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Old 05-14-2007, 10:13 PM   #1
lindaw
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Join Date: Sep 2005
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Dear Sandy

i agree with Sandy.it may be worth asking your Oncologist to help with this symptom. If there is something to be done makes us feel better and more in control.

love
linda
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Old 05-15-2007, 06:49 AM   #2
Sandy H
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Location: Norridgewock, Maine
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I will ask about another opinion tomorrow. The Doxil is such a slow working chemo that its hard to know if it is doing anything. Maybe, I should have tried something else-who knows. I have to wait another 3 weeks before I can change to another chemo. Time will tell. Thanks for all you replies and I wil keep you updated. hugs, Sandy
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Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!




I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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Old 05-15-2007, 09:58 AM   #3
StillHere
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Location: Greendale, WI just outside Milwaukee
Posts: 211
Sandy, I know I don't post much myself, but I do read the postings and I feel there is a definite change in your spirit after your trip to the ER for SOB. I just wanted to let you know that I feel just terrible that you are feeling so weak. I pray that this is temporary. Please, Please get a second opinion. No offense to ER doc's, but I would venture a guess that oncology is not their major area of expertise. Peace Karen
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04/05 Onset 49, DCIS, solid, Hist 2/3, Nucl 2/3, 7cm R Brst
04/05 E & P + HER2+++
05/05 Mediport
05/05 Cytoxan & Adriamycin every 3wk x4
08/05 Taxol every 2wk x 4, Herceptin every wk x1yr
10/05 Bilat Mast - my Choice
10/05 3/19 lymph nodes Pos, Stage IIIa
11/05 Rad x 37 Rx, R Brst & Axcilla
02/06 Herceptin stopped (L vent HF 40)
03/06 Started & Stoped Arimidex after 2 mos.-QOL side effects
05/06 Started Tamoxafin
06/06 Bilat Free Flap Reconstruction
12/06 Cardiomyopathy reversed-HF normal
01/07 Bilat Saline Implants
07/07 CA 27-29 steadily rising from 28 in 12/06 to 46 in 7/07
07/07 PET Scan NED, but inflamation at prev surg site.
09/07 Started Femara
10/07 CA 27-29 down to 39
06/08 CA 27-29 down to 32
09/08 Lg joint pain & QOL side effects from Femara, will live w/ to keep CA markers within normal range.
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Old 05-15-2007, 01:05 PM   #4
Sandy H
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I do have an appointment to see the oncology PA tomorrow so she will get an ear full. The E.R. doc said they talked to my oncologist and that is what he was told. We will see what happens tomorrow. I am sure it will be lots different! hugs, Sandy
__________________
Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!




I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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Old 05-15-2007, 02:57 PM   #5
Jean
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Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
Dear Sandy,

I know very little about about your cellulitis etc. I just wanted to let you
know that I am pulling real hard for you so please continue to be positive
as you are one of the major ladies on this site! Hopefully your onc will
be able to have a treatment to get your breathing back on track.

Sending you a MAJOR hug,
Jean
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Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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Old 05-15-2007, 03:44 PM   #6
Leslie's sister
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Posts: 223
Prayers
Sandy:

I have followed your emails as well since joining this site and feel like I know you. You are truly an inspiration as well as a source of comfort for many women with your uplifting words and hugs for everyone. Keep up the fight. I will pray that the symptoms subside and you knock out this nasty disease.

hugs to you as well,

Lisa
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Leslie's Sister (Lisa)
Diagnosed 5/17/06
Left breast Stage II
5 cm. Her2Neu+++, ER-, PR-
1 positive node out of six,
double mastectomy 6/9/06;
TCH started 7/12/06
last chemo 10/25/06
herceptin ended 6-11-07
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