Want to talk with ER/PR neg and HER2 pos

12-29-2006, 01:26 PM

Thanks for your reply.....yes I think the cortico-steroids that you take pre and post Taxotere for the three days can cause a lot of the problems..as I had this spiking feeling in all orifaces and with joint pain felt Id go crazy if it lasted...but the spiking feeling disappeared after three days..the GP (local doctor) felt it may have been the steroids....I am hopeful it will become less...the consolation is that you hope you are being healed...dont you?..and you have obviously come along way and have similar treatment.
How have you found the Herceptin?...most people say its very tolerable after the chemo.
all the very best Margi

tousled1 · 12-29-2006, 07:18 PM

Margi,

In comparison to the other chemos that I had, I must say that Herceptin is a walk in the park. My counts (red) still drop and I still get Procrit shots about every other treatment. There is a thread here about sides effects of Herceptin that you might find interesting. It's entitled "Herceptin side effects real or perceived."

Carol Carlson · 12-30-2006, 03:17 PM

they call it micromets, if it has gone from breast tissue to lymph node involvement.... at least that is my understanding.
Carol

Carol Carlson · 12-30-2006, 03:29 PM

P.S. my understanding in terms of er/pr neg, that er/pr-postive is probably preferred since the use of Tamoxifen and other drugs are available since the tumor or tumors were estrogen fed... and those drugs block the hormones..Though now with the availability of herceptin for those of us who are er/pr neg and her2 pos. it may change the playing field and outcomes..
Carol
P.S. correct me if I'm wrong....

12-30-2006, 05:04 PM

Hi Kate- can you please help me find the thread to the article on Herceptin side effects..real or perceived?...have gone though a few pages to find it..with no luck..is there a page number it is on? Thanks!! Margi

Becky · 12-30-2006, 05:08 PM

http://www.her2support.org/vbulletin...ad.php?t=23696

Here is the thread on Herceptin side effects - real or perceived.

01-01-2007, 08:31 PM

thanks for the info on the site....great idea to gain this insight for all parties

I think I had better wait until I have completed my four cycles of Taxotere before I talk about any symptoms of Herceptin as think most of my symptoms relate to Taxotere and as have only had one infusion of each of them I will not know until am only on Herceptin.....

I am told by all the nurses and oncologist that Herceptin is very tolerable and many symptoms may relate to the lasting symtoms of chemo..for the first few weeks/months anyway...Is everyone else told the same??