for starters. But can't drum up the energy to get dressed, unless I have to. So this is an issue... Still smiling and enjoying Life! Andi

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'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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