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09-28-2006, 03:03 PM
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#1
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Senior Member
Join Date: Nov 2005
Posts: 943
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DES Daughters
I recently read an article in MAMM that stated in Aug of 2006, a study was posted that cited that DES daughters are at twice the risk of the general population for bc. I think if this be true, the prenatal environment is a very important determinate of bc risk. SEE below link from MAMM: http://www.mamm.com/late_breaking_news.phpfrom
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Robin
2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
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09-28-2006, 05:08 PM
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#2
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Senior Member
Join Date: Nov 2004
Location: .
Posts: 87
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What are DES daughters exactly.
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09-28-2006, 05:36 PM
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#3
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Webmaster
Join Date: Feb 2005
Location: Home of the "Flying Tomato"
Carlsbad, CA
Posts: 2,036
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Correct Link
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A Proud webmaster to the internet's most informed, educated, COMPASSIONATE and caring group of breast cancer survivors.
Illegitimi non carborundum
My Album
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09-28-2006, 09:35 PM
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#4
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Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
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Hi Robin,
I am a DES daughter. My mother was given DES to prevent miscarriage, because it took her about 7 years to get pregnant with me. I have had almost every DES symptom there is.
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09-28-2006, 09:52 PM
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#5
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Senior Member
Join Date: Dec 2005
Location: Walnut Creek, CA
Posts: 438
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My mom took DES when she was pregnant with my sister. My mom and I have both had bc, but my sister hasn't, yet. It also runs on my mom's side of the family... I was the 12th person to get bc.
Karen
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09-30-2006, 04:16 PM
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#6
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Senior Member
Join Date: Nov 2005
Posts: 943
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Hi Ladies, at least you know of your family's DES history and can watch out for bc. Think of all the women out at increased risk who don't even know their other took DES. Very sad.
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Robin
2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
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10-01-2006, 07:26 PM
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#7
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Senior Member
Join Date: Sep 2006
Location: Nebraska
Posts: 154
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Robin,
I was a DES daughter. I had 3 miscarriages and i thought it might be due to that.
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10-04-2006, 12:48 PM
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#8
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Senior Member
Join Date: Jun 2006
Location: Central North Carolina, USA
Posts: 112
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I am a DES daughter and my sister who died of breast cancer is a DES daughter. I also have three pregnancies and only one was successful. The first, I lost the baby at 7 1/2 months. The second was my son, he is 21 now and my third pregnancy, i lost the baby at 4 1/2 months. No known cause of death both times.
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DX 11/14/05, Stage 1C, Her2+ 3.4, ER+, PR+, K167 23%, Node Negative, MX0, Grade 3, 1.8CM, Lumpectomy 12/7/05; 6 rounds dense dose Taxol bi-weekly, 35 radiation, 1 year Herceptin, & Tamoxifen ongoing.
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10-04-2006, 03:37 PM
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#9
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Senior Member
Join Date: Jul 2005
Location: Ontario, Canada
Posts: 722
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Linda was a DES daughter. Her mom had a difficult pregnancy with her older brother so she was given DES to prevent miscarrage.
Al
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Primary care-giver to and advocate for Linda, who passed away April 27, 2006.
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10-04-2006, 05:02 PM
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#10
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Senior Member
Join Date: Mar 2006
Location: IOWA
Posts: 243
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I, too, am a DES daughter. My mother had a miscarrage and was given it during her subsequent pregnancy (me) to prevent another. I did not have any troubles with my own pregnancies.
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Andi
-- ------------------------
Stage IIIC, 17 of 20 Nodes +, E+, Her2+++
Diagnosed 6/30/05
Lumpectomy 7/13/05
Dose Dense A/C x 4
Weekly Taxol + Herceptin x 12
Remainder of year Herceptin Every 3 weeks (completes 9/13/06)
Radiation completed 2/28/06
Currently on Tamoxifen
Dec 06 - Pleural effusion treated with pleurodesis
Now er/pr-, her2++
1/07 started weekly Navelbine plus Herceptin
Discontinued Tamoxifen
4/27/07 CTshowed progression
5/01/07 Began Tykerb/Xeloda + Zometa
5/22/07 Stopped treatment due to great progression
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10-07-2006, 11:07 AM
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#11
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Senior Member
Join Date: Nov 2005
Posts: 943
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Ug, what really sucks about 20th century medicine, is the many negative side effects from supposedly miracle, life saving drugs like DES. Instead of saving lives, DES, ruined lives. Outraageously, look where DES had its beginnings, at the prestious Harvard School of Medincine. It makes me cringe, you know, to think it took lay people to make the association between DES and teenaged vaginal deformities, and well, that's when they finally banned DES.
Anyway, I wonder if I was exposed to DES, being the baby after my mother had a miscarrage. I'll never know since I am sure my parents would never tell me even if she did take it. Nobody wants to think they caused your cancer, you know.
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Robin
2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
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