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11-14-2008, 02:39 AM
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#1
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Andrea B. Budin celebrates...
Hi Andrea, I couldn't help but noticed today is your 10th year anniversary since you started Herceptin. Or as you say, "Vitamin H". Your a real pioneer & a major inspiration on this board.
Your such a wonderful her2 sister to have on this board and I'm so glad that you stick around. You give so many of your her2 sisters real hope, and the support you give is so appreciated. Your really someone very special...but you must know that...right. 
Celebrate today and do something special for yourself...you so deserve it.
Big hugs coming your way.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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11-14-2008, 04:46 AM
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#2
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Senior Member
Join Date: Dec 2007
Location: Avilla, Indiana
Posts: 261
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Andrea, You are an inspiration and a wealth of information. I always look forward to your messages and posts.
__________________
-Dana-
]
Diagnosed - Nov. 2, 2007 at 45
Lumpectomy - Nov. 13, 2007
Tumor 1.2 cm
Stage 1 Grade 3
ER/PR - Her2 +++ (3.8)
Taxotere/Carboplatin/Herceptin- 6 rounds
Neulasta
Radiation 33 treatments - will be done 6/6/08
Herceptin through 12/08
12/07 MUGA 61%, 4/08 MUGA 60%, 7/08 MUGA 64%
three wonderful daughters, a terrific husband,
Life is Good
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11-14-2008, 05:28 AM
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#3
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Yes, Andi is our special sister...
but I believe that Andi has stopped taking her Vit. H
and will be reporting in to let us know how well she is doing....
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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11-14-2008, 03:00 PM
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#4
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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This Day Is Embedded In My Heart
Oh my Chelee, How ever did you know this? And how very sweet you are to post congrats! Thanks to Dana and Jean as well. Jean is right.
As of 7/24/08 I stopped my Vitamin H. Almost 10 yrs. Nov '98 - Jan '01 I went ev single wk. Then, I joined the triple the dosage ev 3 wks club. I have practically lived in the chemo room all these yrs, and I am elated (and a bit trepidatious -- I think I just made that word up) all at once.
Here I am again in uncharted waters. Recent studies are concerned that those of us on H for 8, 10 or 12 yrs (I know Ginger was in the original clinical trial 2 yrs before H was fast-tracked for all us to benefit). We could -- after soooo many yrs -- be building up a tolerance to the drug. Making antibodies. So I have been urged by my onc to give it a rest. I can always return to it, if God forbid a gezillion times I were to need it. And, it would likely be even more effective, as I have been off H.
I have kept my port. I have no access otherwise. Not a single working vein in my good arm. So I get a quickie flush ev 6 wks. I am due for my comprehensive blood tests on Nov. 25 and will have my ev 6 mnth CT scans (chest/abdomen/pelvis) on Dec. 4.
So I am focused on enjoying my holiday. I feel fantastic! I am energized and so grateful to Dennis Slamon for his undying devotion to us HER2ers. Did y'all see LIVING PROOF? I knew the story, but hadn't realized how this hero of mine, this life-saver of tens of thousands, had to fight to get this drug further researched, manufactured, through 3 clinical trials...
He is STRONG, BRAVE AND DETERMINED, which has been my mantra since '95. If you want to accomplish a thing you have to give it 110% of your body, mind and Soul!
My love to all my Sisters. You are never far from me. I carry you with me wherever I go. I pray for you, as I continue to meditate, take my supplements, use guided imagery and stay connected to my Spirit.
As you move forward and upward, please remember to always add: an open heart, pure, unconditional Universal Love, compassion, kindness, generosity of Spirit and gratitude for your many blessings. I swear, it can always be worse. And the beauty, friends, family that surround us keep our heads above water. They keep us grounded and IN THE MOMENT, which is where happiness and serenity dwells...
MY LOVE, ALWAYS, 
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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11-14-2008, 06:19 PM
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#5
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Congratulations Andi! You are such an inspiration to so many! Thanks for keeping in touch and updating us.
__________________
For Nicola
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11-15-2008, 09:31 AM
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#6
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Senior Member
Join Date: Oct 2005
Posts: 3,519
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cheers to Andi BB!
__________________
Brenda
NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)
Nov'03~ dX stage 2B
Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg
Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~ Started Tykerb/Xeloda, no WBR for now
June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~ PET/CT & MRI show NED
Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.
"I would rather be anecdotally alive than statistically dead."
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11-15-2008, 10:16 AM
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#7
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Senior Member
Join Date: Dec 2005
Location: Walnut Creek, CA
Posts: 438
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Congratulations Andi. I am sending prayers of many, many years of good health.
Hugs,
Karen
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11-15-2008, 12:12 PM
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#8
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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I Pray For Your Peace And Wellness Too
Thanks ALL! It's just me and God out here, so your prayers are much appreciated. I believe in prayer.
And meditation. Guided imagery. Supplements. The power of our thoughts. Love. Compassion. Generosity of Spirit. Gratitude. Staying IN THE MOMENT. Aligning yourSelf with your Soul.
We are each a Soul. A spiritual Being. A sacred Being. With a mind and a body.
I listen to my Inner Voice. I work daily at consciously choosing NOT to identify mySelf with that voice in my head. What a nag...
I wish you all peace and wellness! Big time!
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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11-15-2008, 12:15 PM
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#9
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Mazel Tov Andi on reaching this milestone!! You are certainly a beacon of light and hope for all the Her 2+ sisters and brothers on this board.
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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11-15-2008, 07:11 PM
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#10
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Senior Member
Join Date: Dec 2006
Location: Oregon
Posts: 715
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Andi,
Wow, what you have been through. I am so glad that you have celebrated 10 years. Your approach to life and treatment is an inspiration. You and all our Her2 sisters deserve a medal. We are all so happy to be here. Thank you for sharing your experience and your love and your wisdom.
Hugs, Catherine
__________________
Catherine
Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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11-16-2008, 05:54 AM
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#11
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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ANDI BB
Congratulations dear Andi on your 10 year anniversary....I am so happy you are doing well so far without the Herceptin...how wonderful it must feel to be treatment free!!! You must be soaring.
Thank you Andi for all your inspirational and motivational thoughts and wishes...you have made this journey much easier and more peaceful for many of us!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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11-16-2008, 11:02 AM
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#12
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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Wow, ten years! Here's to many more decades of being NED.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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11-16-2008, 04:21 PM
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#13
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Senior Member
Join Date: May 2006
Posts: 3,142
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Andrea B. Budin celebrates
Congratulations !! Have you thought of writing to Dr. Slamon? I bet you would like to know what a success story you are.
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11-16-2008, 04:44 PM
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#14
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Senior Member
Join Date: Oct 2007
Posts: 1,851
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Andi,
Congratulations on your 10-year anniversary, and may you be NED forever!
Joan
__________________
Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2023 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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11-16-2008, 07:00 PM
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#15
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Hi Andi,
Wow, 10 years. What a gift you've been given. It's refreshing to see that you appreciate and enjoy each day the Lord has given you. So many people don't. Sometimes complaining and being unappreciative is the "order of the day" for many and that makes for a very sad existence.
Congratulations on this special milestone. Continue to embrace each day you are given as you live and love all those around you.
"This is the day the Lord has been; let us rejoice and be glad in it...." Psalm 118:24
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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11-17-2008, 12:13 AM
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#16
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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Hi dear sweet Andi!
10 yrs huh?!....awesome!! I am so happy for you and as you well know.....You are my Role Model....yep....you sure are!!
Love and peace to you always,
HarrieCanarie
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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11-17-2008, 05:46 AM
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#17
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Congratulations Andi.
Amelia
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11-17-2008, 01:27 PM
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#18
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,747
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Let me add my congrats to the pile!!! You go girl!!! I love your posts and your positive outlook!!!!
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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11-18-2008, 10:35 AM
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#19
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Senior Member
Join Date: Jul 2006
Posts: 869
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Andi, Congrats on your milestone anniversary....many, many more. I truly love and admire your spirit and grace. Ceesun
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11-18-2008, 01:15 PM
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#20
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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Sharing My Thoughts And Heartfelt Beliefs...
I thank God every day for "sustaining me and enabling me to reach this day". That's a line from a Hebrew Benediction that I was honored to be given to read in front of the congregation one Sabbath in June many many moons ago. I was being confirmed (at age 15).
After my dx in '95, one of my favorite prayers has fresh and even sweeter meaning. I lived to see my baby dghtr marry. I lived to greet not 1 but 5 !!!!! grandchildren into this world. Those blessed words of the benediction filled my head with each occasion, bringing more goose bumps than *normal* people feel at such times.
And, now I believe that my favorite day of the week is -- EVERY DAY! I know well that each is a gift. I take none for granted. I celebrate every sunrise...
I am also ever grateful to have learned that God has given me a sacred Soul. With wisdom and foresight, God has empowered me. We each are blessed with the power of choice and the power of determining our destinies -- with fervent belief, an open heart and passionate determination. My Intention is clear, as is my Expectation.
My prayers, and my mantras, call my deepest desires to me. The Universe responds to such impassioned supplications. We are each meant to evolve to claim this wondrous birthright. It is a precious Enlightenment.
I believe God's will is for us to continue to grow and progress, to become personally empowered and seek out our dreams. We are a definitive part of our dance with supposed predetermination. This Awareness is what I wish for all my Sisters and Bros...
Though we must learn to become One with What Is, at the same time, we have been given the power to alter unwanted realities. We need not be victimized by our thoughts and fears. We can go deep within, in silent meditation and communion, and connect with our divine Essence. And, in so doing, we can make manifest miraculous results. We can re-author the internal dialogue we dwell upon all day -- KNOWING that what we focus our concentration and energy on will be drawn to us. That is a remarkable Universal Law it has been my honor to stumble upon.
Of course, we must always add our: Unconditional Love, compassion, tolerance, acts of kindness and inclusion, generosity of Spirit and humble appreciation for our many blessings.
We are here to serve one another, to respect each other's beliefs and support one another. That's when we choose to be our Truest Selves, in reaching for our Higher Selves.
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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