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05-01-2007, 11:03 AM
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#1
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Senior Member
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
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Dear all,
I don't want to spoil the fun, here, but I'm living proof that this diet doesn't guarantee anything.
Because of my severe food allergies, I can only eat the products on this list. No wheat, but brown rice, no nuts, no tuna, but everything else on the list I eat in copious quantities. I got Breastcancer anyway. I can't eat beef or pork, no coffee, tea, wine, sugar, beer, etc. A really healthy diet.
So don't blame yourself when you have a recurrance after you didn't stick to the above diet. I certainly helps to eat healthy, but I don't think it's as simple as that. If it were, I'd be very, very safe now.
Love
Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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05-01-2007, 04:14 PM
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#2
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Senior Member
Join Date: Feb 2007
Location: Live in New York Monday through Thursday.Friday,Saturday,&Sunday Live in Cape May,New Jersey.
Posts: 36
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Thanks Rhonda for the info
__________________
DX October 18,2006
Changed doctor for second opion
Dx November 2,2006
three tumors left breast,lymph nodes involed don't
know how many.Kidney failure postponed my surgery
which gave the doctors the opportunity to run test.
FishTest showed that I have her2 positive, mets to liver and bones.
Dx December 14,2006
one dose carboplatin
now once a week herceptin,taxol
once a month zometa
February 5,2007 pet scan showed everything good except bones
5-16-07 muga scan
5-17-07 pet scan
Everythig was clear taken off of zometa,chemo
herceptin every three weeks
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05-01-2007, 06:16 PM
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#3
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Hi Jacqueline,
I appreciate your post and understand how frustrating it must be to have done "all the right things" and still get breast cancer. It can happen - does happen - and none of us are to blame for the disease that we got. That being said, I think it's important to do everything we can to keep our bodies healthy. I don't think anyone here believes that a recurrence isn't possible BUT when studies do show benefits of doing certain things than it's definitely something we should be doing. It just makes sense to treat our bodies the way they were meant to be treated. It could only make our bodies healthier and stronger and that is always a good thing. No matter what. Along with that - I think living life with a positive, encouraging spirit to all we meet is also beneficial. We were put on this earth for a reason and encouraging and loving one another makes this life a special palce to be. I love life. Even having had breast cancer and all that went with that. It's taught me much and made me a better person.
Love your "sister" on this journey.
Mary Jo
"For we know that in all things God works for the good of those who love Him and were called according to His purpose" Romans 8:28
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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05-01-2007, 07:17 PM
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#4
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Senior Member
Join Date: Sep 2006
Location: Bartonville, IL
Posts: 70
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I was told at a breast cancer meeting that you shouldn't cook with Olive Oil. When it becomes hot it is carcinogen. The gal was a nutritionist from Mt. Zion Cancer Center. (Rachel Ray cooks with it all the time) Anyone else ever heard of this.
__________________
Karla
8/05 NORMAL MAMMO
11/05 DX AFTER FINDING LUMP AGE 47
STAGE 1 HIGH RISK
1.1 CM/NODE NEG
ER-/PR- HER 2 +++ GRADE 3
12/05 PARTIAL MASTECTOMY
1/06 CHEMO AC DD X 6
5/06 RADS X 30
10/06 STARTED HERCEPTIN AFTER 3RD OPINION
3/07 GENETIC TESTING-GENE VARIANT FOR BRCA 1 AND 2
3/07 STOPPED HERCPTIN DUE TO LOW EF
BSO 8/08 (P53 SIGNATURE--PRECANCEROUS CELLS)
11/08---IN A STUDY/MRI EVERY 6 MONTHS/MAMMO EVERY YEAR
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06-08-2007, 06:42 PM
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#5
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Bump up. Take care and God bless.
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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07-13-2007, 10:21 AM
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#6
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Bump up***also Diana Dyer has a new blog with GREAT info***
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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07-13-2007, 03:10 PM
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#7
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Senior Member
Join Date: Oct 2005
Posts: 476
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How confusing! Yesterday, we had a report from Japanese research people concluding that soy derivatives are safe. Now the MD Anderson people say avoid soy. Olive oil has been tauted as the good oil. Here, we just learned on heating it is a carcinogen. I have been a fatty acid chemist and I could not understand the heated olive oil can become carcinogen. It is not the chemistry I have learned.
__________________
Ann
Stage 1 dx Sept 05
ER/PR positive HER2 +++ Grade 3
Invasive carcinoma 1 cm, no node involvement
Mastec Sept 05
Annual scans all negative, Oct 06
Postmenopause. Arimidex only since Sept 06, bone or muscle ache after 3 month
Off Arimidex, change to Femara 1/12-07, ache stopped
Sept 07 all tests negative, pass 2 year mark
Feb 08 continue doing well.
Sep 09 four year NED still on Femara.
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07-13-2007, 05:29 PM
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#8
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Senior Member
Join Date: Oct 2005
Posts: 3,519
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HI CL - I have learned over the years that heating almost anything with a high heat and or direct heat can cause carcinogens that shouldn't be ingested. Acrylamide to be specific. I have learned that even burned toast is a bad idea. All meats and fish if heated with a direct high heat cause carcinogens, so grilling or blackening is not healthy...
http://www.cancer.gov/cancertopics/f...ylamideinfoods
From what I have learned from dietary folks is that no oil should be heated to smoking, even if the recipe tells you to. EVOO is too fragile to use as a primary cooking oil. Use other oil (canola perhaps) for higher heat sauteing and cooking. I use some olive oil for cooking, but I also take 3 tbl spoons of it a day, as it is suspected to be active against Her2neu, and it can't possibly hurt me!
http://www.sciencenews.org/articles/20050219/food.asp
and
<li class="body">Health Canada scientists say they have found that adding rosemary can reduce acrylamide levels in both home fries and commercial potato chips by about 25 per cent, while other anti-oxidants had little to no impact. The research, published in the Journal of the American Chemical Society, also found that potato slices that were fried with olive oil had 50 per cent higher acrylamide levels than those fried with corn oil, although there appears to be little difference between frying in cheap processed olive oil and more expensive virgin olive oil, in terms of acrylamide levels. <li class="body"> "Acrylamide Advice: Don’t Burn Your Toast" includes audio of an expert explaining how the risk of acrylamide can be reduced by using different cooking methods.
from http://www.cbc.ca/consumers/market/f...de/can_do.html
__________________
Brenda
NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)
Nov'03~ dX stage 2B
Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg
Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~ Started Tykerb/Xeloda, no WBR for now
June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~ PET/CT & MRI show NED
Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.
"I would rather be anecdotally alive than statistically dead."
Last edited by hutchibk; 07-13-2007 at 05:43 PM..
Reason: add info
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05-09-2008, 10:59 AM
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#9
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Senior Member
Join Date: May 2006
Posts: 3,142
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breast cancer diet
Hi,
Thanks. I am always trying to improve my diet. I appreciate your contribution very much.
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11-18-2008, 09:49 AM
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#10
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Senior Member
Join Date: Nov 2005
Posts: 943
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Thanks Rhonda,
...for reminding us of the cancer fighting foods/supplements and alternatives and additives to drug therapy to fight the robust her2 pathway.
__________________
Robin
2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
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12-31-2008, 04:48 AM
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#11
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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A New Years bump...
for a healthier 2009. Take care and God bless.
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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05-15-2009, 10:29 AM
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#12
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Senior Member
Join Date: Feb 2009
Posts: 1,526
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My understanding about cooking with olive oil is that ,as with any oil, it only becomes carcinogenic when heated to high temperatures and starts to burn which changes it's molecular composition.
Ellie
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07-13-2007, 11:34 AM
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#13
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Senior Member
Join Date: Apr 2007
Location: Shaker Heights, Ohio
Posts: 86
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Karla,
I have been wondering about this myself!
What I try to do: add the olive oil at the end to the steamed or cooked food.
Odette
__________________
May 18, 2006 Age 52,
Diagnosed infiltrating ductal carcinoma
er/pr- HER2 + 3.9 by FISH
June-August 2006 AC chemo
August-October 2006 Taxotere + Herceptin
November 18, 2006 Mastectomy 16 involved lymph nodes
Jan 2, 2007 start radiation
Stage IV, Jan 12, 2007 recurrence in cervical lymph nodes while on Herceptin, stopped Herceptin
Rad oncologist extended the radiation field, good response
Started Tykerb Xeloda on beginning of May 2007
Progression to lungs and conglomerate lymphadenopathy July 2007
Undecided about next treatment
'One does not get to choose one's adventures'
I'm experimenting with my diet, using green tea, flax seed curry and olive oil
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