Hi all, well I have been having radiaiton pretty much constantly since 1998 and now I am really feeling the damage. My last severe radiation to neck and remaining breast put me in hospital on morphine treatment for 4 days, and daily dressings of Silvazin cream, for over a month. Well finished rads in April and now experiencing the real damage. It seems that the nerves in the neck messaging the muscles in my shoulder blade were damaged and I am loosing movement in my right arm fast. My shoulder blade seems to be flopping about with great pain I might add, I also fell last month and I got 2 fractures to the other shoulder so I have to imobalise that for 6 weeks then see if any further damage, so with that arm strapped up and limited painful movement in the left side, I am lucky that if I keep my elbows to my body I can type without pain. I am now into treatment which involves exercises to strengthen the muscles that haven't been effected, my right shoulder isn't stiff but I cannot lift my right arm, so physio entails streatching that arm out to the front and then to the back and twist the hand out, as well as my neck which has also been effected with now only being able to turn it slilghtly, also very tight and it aches. I was warned that I would get some damage, at the time I just thought well if I want to live I have to accept it as it comes. I can honestly say that my shoulder problems have been far worse than any chemo. It would be a good idea to ask radiation onc for exercises that can be done to prevent getting to my stage as I now have a lot of muscle wastage as well. Some days I ask is it worth all the pain, then I get a lot of I love yous, so yep it is. Read a bit of star gossip and it seems Kelly Osborne was addicted to Oxycodene, my script is for Endones, same thing but Hollywood speak is "Hillbilly Heroin", had a chuckle at that, could just see me in a rocking chair with a bottle of moonshine to go with it. Makes you wonder what pain they have in the first place to even try our drugs. So I am on Ibruphen, anti-inflammatory, (not supposed to be on any with my heart), Endones for pain, Neurontin for the nerve damage in my head and neck from the radiaiton which gave my Trigeminal Neuralgia, (worked that one out myself) if I have to Ordine, (liquid morphine) and none of this is for cancer but for damage from treatment. Everyone keeps telling me to be strong I didn't get this far by giving up.
Love & Hugs Lyn
Love & Hugs Lyn
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