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Old 08-13-2006, 06:42 AM   #1
Val Pfeiffer
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P.S. I have been very happy that I didn't get a port, (a) because my veins have been working fine, and (b) because I'm glad I won't have a big scar from the port. But Janet's post regarding saving her veins for later made me stop and think -- do your veins change if you use them a lot? Do you only get so many "pokes" in one lifetime before they stop cooperating? I've never heard that before. Given the fact that recurrence is so likely, maybe I didn't make the right decision about the port this time.
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Dx 11/04, Age 42, ER-/PR-, HER2+++
3 months weekly Herceptin, Taxol. Carboplatin
Significant tumor shrinkage
Mastectomy 3/05; Stage 3b, 9 cm tumor, 5/8+ nodes
3 more months weekly Herceptin, Taxol. Carboplatin
7/05 30 radiation treatments, IMRT planning approach
Started 1 year of Herceptin 9/05
9/06 Began quarterly triple doses Herceptin. Brain & breast MRIs semi annually.
* * * * * * * * * * * * * * * * * * * * * * * * * * *

6/08 Right breast, intraductal carcinoma, high nuclear grade associated with comedo necrosis; extensive diffusely involved the entire biopy specimen. ER+, PR-, Her2 unknown at this point, 07/08 mastectomy.
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Old 08-13-2006, 06:57 AM   #2
Jean
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good post

Val,
Interesting post - My one onc. in NY at Cornell did not even ask me about port just told me as he made appt. for the surgery. When I went to Hackensack Cancer Ctr (this is where I ended up having my chemo) they did not even consider port first. They approached the situation with "we will try without port first attitude" I loved it since I did not want a port (much like you) heard some varied stories and I was very concerned. I have very small veins and was not very postive that it would work - but I was hopeful...I have been doing just great and they are wonderful at the cancer center. They do prepare me for treatment with warm compressses for 15 min. prior to starting treatment. I must say I never even have a mark on me after treatment. The nurses are the best. They always get the needle in on the first attempt. So far so good and I am very happy they at least attempted treatment this way. I will have my 5th chemo on 8/21...then, only one more to go - then a yr. of herceptin. I would guess the type of chemo maybe and treatment plan would effect this decsion... I am having TCH....


Jean

Last edited by Jean; 08-13-2006 at 07:01 AM..
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Old 08-13-2006, 06:58 AM   #3
IRENE FROM TAMPA
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Smile Port Or Not

Val - I have had several ports now over the years. The first two were placed low by my first surgeon and that was harder to access. The last one I had is up higher and much easier.

I am very happy to have it as it does save the veins. With a mastectomy I can only use the one arm so that does wear out the veins when they are used so much. I do use my good little vein when I go in to just draw blood or something fast like that. But the port comes in very handy if you ever end up in the hospital (which I have several times ) in all of these years. They can do everything from there and not have to use a IV in your arm, which I hate.

I don't even remember I have one in half the times.

I was also never really "given an option" but I guess you could choose your veins if you want to, as you did. There are some chemos which do require to be administered through the port only. In that case, you would have to have one.

Hopefully, you won't have to make that decision anytime soon.

Take care Val
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1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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