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Old 08-10-2007, 07:24 AM   #1
LAURIE
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Join Date: Dec 2006
Location: Massillon, Ohio
Posts: 247
Hope that you enjoy days of bloody nose free days. The Taxol I remember cannot be any fun. I had some bloody nose (more crusty bloody) on taxol. I gained 15 pounds while on chemo and lost it, when I got off the steroids. What I hated more was that my face broke out from the steroids. It was so bad that I did not even want to go out in the public. I hope that your body enjoys being off avastin, and I am sure the nurses would miss you if you were not there for treatment. I just recently switched to a triple dose of herceptin and I swear they are starting to forget my name already.
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Laurie
Diagonsed 8/10/06 (found own lump)at 35
Her 2 +++, er-/pr-
4 A/C 8-29-06 to 11-06
Lumpectomy, node dissection- 11/30/06
Pathology report stage IIIC
1 tumor 3 cm
10 of 15 nodes +
12 Taxol 12/18/06-03/06/07
Herceptin 12/18/06- 12/11/2007 done!!! yeah!!!
33 rads started 3/22/07, done!! yeah!! 5/07/07
Lymphedema diagonsed 2/1/07
BRCA1/BRCA2 negative
port out 1/10/08
pregnant after 6 yeas of trying- due mid feb.
Ryder David Kessel Hunter born feb.6th 2009

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Old 08-10-2007, 08:22 AM   #2
Mary Jo
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Location: Sheboygan, WI
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Oh Dear Sheila,

You vent away sweetheart. I can't offer anything to your post as I haven't been where you are, BUT, I can offer you a HUGE CYBER HUG and prayers for God's Peace and Love to HOLD YOU CLOSE.

Love you "sister"

Mary Jo
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 08-10-2007, 08:37 AM   #3
kareneg
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Join Date: Nov 2005
Location: Lincoln, Rhode Island
Posts: 371
Dear Sheila,

I know how you feel I have been on constint chemo for six years now. I forgot what a normal life is lol. I did gain weight with the decadron too but I am sure that will go away once you stop. I am sorry about the Avastin but use this time to get your strenght up. You are in my thoughts and prayers all the time.
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Love and Hope
Karen

IDC
DX 1998 STAGE I ER+/ PR+
AC CHEMO TILL FEB 1999
Tamxofin till 2001
2001 exstensive liver mets and mets to lungs
Started weekly taxol
Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex
2005 Navelbine herceptin had RFA Then back on taxol with herceptin
April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin
Feb 2007 started Doxil
August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas
October 2007 Had to stop Carboplatin due to sever allergic reaction
Jan 2008
Stopped Taxotere due to progression now on Gemzar and Herceptin
March 2008 Starting Carboplatin, Abraxane, and Herceptin.
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Old 08-10-2007, 10:19 AM   #4
chrisy
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Location: Central Coast, CA
Posts: 3,207
Sheila, sorry this has given you so many problems! I remember always having bloody nose, gums, etc. with Taxol, adding the Avastin to this was just too much I guess. But as you know, Taxol with Herceptin is pretty potent stuff and maybe the Avastin you have had so far will help anyway. And lucky you, now you get to have that dental work!

Don't even go there with the puffy! I'm at a lifetime puffymax and was seriously disappointed when I didn't lose some of it switching to Tykerb.

And puffy or not, you're still BEAUTIFUL! Go for the record dear - make them have to give you your own gold plated chair. Plus a crown since you are queen of the chemo center.

Take care, friend!
Chris
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June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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