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02-14-2008, 01:12 AM
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#1
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Senior Member
Join Date: Dec 2005
Posts: 98
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not one liver tumor, a ton of mini tumors
Can anyone relate to this and suggest a treatment. I have a lots of liver tumors very small, progression of more seems very fast. Any suggestions
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02-14-2008, 03:49 AM
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#2
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Senior Member
Join Date: May 2006
Posts: 157
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Havah,
I wish I could be by your side right now to give you a big hug, you seems so scared, and it is OK to be scared. I have been there too when I was diagnosed with Stage 4, mets to liver and lungs in Novemrber 2005, after being stage 3c for 7 months when I had Epirubicin, Cytoxan, Taxotere, double mastectomy and radiation. According to my report, I had some small liver mets, and some small mets in both lungs. I was in shock, I thought I was going to die in a few months, it was horrible, I was so scared. Then I had Taxotere/Herceptin for 6 months, and the tumors grew in number, now I had several small tumors in my liver, and I was terrified, so the treatment was changed to Nalvabine/Herceptin, and after 5 months of treatment, the several small tumors in my liver disappeared, and I have been NED on my liver since then (16 months). I am still on treatment, now on Gemzar/Herceptin for lung mets that started growing again, but my liver is clear, and yours will be too. When you find the right treatment for you, it does not matter how many tumors you have, they will all respond to the treatment and they will start shrinking, but it takes some time for this to happen, sometimes months, many months. By the way, how long have you been on Abraxane?
I know it is not easy, but please, try to calm down, take a deep breath, then put on your fighting gloves, and think positive that you WILL find the right treatment, and that your liver mets WILL disappear. Positive thinking is VERY IMPORTANT, I learned this from Andi a long time ago ( she posted recently about this beautifully in another thread for you). Focus on what you want it to happen, and scare away your negative thoughts. Remember, you are in a fight, but you are in this fight to win.
I see that in another thread many of our sisters and brothers have given you excellent suggestions of treatment, and I am sure more will respond. Hang in there. I pray that you will also find the right treatment for you very soon.
A big hug,
KarlaV.
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02-14-2008, 10:19 AM
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#3
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Havah,
I think that Kavy sharing her treatment with you shows that you can
stomp out those small liver tumors. Please do try to consider the glass half full, instead of empty. Remember, you have just started your treatment.
I realize you do much research - therefore, you must know that many new treatments are proving to be successful. What treatment has your onc.
and you decided on to fight these liver mets?
Please remember that we are all here to support you. I know you are not a fan of portable religion - but having a little faith and positive thinking can be helpful. I realize that is easier said then done. Come here often and reach out to us....as we are always here for you.
Kind Regards,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
Last edited by Jean; 02-14-2008 at 10:22 AM..
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02-14-2008, 10:56 AM
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#4
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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HavahJ,
I can relate, this describes me in 2004 (except I also had some HUGE ones!)
Now, you did ask for suggestions re treatment. Not knowing what treatments you have had makes it harder to make suggestions, but I had great results from Taxol/Carboplatin/Herceptin, and I know that others (StephN) have done great with Navelbine/Herceptin. Both for extensive liver mets.
Much love
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
Last edited by chrisy; 02-14-2008 at 11:02 AM..
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02-14-2008, 03:19 PM
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#5
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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Keep talking, darling Jan.
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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02-14-2008, 09:48 PM
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#6
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Senior Member
Join Date: Sep 2005
Location: South Dakota.
Posts: 621
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HavahJ, it would help others offer suggestions to you if you would describe your cancer specifics such as dates, treatments, chemo drugs, current drugs, etc. in your signiture.
Thank you, HavahJ. Sending you a big hug. Hang in there. I know you and your onc will come up with a plan that will knock out the tumors.
__________________
Blessings and Peace,
Barbara
DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.
Accepting the gift of life, I give thanks for it and live it in fullness.
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