HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 06-07-2007, 07:56 PM   #1
theresaw
Senior Member
 
theresaw's Avatar
 
Join Date: Apr 2007
Location: Maple Grove, MN
Posts: 67
Wink

Has anyone tried this drug...it would be great, i have gone back to work and i sometimes feel like i am fading out..putting it nicely!!!
__________________
Diagnosis bc june,2006.
3months of taxol and herceptin, nupregin shots weekly. Now herceptin only, her2 positive. stage III. Left breast, mastectomy with reconstrutive surgery.
Herceptin until 10/06. Due to low echogram numbers had to stop Herceptin indefinetly.
theresaw is offline   Reply With Quote
Old 06-07-2007, 08:12 PM   #2
Hopeful
Senior Member
 
Join Date: Aug 2006
Posts: 3,380
It's not just chemotherapy

but also estrogen deprivation that can cause some cognitive function problems. I wonder if this drug would be useful there, also?

Hopeful
Hopeful is offline   Reply With Quote
Old 06-08-2007, 12:08 AM   #3
Lani
Senior Member
 
Join Date: Mar 2006
Posts: 4,778
We don't understand didly-squat about how the brain works

We still don't really know why we sleep (a truly basic question)

Until we know how it works, how are we going to understand how hormones and drugs influence it.

Until now, the best we could do is notice what SEEMS TO HAPPEN under the influence of drugs and what parts of the brain have increased blood flow under different circumstances or influences.
Lani is offline   Reply With Quote
Old 06-08-2007, 09:54 AM   #4
AlaskaAngel
Senior Member
 
AlaskaAngel's Avatar
 
Join Date: Sep 2005
Location: Alaska
Posts: 2,018
Talking Cause and effect

Forgive me, but... perhaps it is because I've never had any modafinil -- and I'm not PhD, only a somewhat impatient patient -- but my simple-minded guess is that chemo brain is at least in good part caused by the repeated lack of adequate oxygenation to the brain brought on by the toxic effects of chemotherapy on the production of blood cells carrying oxygen to the brain....

AlaskaAngel
AlaskaAngel is offline   Reply With Quote
Old 06-08-2007, 10:33 AM   #5
Donna
Senior Member
 
Donna's Avatar
 
Join Date: Jul 2006
Location: Shingle Springs, CA - near Sacramento
Posts: 295
I have experience with Modafinil

Hi Amazing Group,

I have taken Provigil, I was taking it when diagnosed. It is a non-stimulant used for Attention Deficit Disorder if you have a progressive doctor since that is an off-label use. It worked well for my ADD although the usual dose of one tab a day was way too much for me and I took 1/2 tab. If you are interested in trying it, email me and I can tell you where to get it without a prescription.

I researched it thoroughly a few years ago so I probably don't have the links anymore, but there are no significant side effects, it's extremely safe to use and has been used extensively for years in Europe with lots of studies done on it. I have no problem recommending it or saying it's okay to do it without a prescription, but you really should check with your oncologist first. They probably won't know what it is.

I personally have stopped taking it temporarily because I am trying to relax and "zone out" while my body heals from all of this. If there is a day I really need to be sharp, I take it. There are no adverse effects from taking it peridocally as opposed to every day. I consider it a miracle that happened in my life.

I am happy to answer questions about this medication, it has really helped me.

Have a great day!
Donna is offline   Reply With Quote
Old 07-12-2011, 11:31 PM   #6
Donna
Senior Member
 
Donna's Avatar
 
Join Date: Jul 2006
Location: Shingle Springs, CA - near Sacramento
Posts: 295
Re: "genius drug" helps alleviate cognitive problems caused by chemo, "Chemobrain"

Hi Jacey,

I'm sorry I don't have any more articles on Provigil but I am sure there's a slew of them out there to be googled!

Good luck! :-)

Donna
__________________
Donna in the Sierra Foothills of California

Diagnosed 6/7/06 invasive ductal carcinoma/ductal carcinoma in situ
Lumpectomy 6/21/06
Pathology: Er 99% Pr 10% Her2/neu 3+
DNA Index 1.0
S-Phase 3/High
Primary Tumor 2.4 cm Sentinel Node Tumor 2.1cm
A/C/T+ Herceptin + rads + Arimidex
stopped Herceptin after 7 mos. due to low MUGA
Surgery for thickened uterine tissue May 2008 - conclusion: side effect of Arimidex
Switched from Arimidex to Femara - joint/tendon problems significantly better!
2 year mark Pet scan and Echo shows all clear!
5 year mammogram with ultrasound shows no sign of cancer - yay!
11 years, 11 months new breast cancer - found lump
Mastectomy 4/30/2018
Pathology: Er99%, PR 28%, Her2 negative! (new type)
Faslodex
Donna is offline   Reply With Quote
Old 07-13-2011, 05:31 AM   #7
Jaimieh
Senior Member
 
Join Date: Mar 2009
Posts: 126
Re: "genius drug" helps alleviate cognitive problems caused by chemo, "Chemobrain"

I have taken provigil and while I love it, it doesn't love me. I have a sleep disorder that I had to do a ton of testing for and was perscribed provigil for it. It worked great with I was alert, awake but it gave me a headache that was horrible. I felt like I could concentrate, finish sentences, and the biggest thing was finish task but I couldn't handle the headache so I came off of it. Ritalin has the same good effects for me but I limit the amount because of the SE's of the drug .
__________________
Diag. 12/24/08-
IDC 1.3 er-/pr- HER2+
Grade 3 0/2 lymph nodes
no angiolympathic invasion

Bi-Lat. Mast. 1/8/09
Exchange scheduled for 6/17/09
Lost implants due to unknown reason :(

Hip Flap 1/26/2010 in NOLA :) LOVE EM'

TCH x6 (6 done and I am hoping to never do it again )

Well so much for never...
Local recurrence May 25,2014 is left over breast tissue.
April 2 , 2014 lumpectomy
April 28, 2014- June 9, 2014 start AC x 4
Taxol x12
Perjeta x 6
Herceptin x 18
And 33 rads just for fun. NOT!!!
Jaimieh is offline   Reply With Quote
Old 07-13-2011, 05:44 AM   #8
Jackie07
Senior Member
 
Jackie07's Avatar
 
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,809
Re: "genius drug" helps alleviate cognitive problems caused by chemo, "Chemobrain"

On my neuropsych report in 2009, the neuropsychologist mentioned 'Aricept' being a potential aide to improve my cognitive function.

The medicine has since become a new standard for Alzheimer's Disease http://www.aricept.com/

I've never been 'on' any medicine that interferes with my brain. Every prescription I used, I had to quit it within a couple of days because it simply messes up my brain/body too much.

Exercise is the best way to restore/improve our cognitive function, I've found.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe
Jackie07 is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 04:43 AM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter