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05-12-2008, 08:02 AM
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#1
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Senior Member
Join Date: Jan 2008
Location: Oregon City
Posts: 856
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Time changes perspective about bad news
Colleen was pretty upset when she first found out the surgeon didn't get clean margins for her lumpectomy. This meant that a second surgery was necessary and our lives would be put on hold for at least another six weeks.
Colleen had a spiculated tumor, which means the tumor is star shaped and had long narrow fingers. After 4 TAC infusions, all they could detect was a small round ball less than 1cm in size. The cancer in the margin was a very small 1 mm by 1.5 mm piece, which cannot normally be detected by ultrasound or mammography, or at least that is what I was told.
After getting over being upset, we realized that the surgeon could have taken a smaller lump out and completely missed a very small pocket of cancer that survived at the end of one of the fingers of the tumor. If the small pocket was allowed to remain, the results could be tragic.
Instead of looking at the dirty margin as a bad thing, we are now looking at it as something that very well could save Colleen's life.
Since the pocket was so small, I think Colleen is looking to do a re-excision, but she has until May 22nd to make up her mind.
It's funny how a little bit of time and reflection can change your outlook on things.
Lee
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05-12-2008, 09:06 AM
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#2
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Senior Member
Join Date: Apr 2008
Location: WA State
Posts: 199
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What a wonderful way to look at it! How true your thinking is. Keep up that positive thinking and my thoughts and prayers will be with both of you.
__________________
Cindy
L/IDC, 1.2 cm, Stage 1, Her2+, ER+/PR+ at age 48
4/15/2008 Lumpectomy + sentinel node biopsy
Margins neg and Nodes neg (2 tested)
MUGA score 55 on 5/6/2008
Treatment starting 05/08/2008:
Chemo 4 cycles, 3 weeks apart with Taxotere & Cytoxan - Chemo - Done 7/24/2008!
Herceptin for 1 year
Radiation starting in 9/2008
MUGA score 61.9 on 9/04/2008
33 Rads with boost - Done 10/13/2008
MUGA score 58 on 12/01/2008
MUGA score 59 on 3/16/2009
Herceptin for 1 year - Done 4/27/2009
MUGA score 64 on 6/22/2009
All scans - NED 6/24/2009
MRI - NED 11/10/2009
All scans - Still NED 8/25/2011
Still NED 2024!
I am calling this my pink journey
Follow my journey into the pink at my blog here
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05-12-2008, 07:19 PM
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#3
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Senior Member
Join Date: Oct 2006
Location: Southern California
Posts: 900
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Lee,
Yes, time does put things into perspective. I know how disappointed Colleen must have been when she found out that she would have to have additional surgery. However, she is indeed fortunate that this was discovered and she has options. Once it is over, you and Colleen will be able to breathe easier knowing that nothing has been left behind for chance. Great news on how well that nasty chemo worked. Let us know what she decides.
All my best to you both,
__________________
Gerri
Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
********** Enjoy the little things, for one day you may look back and realize they were the big things. - Robert Brault
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05-13-2008, 05:38 AM
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#4
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Senior Member
Join Date: Sep 2005
Location: Central Florida
Posts: 503
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I can certainly understand her first reaction too... I had a 9mm tumor removed with clean margins. A month later when I had a breast MRI (should have done this FIRST!) they found two additional (yes 2) more tumors. One was 1.4cm and the other was 4mm just barely off the clean margin of where the 1st tumor was removed. Of course this finding upped my chemo to DD and proved that technology is there for a reason. I ended up with a re-excision.
In Colleens case; The lab person behind the microscope is as important as the team working on her...
I have always understood that 4mm is about as small as any technological device can pick-up. Anything smaller is left to radiation and chemo. Otherwise, the cancer that remains in the breast unaffected by rads/chemo could be the so-called recurrences... makes me wonder how many recurrences are actualy original tumors that were never caught !
I am really glad time provided more insight for Colleen...
Maria
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05-21-2008, 07:46 AM
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#5
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Senior Member
Join Date: Jan 2008
Location: Oregon City
Posts: 856
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Today Colleen and I will meet the surgeon and Colleen has decided that she wants to do a re-excision. I hope this is the best decision.
She decided to ask the surgeon to switch gears and do a mastectomy if he runs into anything that looks suspicious and he suspects there won't be clean margins. I'm not sure if that is possible or practical but scheduling surgeries is so time consuming that she has a fear that the time between her last chemo in February and her next chemo, which is four weeks after the surgery is getting ridiculously long.
Colleen seems to be a real fighter about all of this but I am just getting worn down by it all. I want this to be over.
__________________
This happened to Colleen:
Diagnosed in September 2007
ER-/PR-/HER2 Neu+++ 2.1 cm x .9 cm spicluted tumor with three fingers, Stage 2B
Sentinal node biopsy and lymph node removal with 3/18 positive in October 2007
4 TAC infusions
lumpectomy March 2008, bad margins
Re-excision on June 3rd, 2008 with clean margins
Fitted for compression sleeve July 16, 2008
Started the first of two TCH infusions August 14, 2008
Done with chemo and now a member of the blue dot club 9/17/08
Starting radiation October 1, 2008
life is still on hold
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05-21-2008, 08:54 AM
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#6
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Senior Member
Join Date: Apr 2008
Location: WA State
Posts: 199
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I will be prayering for Colleen and you during this time. Take care and please keep us updated as you can.
__________________
Cindy
L/IDC, 1.2 cm, Stage 1, Her2+, ER+/PR+ at age 48
4/15/2008 Lumpectomy + sentinel node biopsy
Margins neg and Nodes neg (2 tested)
MUGA score 55 on 5/6/2008
Treatment starting 05/08/2008:
Chemo 4 cycles, 3 weeks apart with Taxotere & Cytoxan - Chemo - Done 7/24/2008!
Herceptin for 1 year
Radiation starting in 9/2008
MUGA score 61.9 on 9/04/2008
33 Rads with boost - Done 10/13/2008
MUGA score 58 on 12/01/2008
MUGA score 59 on 3/16/2009
Herceptin for 1 year - Done 4/27/2009
MUGA score 64 on 6/22/2009
All scans - NED 6/24/2009
MRI - NED 11/10/2009
All scans - Still NED 8/25/2011
Still NED 2024!
I am calling this my pink journey
Follow my journey into the pink at my blog here
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06-08-2008, 05:44 PM
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#7
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Senior Member
Join Date: Jan 2008
Location: Oregon City
Posts: 856
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This Friday we got a double dose of good news.
My daughter's biopsy came back and she does not have stomach cancer. Yeah! The doctors are a bit perplexed and they don't know what is wrong with her, but cancer seems to be the scariest option.
Late Friday night Colleen's surgeon phoned our house and told us Colleen had clean margins. Yeah! So it's on to the next step. It's good to finally get some good news.
Thanks for your prayers and positive thoughts.
Lee
__________________
This happened to Colleen:
Diagnosed in September 2007
ER-/PR-/HER2 Neu+++ 2.1 cm x .9 cm spicluted tumor with three fingers, Stage 2B
Sentinal node biopsy and lymph node removal with 3/18 positive in October 2007
4 TAC infusions
lumpectomy March 2008, bad margins
Re-excision on June 3rd, 2008 with clean margins
Fitted for compression sleeve July 16, 2008
Started the first of two TCH infusions August 14, 2008
Done with chemo and now a member of the blue dot club 9/17/08
Starting radiation October 1, 2008
life is still on hold
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06-08-2008, 05:59 PM
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#8
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Lee,
Bet that made your weekend! So glad to hear you got a double dose of good news - you were definitely due for that.
Sending hugs and spray cheese smiley faces your way.
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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06-08-2008, 07:13 PM
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#9
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Senior Member
Join Date: Apr 2008
Location: WA State
Posts: 199
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So good to hear the wonderful update from you. I will continue to pray for more good outcomes for Colleen.
__________________
Cindy
L/IDC, 1.2 cm, Stage 1, Her2+, ER+/PR+ at age 48
4/15/2008 Lumpectomy + sentinel node biopsy
Margins neg and Nodes neg (2 tested)
MUGA score 55 on 5/6/2008
Treatment starting 05/08/2008:
Chemo 4 cycles, 3 weeks apart with Taxotere & Cytoxan - Chemo - Done 7/24/2008!
Herceptin for 1 year
Radiation starting in 9/2008
MUGA score 61.9 on 9/04/2008
33 Rads with boost - Done 10/13/2008
MUGA score 58 on 12/01/2008
MUGA score 59 on 3/16/2009
Herceptin for 1 year - Done 4/27/2009
MUGA score 64 on 6/22/2009
All scans - NED 6/24/2009
MRI - NED 11/10/2009
All scans - Still NED 8/25/2011
Still NED 2024!
I am calling this my pink journey
Follow my journey into the pink at my blog here
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06-08-2008, 08:50 PM
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#10
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Senior Member
Join Date: May 2006
Posts: 3,142
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Time changes perspective about bad news
Hi,
congratulations to Colleen on the clear margins.
I hope they can figure out your daughter's problem.
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06-08-2008, 09:16 PM
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#11
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,809
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So glad to hear the good news! Now you are ready for a 'Happy' Father's Day next weekend! Congratulations!
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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