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Need Help from IBC Members
Dear IBC Members
Some of you may know that I am also a Reach to Recovery (RTR) volunteer for the American Cancer Society (ACS). RTR calls newly diagnosed women who call the ACS for help and support. They want to talk to someone who was like them (in either pathology, age group, children the same age etc).
I was contacted today because my ACS unit knows I know alot of women with bc and they have a referral for a 39 yr old woman who was newly diagnosed with IBC. Naturally she is frightened and wants to talk to someone her age (35-45 yrs old) that had IBC. I do not know any particulars yet and the ACS will be talking to her first but, in NJ, there is no one that is RTR that had IBC and is in that age group around 39 yrs old.
The ACS will let me know more tomorrow and it may all fall through but I was hoping any of you who fit that profile will privately message me if you are interested in talking with this woman (she may not be Her2+). Also, is there a similar IBC website address.
I will let all who respond know what is happening one way or the other.
Thanks so much
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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