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Responding to Lindaw's question on 9/14.
I have been at camp so just read the post tonight. I thought I would start a new post for everyone to see. Wednesday will be 3 weeks on the Tykerb. I did report the first week the skin mets looked much improved. On day 9th of taking Xeloda I had severe diarrhea. My potassium dropped, I was shaky, my heart was fluttering and I was weak. I called oncology and was told to stop the Xeloda, go on a clear liquid diet with lots of gatoraide until the diarrhea stopped. I saw my oncologist today and he was impressed at how much the skin mets had disappeared!! He told me to start the xeloda again on Wednesday at 2000 mgs. instead of 3000 mgs. He said they both can have the same side effects with diarrhea. For me its too much. I am praying that I can tolerate this low dosage if not I don't know what he will do. I can scanned again next month at 6 weeks. That is the only side effect at this time. I am curious as to how Irene in Tampa is doing. I hope she didn't have this problem traveling! hugs, Sandy
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Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!
I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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