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03-07-2010, 09:16 AM
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#1
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Senior Member
Join Date: Sep 2008
Location: Eugene, Oregon
Posts: 347
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I'm back home. All's well.
Hey lovelies!
I'm back from a whole month in Uruguay for teacher certification for DanceAbility International and it was so great! Now I work on setting up lots of workshops and rehearsals/performances for dance improvisation for all people, regardless of their physical/mental abilities. It's work I really believe in and love to share with the world.
I have checkups next week but all seems to be quite well...just can't shake the extra weight!! Now that I'm back to my health food stores (no such thing in Montevideo) hopefully I can find a diet that works. Still waiting for my treatment center to get approved to be involved in the Neratinib trial I was approved for...until then I'm just eating well, dancing and loving life. Being back home with my family is great. Got to celebrate my 33rd birthday on 3/3. Blessed to be here.
Glad to be back in touch with you all too.
Love, Celeste
__________________
"Dancers Against Cancer" in the Eugene, OR Komen Race for the Cure 2010
Diagnosed 8/7/08 with stage 3 invasive ductal carcinoma, micropapillary pattern, Her2 3+, ER+,PR-, grade II, positive lymph nodes.
Received 6doses of Taxotere, Carboplatin with Herceptin continuing for a year...DONE.
1/28/09 Left Modified Radical Mastectomy, Right Simple Mastectomy.
Surgery pathology: No invasive carcinoma present and 17 lymph nodes removed all negative! Only small amount of carcinoma in situ in left breast.
March/April '09, Radiation to left chest wall.
Currently involved in Neratinib clinical trial.
"Well being I won
and wisdom too,
I grew and joyed in my growth;
from a word to a word
I was led to a word
from a deed to another deed." (Odin)
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03-07-2010, 12:16 PM
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#2
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Re: I'm back home. All's well.
You don't know how happy I am for you (wearing big grin). This was your dream and you thought it was going to be impossible after your cancer diagnosis and treatment.
*Nothing* is impossible and the brave souls here are proving this day after day.
I like that birthday card that says something like: "Dance as though no one is watching."
So keep letting go and following those nice dreams.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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03-07-2010, 04:51 PM
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#3
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: I'm back home. All's well.
a belated Happy Birthday to you. I am glad you had such a nice and fruitful trip. I am glad you are well enough to travel too !! That is a blessing.
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03-08-2010, 11:58 AM
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#4
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Senior Member
Join Date: Sep 2008
Location: Eugene, Oregon
Posts: 347
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Re: I'm back home. All's well.
Thanks for the kudos, ladies. I think I've always been the type to see challenges as a reason to prove I can overcome them! I'm a persistent little troublemaker. I never thought this was impossible. I am very pleased with the fact that other people believed in it too and helped me accomplish it.
Traveling went quite well, really. It was hard to be away from my very excellent Oregon health food stores, though. Uruguay seems to live on a lot of meat, cheese and sugar! I brought a compression sleeve with me for the countless hours of flying, but never had to use it. Blessings are overflowing. I try to share them with all of you as much as possible.
xo
__________________
"Dancers Against Cancer" in the Eugene, OR Komen Race for the Cure 2010
Diagnosed 8/7/08 with stage 3 invasive ductal carcinoma, micropapillary pattern, Her2 3+, ER+,PR-, grade II, positive lymph nodes.
Received 6doses of Taxotere, Carboplatin with Herceptin continuing for a year...DONE.
1/28/09 Left Modified Radical Mastectomy, Right Simple Mastectomy.
Surgery pathology: No invasive carcinoma present and 17 lymph nodes removed all negative! Only small amount of carcinoma in situ in left breast.
March/April '09, Radiation to left chest wall.
Currently involved in Neratinib clinical trial.
"Well being I won
and wisdom too,
I grew and joyed in my growth;
from a word to a word
I was led to a word
from a deed to another deed." (Odin)
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03-08-2010, 12:11 PM
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#5
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Re: I'm back home. All's well.
Celeste,
I love hearing about new adventures. You and my daughter are the same age. You go girl.
Amelia
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