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Old 01-09-2006, 08:47 AM   #1
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Friend needs help

Hi! My friend is going to have a mastectomy of one breast. She is wondering if she should have reconstructive surgery or not. I had a mastectomy 5 years ago without the reconstruction, so I can't really give her the pros and cons. If anyone had the surgery or knows any reason why she should or should not have it, please post. Thanks! God Bless- Cathy1
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Old 01-09-2006, 09:21 AM   #2
Sheila
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Cathy

I had a mastectomy 4 years ago...I didn't think about reconstruction at the time...2 years ago, I decided I wanted reconstruction. I had a tissue expander put in, then 4 mos later a silicone implant....it is a personal decision...am I happy I did it? NO! I have developed capsillary contractures or tightening with scar tissue around the implant....it tightens at the least bit of arm use, hurts like crazy in the cold weather, and it still sore to the touch 2 years later....I want to have it out, but don't relish the thought of another surgery and need to get my neck lymph mets under control 1st....my advice is have her talk to others who have had reconstruction, and what kinds....it is a big decision, one I wish I hadn't made!
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Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 01-10-2006, 01:13 PM   #3
Lisa
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At 41 and married, I, too, had to choose. I chose against and here's why:


1. I was told by my respected PT that the reconstructive surgery was much worse to recover from than the mastectomy.

2. I didn't want to be 70 and have one "up" and one "down."

3. When you lose weight, the breast is usually the first to go. I preferred to keep them the same size, so...

4. I chose a breast form, which hasn't been great, but O.K.

5. Never thought I would, but frequently I go "without". Not with tight t-shirts, but with looser clothes.

If doing it over, I'd probably have a double mastectomy. That way I wouldn't have to wear a bra at all!

It's such a personal decision. I'm sure you'll get all kinds of responses. And thanks for helping your friend.

Love and light,

Lisa


Love and ligh
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Old 01-10-2006, 02:05 PM   #4
Cynthia
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I chose to have a double mastectomy in part because I wanted them to match. I had immediate reconstructive surgery to avoid having to have another major surgery down the road. I had tissue expanders and then silicone implants. I had nipples reconstructed a month ago and will get my tatoos in a couple of weeks. I must say that I am amazed at how good and real they look. I am thrilled I did it (but mind you I have had no problems to speak of and would probably have a different view of things if I did). I love to show off my cleavage when appropriate because I consider sideways glances from men as my little joke on the world.

Cynthia
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Old 01-10-2006, 02:32 PM   #5
lu ann
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I was first dx. with BC 09/26/91 at age 35. I had immediate tram flap reconstruction and a lift of the other breast. I was horrified by the result. My recon. breast was oversized and my real breast was odly shaped. One year after surgery I had my first revison which included lyposuction of the breast and tummy area and surgery to the nipple area of the real breast. Both sides started to look symetric. It took 2 more revisions which included more lyposuction and nipple reconstruction then finally tatooing of the nipple and areola. The nipple was recon. with surrounding tissue not a donor sight. I was very pleased with the result as I was and now able to go without a bra and noone can tell the difference. I felt sensation in the reconstructed breast when I went into the frozen food section in the grocery store. The down side of all this is I think from all the nerve damage caused by the surgery, the local reoccurrance in my mediastynime went undetected until it metastisized to my spine and pelvic bones. Blessings, Lu Ann
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