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Old 04-09-2007, 03:52 PM   #1
Mary Jo
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Location: Sheboygan, WI
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Welcome aboard Leslie!

I ditto Rhonda's comments. It is a wonderful site and it is a site full of love and care from all who come on board. I've never been to a "regular" support group so I don't know what they are like. However, this "support group" is a wonderful place to gain knowledge, give support and encouragement and to receive support and encouragement and I am so glad you found us.

God's Blessings of Peace I send to you,

Mary Jo
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 04-09-2007, 04:36 PM   #2
chrisy
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Location: Central Coast, CA
Posts: 3,207
Thumbs up TCH is a good one!

Hi Leslie,
Sorry to have you join this little family, but it is indeed a wonderful one.

I had T/C/H for extensive liver mets in 2004 (diag at 50) and it kicked cancer butt. I'll be praying the same happens for you. It sounds like you have a great oncologist - one who will get out the big guns for you and most importantly, give you a dose of hope.

Try to focus forward, the best doctors are beginning to see this as a disease which can be managed for a good amount of time, almost as a chronic disease. In the meantime, there are lots of researchers busy working on the answers we all hope will be found soon.

We're all here for you.

Hang in there!
Chris
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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Old 04-14-2007, 02:22 AM   #3
fauxgypsy
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Join Date: Apr 2007
Location: Mississippi
Posts: 600
Red face Thanks for all the replies

Sorry I haven't been back sooner. It was a rough week and now I am having trouble with my port. I think it willl be resolved next week. Can't sleep tonight, the decadron just won't let go. Any suggestions for that or do I just use Friday night to catch up on the net? I have several great emails form people on the board and my spirits are high even with the way I felt after last week's chemo and this mess with my port.
By the way, I may not catch all my typos. I raised and released a baby raccoon last year and there was one memorable day that I walked in to my my little technocoon shucking keys off my laptop like it was an ear of corn. He has moved on to the wild but my computer has never fully recovered. So please excuse my occasional lack of caps as this is one of the keys that still malfunctions.
I am excited to hear about all the women who are doing so well with the stage 4 diagnosis. In a couple of weeks I am having more tests done and hopefully they will clear some confusion about my liver. They have not done a biopsy and the Pet scan results were not completely clear. I hope they are wrong but there was activity in the scan.
Leslie
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