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07-31-2006, 07:47 PM
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#1
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Senior Member
Join Date: Nov 2004
Location: Henderson, NE
Posts: 413
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Mary, Wow, that's awesome. Your story sounds soooo much like mine. All the same feeling's and fears. I remember crying the day i found out about the trials too. We are all in this together. We all are connected by this disease. We all are here for eachother! congratulations on your 5 year!! I'm celebrating my 3rd year this month. I had 35 positive nodes!!
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08-01-2006, 04:47 AM
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#2
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Mary
Congratulations...5 years NED...thats better than winning the lottery in my book! May your NED continue for many many more...Celebrate, you are an inspiration for many of us trying to get to that mark!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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08-01-2006, 05:15 AM
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#3
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Senior Member
Join Date: Sep 2005
Posts: 64
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Mary: Awesome Story. Thanks for sharing. BERTA
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08-01-2006, 07:12 AM
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#4
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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Thank you
Thank you, thank you, thank you, thank you ... and thank you. Best of health to you, MJo
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08-01-2006, 07:18 AM
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#5
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Mary,
Congratulations on being NED for five years. Also, thank you for sharing with us here on the board. It's always so good to hear an inspirational story like yours. May you continue to be NED for another 10 years.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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08-01-2006, 09:09 AM
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#6
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Senior Member
Join Date: Sep 2005
Location: NYC
Posts: 250
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Thank you for logging on and sharing your story. It means so much to all of us.
And Michele-- wow, you're almost at three years, that is fantastic. You're really an inspiration for us double-digit node ladies.
Jen
__________________
dx 4/05 @ 34 y.o.
Stage IIIC, ER+ (90%)/PR+ (95%)/HER2+ (IHC 3+)
lumpectomy-- 2.5 cm 15+/37 nodes
(IVF in between surgery and chemo)
tx dd A/C, followed by dd Taxol & Herceptin
30 rads (or was it 35?)
Finished Herceptin on 7/24/06
Tamox
livingcured.blogspot.com
"Keep your face to the sunshine and you cannot see the shadow." -- Helen Keller
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08-01-2006, 10:37 AM
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#7
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Senior Member
Join Date: Sep 2005
Location: Ohio
Posts: 212
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Mary, Congratulations on your anniversary and thanks for sharing your story!
I am also celebrating 5 years NED--my story is so similar to yours--diagnosed at 36 with 2 young children (3 and 5), large, aggressive tumor, many positive nodes, etc. The oncologist was not encouraging at all. I feel so grateful to have received Herceptin through the clinical trial--I remember also how happy I was to find this website and connect with others going through the same thing. Now I'm 41 and my kids are almost 9 and 11! Still hoping to reach 50 and see them graduate...Just think, now Herceptin is standard treatment for newly diagnosed Her2+ patients and they can breathe a little easier now knowing that in many cases, it really works wonders! Don't give up hope, we are truly rewriting the survival statistics for this disease.
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