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Hi Becky,
It is hard on our end to get a good feel for just how much change there is with all the new information, as well as for just how hard it is for people in the field to decide how much to trust it when it is so new.
I can't help but feel uncomfortable just knowing that I was never told I was HER2+++, even into 2004. I wonder how many patients never know, and pay the consequences -- not because they weren't intelligent enough to be told, but because these questions aren't obvious ones.
I still believe that every last test we have (and pay for) should be required to be copied to us within a reasonable period of time. There is just too much room for stumbling around without that.
I'm really, really glad you have put in the time and effort to be proactive about your care.
A.A.
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