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07-25-2007, 08:55 PM
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#1
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Senior Member
Join Date: May 2007
Location: Northern Michigan
Posts: 68
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Marie, Thank you for the update!
Glad hubby is almost done with the WBR! Then the Ty/X will kick some butt on those nasty mets! You keep the faith girl, and keep believing! Remember you & Ed are always in my prayers.
Bless you both,
Love,
Michelle
__________________
Sept. 2003- 5cm tumor in left breast Her2+ Er- Pr- grade 3,
Mastectomy & 11 nodes removed, all negative.
4 rounds A/C + 12 wky Taxol
25 rads
Dec 2006- recurrence Stage IV (diagnosed 3 days before Christmas!) Lymph nodes in chest, liver, 3 ribs
January 2007- 3 tri wkly rounds of Taxol/Herceptin
Response to lymph nodes in chest, but several more bone mets (skull, shoulders, more ribs, femur, several on spine), liver tumors still growing.
March 2007- 8 wkly rounds of Navelbine/Herceptin/ every 4th wk Zometa
Lymph nodes in chest look great, but more bone mets (of course!), Clavicles, hips, and sacrum (above tail bone) to add to the list. Liver mets still growing.
June 5- started Tykerb/Xeloda
Aug 14- Scans are showing great progress! Tumor shrinkage and bones are healing!
Nov 21 CT scan shows tumor growth in liver & bones next Doc appt on 11-27
Dire need of a lot of prayers and a miracle.
Stay at home mom, 5 yr old girl & 8 yr old boy.
Wife of loving husband
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07-26-2007, 12:56 AM
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#2
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Senior Member
Join Date: Mar 2007
Location: Norco, Southern California
Posts: 53
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I'm glad your husband is doing as well as he is during the treatments. Know that the confusion is the Decadron. I was a bit worried, but had a glimpse of clarity tonight ( have cut the dose in half). It seemed a shame to have to take a pill and go back under. I am keeping you both in my prayers.
Beckie
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Diagnosed 4/06, age 55
1.1 cm tumor
Pre-op x-ray caught lung nodules
6/06 - Stage 4, Her2+++, er/pr-
Mets to lungs(largest 3 cm), liver (largest 5.5 cm), and bones
Began taxotere, herceptin, & aredia
7/06 - radiation to lower spine & left shoulder for pain
8/06 - everything smaller
12/06 - stopped taxotere (toe infections)
5/07 - bone mets advancing
6/07 - add navelbine to herceptin & aredia
6/07 - discovered brain mets (3 in cerebellum, largest 2 cm.)
7/07 - WBR, change to Tykerb/Xeloda
9/07 - targeted radiation
10/08 - started navelbine/herceptin
2/09 - brain mets - targeted radiation
5/09 - mets in liver progressing, changed to Ixempra
7/09 - mets in liver still going, to the brain again, on gemzar now
9/09 - gemzar failed, started Doxil today
I know Who holds the future, and I know He holds my hand.
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07-26-2007, 03:18 AM
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#3
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Marie,
Thank you for keeping us updated on Ed's WBR. He is almost finished -- there is light at the end of the tunnel. I'm glad he seems to be tolerating the treatment pretty well. Soon he will start the T/X and I'm praying that it will be the magic bullet that will give you the miracle you so deserve.
Ed is so fortuante to have such a wonderful caregiver. Having a caregiver like you makes a world of difference. You and in my prayers
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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07-26-2007, 06:58 AM
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#4
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Senior Member
Join Date: Jul 2005
Location: Ft. Collins, Colorado
Posts: 546
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thank you for the update on Ed. I am also so glad to hear that the treatment is 'O.K' vs really sucky. And I'm excited to see what happens on T/X. Isn't it almost a miracle in itself what our bodies can take and how we can persevere? NOT that we don't ned the real miracle and with your energy I think it is possible. thank you for inspiring such hope and happiness through your posts. And, as was mentioned, celebrate the end of the radiation!
Best to both of you!
__________________
with love and gratitude,
joy
dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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07-26-2007, 08:32 AM
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#5
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Senior Member
Join Date: Nov 2004
Location: Streetsboro, Ohio
Posts: 365
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Believe51
Hi Marie,
I just completed WBR and Rads to my limbar spine last week. A Physical Therapist came here on Wed. to start me on therapy. I won't be starting new treatment for another 6 weeks. My onc. feels it would do more harm then good if I start before I'm ready. Hopefully your husbands doc. will do the same.
I'm down to 1/2 dose of decadron daily for 1 week and then 1/2 dose alternate days for 2 weeks then I'm done. Thank You God. I gained 17 lbs of fluid. I am also eating everything not nailed down. My feet were 4 times normal. I'm taking lasix, but then I have to pee all the time. Plus my legs feel like they are 150lb. each.
I continue to pray for you
Love, Lu ann
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