HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Search Today's Posts Mark Forums Read

Reply
 
Thread Tools Display Modes
Old 08-17-2007, 08:37 PM   #1
Sherryg683
Senior Member
 
Sherryg683's Avatar
 
Join Date: Feb 2006
Posts: 1,014
You are in my prayers Chelee, I am so sorry to hear this. ...sherry
__________________
Sherry

Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year

Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
Sherryg683 is offline   Reply With Quote
Old 08-18-2007, 03:11 AM   #2
Kimberly Lewis
Senior Member
 
Kimberly Lewis's Avatar
 
Join Date: Nov 2005
Location: Hilton Head Island, SC
Posts: 279
So very sorry for your loss Chelee, I know about being close to your mom. Mine has also been more like a sister to me. My dad was abusive and we really held eachother up through all those bad times. I will feel lost when she goes on too. Praying for comfort for you.. Kim
__________________
Kim

Diagnosed 7/05
Stage 3a er+(45%) pr+(68%) Her2+ (40%)
3.8 cm + .8cm multi focal - pleomorphic lobular tumors
high grade DCIS
7/20 nodes

BRCA 2
positive as of 5/07
surgeries: double mastectomy, hysterectomy (LAVH)
A/C,Herceptin for 1 year completed 11/06
femara


Kimberly Lewis is offline   Reply With Quote
Old 08-18-2007, 12:25 PM   #3
Andrea Barnett Budin
Senior Member
 
Andrea Barnett Budin's Avatar
 
Join Date: Oct 2005
Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
Posts: 1,904
My Dear Chelee

Dear Chelee,

My arms are around you. I know how painful the loss of a parent is. I am glad to read that you were so blessed to have such a strong and wonderful person as your mother. And that your relationship was so very special. May you come to realize what a true blessing that is. For now, it is understandable that you are focusing on the loss of your dear best friend and mom. That is natural. But if you can, step back and see how remarkable that relationship was and appreciate that you had it for so long. It is always too soon to lose someone we love, even if they are ninety nine years old. I surely wish you and your mother could have been together for decades to come. But I do know that she is at peace now, that she is watching over you and that you will meet again. Death is not the end of our story. The Soul survives.

In time, and I pray it is a long, long time for you here in the physical plane -- you will be with your mom again. In the meantime, though she cannot talk, you can hear her. Though you cannot see her, you can sense her presence. As Life goes on, as it must, you will hear your mother's words in your head, responding to little things. Your actions will come spontaneously, but suddenly you will realize that they stem from your mother's example. Your memories and engraved in your heart and it is my prayer that they will serve to comfort you. And may the knowledge that so very many people truly care and grieve with you also help to soothe your sorrow. I wish you peace with what is. Your mom is full of love for you still, just as your love for her endures. Love is indestructible. Eternal. And full of miraculous wonders. With much love and my sincerest condolences, sweet Chelee...
Andi

__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
Andrea Barnett Budin is offline   Reply With Quote
Old 08-20-2007, 08:56 PM   #4
G. Ann
Senior Member
 
Join Date: Mar 2006
Posts: 78
Dear Chelee,
It is so hard to lose a parent (or loved one). At a dear friend's funeral two years ago, the priest said the pain felt was so great for family & friends because there was "much love." It is a blessing you were able to share love with one another. With your mom's lung cancer and your battle with BC, I'm sure your bond was strengthened even more.

I hope all your good memories will help comfort you. During this difficult time, try and take good care of yourself.

You are in my thoughts and prayers--G. Ann
__________________
G. Ann
DX 2/04, mastectomy, 2.5 cm tumor, grade 3
Her 2 positive, 60%, 3+/strong, ER/PR-
Stage 2, 0/18 nodes
TX 4 AC (no taxanes, no radiation)
Hysterectomy 10/04
Began Herceptin 1/06, finished 1/07
G. Ann is offline   Reply With Quote
Old 08-21-2007, 05:57 PM   #5
Chelee
Senior Member
 
Chelee's Avatar
 
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
I want to thank all of you for your condolences and heart felt words of support. I am deeply moved by all your kind words. My gratitude to all of you is inexpressible. I know its only been six days since my Mother passed away but the pain seems to get worse each day. Its the realization that I can never pick up that phone and talk to her again. Let alone I usually went to see her at least 3 or 4 times a wk. Tomorrow will be very difficult because it will be the 1st day since her passing that I have two doctors appts. One on Wed., and then Thrus. I would *always* swing by my Moms house after running an errand or going to a doctors appt. There was hardly a time I ran out without stopping by to see her.

My Dad died when I was only 5 yrs old. Died of a massive heart attack. Since Dad died my Mother has been everything to me. My Mom, sister and best friend. I was so blessed to have her in my life. I have lots of wonderful memories of her that no one can take away...but the thought that I can never talk to her again is so painful. There is so much I'm going to miss about her. I feel like such a big part of me is missing never to be the same. I'm glad she is without pain and no longer suffering...but oh how I wish I had her back again....even for just five minutes. She told me once if something happened to her to pull myself by my bootstraps and keep going. How I wish it were that easy. Again...thanks to all of you for your heartfelt condolences. I appreciate all your kind words...it means more to me then you could possible know at this difficult time. Thanks for all your kindness & words of comfort. I really needed it. I knew this is the one safe place I could express myself.

Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
Chelee is offline   Reply With Quote
Old 08-21-2007, 08:21 PM   #6
chrisy
Senior Member
 
chrisy's Avatar
 
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
Chelee,
My mom died after struggling with illness for some time. A few days after she passed, she came to me in a dream. She was dancing on a railing in a crowded plaza. I believe she was telling me she was happy and free, once again.

And she is with me still.
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
chrisy is offline   Reply With Quote
Old 08-21-2007, 08:26 PM   #7
kcherub
Senior Member
 
kcherub's Avatar
 
Join Date: Apr 2007
Posts: 292
Dear Chelee,

I am so, so very sorry to hear about your mother's passing. I am so thankful that you were able to be with her. Please know that while I cannot understand your grief, I send out huge hugs and sincere sympathy for you! More reason to fight on...

Anytime you need to talk,
Krista
__________________
Krista
Diagnosed 3/29/2007 @ age 34
Stage 1, Node Neg. (SNB), Grade 2, 1.4 cm. IDC
ER/PR 90%+ HER2 +
6 TCH started 5/25/2007, ended after #5 due to steroid "reactions" and neuropathy in feet and hands
BUT--#6 CH w/o Taxotere
Begin Herceptin alone 9/28/2007
30 rads completed 12/19/2007
Finish Herceptin 5/9/2008
Stopped Tamoxifen early--HATED it.
Married 17 years
13-year old son
3 embies on ice (from 1999)
GA, USA

kcherub is offline   Reply With Quote
Old 08-21-2007, 09:03 PM   #8
Barbara2
Senior Member
 
Barbara2's Avatar
 
Join Date: Sep 2005
Location: South Dakota.
Posts: 621
<TABLE cellSpacing=0 cellPadding=0 width="100%" border=0><TBODY><TR><TD vAlign=top><TABLE cellSpacing=0 cellPadding=0 border=0><TBODY><TR><TD></TD></TR></TBODY></TABLE></TD><TD></TD><TD vAlign=top>Daily Word — Wednesday, August 8, 2007

<TABLE cellSpacing=0 cellPadding=0 align=right border=0><TBODY><TR><TD></TD><TD></TD></TR></TBODY></TABLE>Comfort

Sustained and uplifted by God, I am filled with courage and hope.

There is comfort in knowing that God is with me at all times and in all circumstances. Every concern is overcome through the unconditional love of God. I am sustained and uplifted—filled with courage and hope.

Just as Peter was beckoned by Jesus to walk across the water to Him, so, too, am I called to a greater demonstration of my faith. Perhaps I have been grappling with a challenge or a loss—trying to make my way through the experience. As I elevate my thoughts from the challenge to God, I am comforted and filled with courage and hope.

In prayer, I feel anxiety subside. My spirits are buoyed. As I move forward with God in this experience, I step out with confidence.

“Now may our Lord Jesus Christ himself and God our Father, who loved us and through grace gave us eternal comfort and good hope, comfort your hearts and strengthen them in every good work and word.”—2 Thessalonians 2:16-17

</TD></TR></TBODY></TABLE>


Chelee, I want to join the others in expressing heartfelt condolences to you. Those of us who have lost a parent or anyone near and dear to us, knows how it feels to have a broken heart. My dad died of liver cancer 33 years ago and I still miss him very much yet today.

We pray for God's strength to bring you comfort and peace. Something that brings me great peace is knowing that someday I will see and be with my dad again. That thought brings positive thoughts to me while dealing with breast cancer. Someday, you will be together again. For now, may you find comfort in your faith.
__________________
Blessings and Peace,
Barbara

DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.

Accepting the gift of life, I give thanks for it and live it in fullness.
Barbara2 is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 11:44 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2026, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter