Joanie, even though the oncs I consulted about getting late Herceptin didn't favor me getting it, at least one was reluctantly willing to prescribe it "off-label" for me -- so you probably could find a way to get it "off-label" as others in our situation here have done. But the question has been whether or not getting Herceptin "late" does any or much overall good for our group, since as a group we were excluded from the Herceptin trial and as well there can be the disadvantage of cardiac toxicity with it.
The TEACH trial is for those who are NED and confirmed strongly HER2 positive and who never have had Herceptin, and it is a trial with participants getting either lapatinib (Tykerb), or a placebo.
http://www.clinicaltrials.gov/ct/show/NCT00374322
Hope that helps...
AlaskaAngel