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Old 12-30-2007, 06:18 PM   #1
Bill
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Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Hi Shadowpuppet! I hope the fierce warriors here on this site have given you good council. Myself, I have not had cancer, merely a caregiver to my wife. Looking back on things, knowing what I know now, we would have been alot more aggressive with treatments. Please understand, I'm not trying to cause you any more worry, because I know you have plenty, but honestly, you don't want to wind up in that 10 percent group. You gotta hit the cancer from all angles-chemo, rads. if appropriate, exercise, proper diet, prayer, meditation, visualizing yourself as cured, healthy and NED, and whatever else you can do. The only thing you have control over is how you react to your situation, and what you do to fight it. If you don't fight it head on and God forbid, it doesn't work out well, you can't undo time and play the "woulda, shoulda, coulda" game. Like a chaplain told me once, "Your life is different now, and it doesn't matter what you think,but it is. Just look at it as a new, different life and commit yourself to doing the best you can at every given step, and that's all you can do."
You gotta do all you can. Prayers and Love, Bill
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Old 01-01-2008, 06:58 PM   #2
fullofbeans
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Join Date: Jan 2007
Location: UK
Posts: 617
It is not an easy decision. However I would say that make sure you are basing your decision on the right info.

What we know is that:

young woman (with high grade IDC) and Her2 have fast agressive cancer.

Chemo works best with fast dividing cells.

taxane were found to significantly decrease recurrence of these aggressive Her2 cancer.

Herceptin is serving us well with minimal side effect.

The way I see it there are not just one cancer.

Western medecine has come up with some statitically proven protocoles in cancer treatment. However i think that it is not either or..

Many adopt on this board also do a diet high in omega 3 and that minimise inflamatory response (lots of veg, no meat) and low GI (no refined/ processed food) and other growth factor if Er+ (Dairy); Basically a greek diet (see post for it of that title) . sport, supplements, meditation.. all these have on balance scientific reasons/support to be used to decrease or slow down recurrence

Often alternative protocole refer to just "Cancer" and haved similar detox prog, no distinction is made between various type of BC; you could be 70 with a slow grade 1 IDC.. (For me the cancer you have is a totally different beast, yours is likely to be fast).

Good luck in making up your mind but make sure you are correctly informed to take your decision. A word of caution would be to be beware of testimonies.
__________________

35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies

Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..

superior vena cava blocked: stent but face remains puffy

April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.

Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.



'Under no circumstances should you lose hope..' Dalai Lama
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