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11-24-2006, 09:53 AM
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#1
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Senior Member
Join Date: Sep 2001
Location: California's Gold Country
Posts: 404
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Sherry,
At almost ten years out I still have a few lumps and tenderness where I had my mastectomy. My ribs sometimes still feel a little sore under my scar area. I haven't had any scans for about 3 years, except brain MRI, because I don't want any more exposure to radiation. It is really hard to not worry about these things and trying to keep the right balance of staying vigilant, yet not letting it consume us. A good trick if you can do it, huh?! Kim
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Diag. Feb 1997 4.5cm IDC <10%ER+, PR-. 5 out of 36 nodes +. Mastectomy followed by 3 rounds Adriamycin/Cytoxin.
5/1997 Hi Dose Chemo w/ Stem cell rescue. Spent 4 weeks in isolation ward. Then 6 weeks radiation.
9/2001 widespread mets to liver. 8 mos Taxotere/Herceptin brought me almost to NED. Stop Taxotere & add Femara .
11/2002 liver resection to remove spot that turned out to be necrosis. Officially NED!
7/2003 Tumor markers rising add Xeloda Disastrous reaction, 8 days hospital, but tumor markers came back to normal!
June -Dec 2004 UW Vaccine Trial.
7/2005 MRI single 11mm brain met
8/2005 Gamma Knife.
Brain MRI @3 months NED!
2006-2011 brain/body still NED
8/04/11 Taking Herceptin break, will monitor with tumor markers.
6/20/12 Tumor markers begin to rise. CA15-3 is 31.3 and Her2 Serum is at 17.1 Decide to repeat in one month.
7/23/12 CA15-3 now 49.3
Her2 Serum 26.8
8/6/12 Back on Herceptin
CA15-3 now 76
Her2 Serum now 49
11/7/12 Add weekly Taxotere for 4 cycles
2/2013 Stopped Taxotere added Perjeta. MRI shows approx. 50% reduction liver mets. CA15-3 still elevated @ 55. Will continue on just Herceptin & Perjeta.
November 2014 Continuing on Herceptin, Perjeta, and
Femara indefinitely. Guess I'm NED again, but watching those tumor markers carefully!
Dec. 2015 PET scan reveals mass in perirectal area of abdomen.biopsy confirms. Still Her2+, but no longer ER+. Bye bye Femara
Jan 2016 Begin Kadcyla
March 2016 PET scan shows tumor now barely visible, still NED everywhere else.
2016/2017 continue Kadcyla
November 2017 brain MRI reveals small focus of T2 hyperintensity with possible 4mm enhancing nodule. Short term follow up MRI suggested. Stay tuned...
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11-24-2006, 05:20 PM
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#2
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Sherry
I get pain around my lumpectomy incision and underarm scar. I hate that because you suspect something is wrong when it is just the way the nerves grew back (not quite right). I spoke with my surgeon about it more than once and it is completely normal (although I don't know how tenderness is normal 2+ years out).
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Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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11-24-2006, 08:14 PM
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#3
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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I was happy to see this thread as I was wondering if mastectomy surgery can have lingering aches and pain around rib area etc. I had a right breast mastectomy (where tumor was) and that side feels fine. Perfectly really. A bit tender on the side where radiation really zapped my skin but other than that nothing. I had a left breast prophylatic (spelling?) mastectomy in March of 2006 and have sporadic aches/pain under that rib cage area - behind that area on back and often wondered if it was because of the the surgery. I'm thinking it is. I've had my onc. check that side each time and she says "You're fine." I do feel fine HOWEVER I hate that because it scares me from time to time. Then again, lot of things scare us from time to time now and I have a feeling it always will.
Life goes on I guess. Embrace it and make it count.
Mary Jo
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"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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11-25-2006, 01:34 PM
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#4
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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I've had intermittent pain and tenderness that both the onc and surgeon assure me is okay. It really gets worse when I've carried my seven month old granddaughter or do push-ups when I work out. I try not to do them very often. I had bronchitis a few weeks ago and the coughing really killed me. I was worried about cracking a rib since they say after radiation it's possible.
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11-26-2006, 06:39 AM
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#5
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Senior Member
Join Date: Jun 2006
Location: Central North Carolina, USA
Posts: 112
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I also have pain around my lumpectomy site. I will be one year on December 7<SUP>th</SUP> and I thought it was weird that I still have so much scar tissue and tenderness. Hard to tell if you have new lumps as it still feels so lumpy. The scar tissue is getting smaller. I had a 9 month Mamo in September and it was indeed just scar tissue. This thread has made me feel better.
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DX 11/14/05, Stage 1C, Her2+ 3.4, ER+, PR+, K167 23%, Node Negative, MX0, Grade 3, 1.8CM, Lumpectomy 12/7/05; 6 rounds dense dose Taxol bi-weekly, 35 radiation, 1 year Herceptin, & Tamoxifen ongoing.
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11-26-2006, 07:24 PM
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#6
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Following a staph infection almost one year after left mast with nodes disection, I have considerable scar tissue and am very "lumpy" from center of chest all the way under my arm. One area was so pronounced, my surgeon did a FNA to make sure nothing was there. I often have rib pain and quite a bit of pulling and burning from the scar tissue. Maybe if I get to have reconstruction, this problem can be addressed.
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LIVE SEX WEBSHOWS
Last edited by sassy; 08-22-2011 at 08:58 AM..
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11-27-2006, 03:21 PM
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#7
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Itchy too!!
I also have some intermittent pain in my lumpectomy site and under my arm where the nodes were removed.
My surgery was 18 months ago and finished rads last April.
I sometimes get itchy there too and was told this was normal after rads but it is worrying.
Seems it's more common than I thought.
Tricia
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