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05-31-2007, 07:53 PM
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#1
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Senior Member
Join Date: Sep 2006
Location: Marengo, IL
Posts: 518
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Sorry you feel only regulars get responses. Did you know the site has encountered problems for almost two weeks now? They are trying very hard to get it up and runninig again.
There is so much knowledge here. Don't give up on us!
PS - I am not a "late" Herceptin. Finished A/C the beginning of Jan. and started Herceptin and Taxol the end of Jan.
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Donna
Crystal Lake, IL
Diagnosed 8/4/06 at age 54
Lumpectomy 8/30/06
Stage llA, grade 3, ER/PR-, Her2++
1.7 cm tumor, 1+ lymph node out of 9
Completed 4 A/C, & 4 Taxol with Herceptin
36 rads completed 5/16/07
Mammograms, 7/07 clear
fractured ribs in radiated area 10/07
Finished Herceptin 12/27/07
Mammogram,CT,tumor markers 1/08 - small lung nodules in radiated area, repeated tests 3/08 stable
Mammogram,CT ,tumor markers 6/08 stable
NED 2 years!!
3 years !!!
4years!!!!
4 years, 10 months and 8 day NED, calling it 5 years!!!
Official 5 years 8/30/2011
8/31/ 2012 - 6 years!!!!!!
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06-01-2007, 02:48 AM
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#2
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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I TOO started after the ASCO conference
and am doing fine. Sweetie, I don't pick and choose who to respond to, I just respond when I feel I have something valid to say so, please don't feel that way. As far as not seeing some of the others, honestly I know of MANY that have gotten on with their lives and stay away from the boards (I am hoping to get there, not TOTALLY, some day too). Take care and God bless.
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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06-01-2007, 03:14 AM
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#3
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Senior Member
Join Date: Dec 2005
Location: virginia
Posts: 99
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12 months "late"
Am also in the "late" herceptin group. Talked to onc after the conference and started 2/06. That was 12 months after being done with chemo. Am triple pos and wanted to fight with everything available. Finished the year of every 3 weeks in 2/07 and doing just GREAT ! Had concerns about a very painful hip and did the entire batch of scans and MRI of the area. Was deeeeelighted to be told that I had arthritis and bursitis in there. Got to celebrate last month....3 years out!!
Hugs, Bonnie
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06-01-2007, 11:34 AM
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#4
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Senior Member
Join Date: Sep 2005
Location: South Dakota.
Posts: 621
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26 months "late"
dberg, I had talked many times to my onc about herceptin after finishing my chemo. He wanted to wait until the Herceptin trial results were released in May 2005. As soon as the information came in, he agreed to let me try Herceptin.
Did you receive "late" herceptin? Hope you are doing well. I'm always interested in hearing from the "late" herceptin people, too, so it's nice to see it being discussed again.
__________________
Blessings and Peace,
Barbara
DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.
Accepting the gift of life, I give thanks for it and live it in fullness.
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06-01-2007, 04:45 PM
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#5
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Senior Member
Join Date: Oct 2005
Location: Payson, Arizona
Posts: 96
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Late Herceptin
Hi:
I started herceptin about six weeks after finishing my Taxol - that was in June 2004 and I am still NED. I was 2B, 1 positve node, vascular invasion, 8/9 on the Nottingham Scale with a grade three, 3.5 cm tumor. I actually had two years of Herceptin at my request.
Barb
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