| Keeping Your Mind Off of BC Fun things and posts that do not apply to BC |
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10-03-2007, 06:29 PM
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#1
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Since listening to Tiptoe's music I have decided I want her to come to Georgia for a visit. She'll find plenty of country music here and I know that my grandson Eli will just shower her with love and affection. Add my name to her itinerary.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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10-03-2007, 08:08 PM
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#2
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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I just finally got caught up on all Tiptoe's doin's! What a card she is, and if she comes to Oregon to visit Catherine, I would love to meet her, and you too Your Highness aka Catherine of Oregon 
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Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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10-03-2007, 08:49 PM
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#3
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Senior Member
Join Date: Dec 2006
Location: Oregon
Posts: 715
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Tiptoe can tip over two birds with one stone
Tiptoe can visit me and Lolly at the same time. Fly her into Portland, I will pick her up and drive south to Salem. Lolly can come up from Corvallis and we can meet in Salem, the State Capitol. I am sure we can get an audience with the Governor. Our state song here is Louie,Louie, So Tip will have to be able to do a little rock and roll shuffel along with the country slide. Lolly and I will work out all the details.
On the road again...here's to Tip and all her friends.
Catherine
Lolly....should we start shopping for journals and earrings now?
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Catherine
Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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10-03-2007, 10:17 PM
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#4
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Wh-a-a-a-t???
Catherine -
Your state song canNOT be "Louie, Louie." It is OUR state song!! Even though the Kingsmen were from Portland WE have a Senate resolution that changed Washington's state song!
So, maybe "Louie, Louie" is the UNofficial state song in Oregon, we can have Tiptoe decide on which side of the Columbia River she wants to dance to it. How about that?? We may have to meet in the middle of the bridge for an official ceremony. I can bring Paul Revere and the Raiders if you can round up The Kingsmen.
Anyone found a really teeny iPod for her yet?
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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