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06-09-2006, 04:35 PM
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#1
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Senior Member
Join Date: Sep 2005
Posts: 285
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Taxol is tough on some, not on others. I was told that the hair would last until Day 14. And that's exactly what happened. So I called my hairstylist, got a friend to come photograph the "de-hairing" (he took pictures I'll always cherish), popped a Xanax, took a swig of Champagne and gave the command to shave.
I got used to no hair really fast. Now I've been through it 3 times and since it's not growing back much this time, I'm keeping it shaved short.
Ask you doc about supplements you can take to keep up your strength. Start a supplement program, get lots of rest and smile at the money you'll be saving on shampoo, conditioner, styling gel, etc.
Love and light,
Lisa
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06-09-2006, 07:04 PM
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#2
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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Lisa, I am not taking taxol, I am on adriamycin and cytoxen. I will not be getting taxol at all but I will be getting herceptin and radiation following my next 3 chemo tx(treatments). Maybe you thought tx was short for taxol, sorry, that is how we use to abbreciate treatment in the dental world. Hope you are hanging in there.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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06-09-2006, 07:09 PM
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#3
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Senior Member
Join Date: May 2006
Location: Cleveland, Ohio
Posts: 65
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Rinaina:
I am sorry that you have had a rough time, but I am sure that it will get better.
Stay strong and take care,
Jayne
__________________
Caregiver to mother, Diane
Diagnosed 3/2006 Stage IIB (T2, N2, M0), Her-2+++, Er/PR-, Grade 3
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06-10-2006, 08:06 AM
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#4
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Senior Member
Join Date: Oct 2005
Location: Boise, Idaho
Posts: 758
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Rinaina,
I, too, was absolutely miserable following my first rx with A/C. I took phenergan and ativan and got really crazy. I do not remember which med they gave me for pre treatment but it did not work. However, before the next treatment I got Emend. I never experienced any of the crap I did the first time. However I did experience tremendous fatigue, lost hair at 2 week, had to be hospitalized for 4 days after treatment 3 - NO White Cells and very low hemoglobin. Procrit for that! I ran a fever throughout chemo but it fluctuated tremendously. So I tended to ignore it since I really had no other symptoms. About the hair loss. I found that being bald did not bother me or for that matter anyone else. I was not interested in a wig and I couldn't find a hat that fit so I just "shined on". My hair came back curly and I love it! I am now almost 1 year post chemo, finished rads on 9/29. Started Herceptin 7/19. Last dose is to be July 11. MUGA actually improved inspite of Herceptin. Am currently NED and enjoying life to the fullest. Hoping and praying things go well for you through out this ordeal.
Marlys
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06-10-2006, 08:13 AM
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#5
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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I was given Emend and it worked like a charm. Took it right before my first treatment began and the next two mornings. I also had compazene and dexa something, a steroid that I took for the next 3 days along with ativan at night and did fine up until the 2 week mark when, according to my onc nurse, is when I would feel my worst because that is when my white count would be the lowest. Today I woke up and feel better so I hope as the day progresses I will continue to feel back to normal again, (whatever normal is), as I did up until this week. I have refills on all the above meds for each treatment so I am sure I will do fine again that first week. I have continued to take ativan at night and it really helps me get a good night's sleep. Thanks for sharing your experience. Glad to hear you are NED. Keep up the good work.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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06-10-2006, 08:16 AM
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#6
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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almost forgot....about the curly hair thing. i heard in most people the hair comes back curly but then if you didn't have curly hair to begin with, it relaxes after it grows more. is this true. I also heard it comes in greyer but that could be because we color our hair so we didn't know just how grey we were right?
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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06-10-2006, 08:33 AM
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#7
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Senior Member
Join Date: Oct 2005
Location: Boise, Idaho
Posts: 758
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Rinaina,
You are right. I am ER+++, PR+, HER2+++. Also I have kept my hair cut short which probably helps to keep the curl in. My beautician says she's not going to get any money for perms for a while! But the frequent cuts may make up for it. And yes it is probably greyer. I never have colored my hair and it has stayed fairly dark. I am 67 so I guess it is about time it turned grey. I
am glad you are feeling better. I must say I am a retired nurse so I was really able to lay around a bit during chemo although my husband's 92 year old mother was living with us. We did have to put her in a nursing home after 1 month because I could not longer care for her.
Hope it continues to go well for you!
Love & Hugs,
Marlys
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