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07-30-2006, 11:33 AM
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#1
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Senior Member
Join Date: Dec 2005
Location: Michigan
Posts: 230
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6 weeks post Herceptin
I finished my year of Herceptin on June 21 and said I would update any changes after Herceptin. The 2 changes I can note, the first being the muscle ache/cramp I had the entire treatment is almost completely subsided. The 2nd (not sure if I am happy) is the return of my menustration. I was 39 at diagnosis sent into chemopause for 18 months & 6 weeks then this week I had PMS and a regular cycle. I am ER/PR- and have had differing opinions as to removal of ovaries this is not helping my decision, I was completely content in menopause.
The good news is that I am here to complain & consider all choices. And again, thank you all for your continued insight & support on my journey.
Mary
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07-30-2006, 12:55 PM
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#2
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Mary,
Congratulations on finishing your year of Herceptin. I will be finishing mine next year. Since I started Herceptin I too have muscle/joint cramps pain. I also have a constant headache. Was sent for a brain MRI which I'm sure is fine. I thing the headache is just from the Herceptin. Did you have a constant headache while you were on Herceptin?
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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07-30-2006, 02:30 PM
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#3
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Mary,
Congrats on finishing your herceptin tx!! Woohoo! It's great to know that you are feeling better and that your body is getting back to normal. I can't wait to feel somewhat "normal" again!
Lexi
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07-30-2006, 04:04 PM
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#4
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Mary...
Thank you for the update and continue to have GREAT health. Take care and God bless.
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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07-30-2006, 05:00 PM
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#5
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Happy PMS-ing!
Mary, congratulations on returning to "normal"! Only someone who has been through as much as you have can appreciate how nice it is to have only "normal" complaints. Take as much time as you need to make your next decisions...in the meantime, enjoy the knowledge that your body is on the road to recovery!
Best,
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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07-31-2006, 03:24 AM
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#6
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Senior Member
Join Date: Sep 2005
Posts: 414
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Thanks for the update
It is really helpful to see what changes go away after people come off herceptin, so we know what the side effects are (as opposed to the side effects of chemotherapy, chemopause, aromatase inhibitors, stress, aging and all of the other problems we are subject to).
Thank you for providing an update.
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07-31-2006, 07:32 AM
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#7
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Mary,
Congratulations on completeing herceptin! I have just competed my 10 herceptin and after chemo will continue (like you) for one yr.
So glad that all is moving forward for you! Best of everything - keep
us posted - I also have muscle cramps and headaches but they are under control.
Blessings
Jean
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07-31-2006, 07:40 AM
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#8
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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Mary
Congratulations from me, too. Freedom from oncology!! I have muscle cramps, especially in my rib cage area. Thought it might be arimidex. Now I wonder if it is Herceptin. I will have to wait until after March to know. What a long, strange trip this has been....MJO
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07-31-2006, 08:08 AM
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#9
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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Thank you for your update! Encouraging!!! I will be finished with a year of herceptin (every 3 weks) in Oct. and am also on Arimidex-5 years. Have had joint pain-pretty severe at times and am anxious to see if this goes away when I finish herceptin.
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