Herceptin Joint Pain - Does it last the whole year??

Cammie · 12-08-2006, 06:40 AM

I was on Herceptin for a total of 1 year. 3 months with Taxol. My last treatment was March 2006. I am still experiencing painful feet and joints. Some days it takes a lot of effort to walk or work out. Once I am up and moving, they get a little better until I sit down again. I am having a hard time finding shoes that are comfortable. I don't know if something else is going on, I will be seeing my onocologist next week. I was diagnosed with Stage III unusually aggressive breast cancer in Oct. 2004. I have had left mastectomy with reconstruction. Now if I can get my feet and legs to stop hurting, I certainly would feel better.

I feel better knowing that I am not the only one with feet pain.

I enjoy reading everyone stories.

Cammie

tousled1 · 12-08-2006, 12:27 PM

Hello everyone,

Well, I had my Herceptin treatment today and they reconstituted the Herceptin with Saline water per my request. So far so good. Guess I'll know in a day or two whether it makes a difference in the bone/muscle/joint pain. If it does then I will have my remaining Herceptin treatments reconstituted with saline water. Will keep you posted.

gin-tx · 12-08-2006, 05:33 PM

Dear Cammie,

I have not been on Taxol so don't know what the side effects can be, maybe with it combined with Herceptin it makes for more body aches. I don't know. I have noticed I have pain in my left foot on the top of foot and where the instep is (I think that's the top of foot). I thought it's just me, I have arthritis in various parts of body, lower back, knees, and maybe even feet, I don't know. Don't want to go to a podiatrist, they like to operate. And I'm not doing that. Had foot surgery once, it was awful, never again as the pain was so bad. I may ask my onc when I see him next week if this pain could be from Herceptin. I find my biggest problem is being unable to sleep the night after I have treatment. I'm wide eyed all night long. Maybe because I sat all day and did not exert myself. Who knows. I have sleeping pills, anti depressants, pain meds (2 kinds) and am hesitant to mix too much as I take about 10 RX on a daily basis. Keep me informed what your dr has to say. I'm interested.

hugs,

ginger