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Old 06-07-2006, 11:36 AM   #1
madubois63
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day three for madubois63

It's raining, so no nice view today. I had the Hickman port put in late yesterday afternoon. They decided my platelets were to low and had to give me another transfusion before they put me under. when I got back to the room, they gave me more blood and then started the chemo. Daunorubicin is in the Adriomycin family. It comes in a "Flintstones" syringe and it's red. There goes my freshly grown new hair - oooh well. There are worse things. Anyway, then I got the Cytarabine - it is a 24/7 drip. I'm a little queasy, but get Ativan and tons of other preventive med's. Had visitors and got my trusty computer, so it's not so bad yet. Thank you for all the prayers and well wishes. I think they are working. My very serious new doctor told me he got a PRELIMINARY report on the fluid in my lungs and at first glance they did not see any active BC. Also, when they removed the fluid, I heard someone ask "what color?" Someone else said CLEAR!!! God, I hope the report comes back the same. Keep praying for me! I feel the love and light and just can't thank you all enough!!!
..·´¨¨)) -:¦:-
¸.·´ .·´¨¨))
-:¦:-
((¸¸.·´ ¸.·´
-:¦:- -:¦:-
-:¦:-
((¸¸.Maryann -:¦:-´´
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Old 06-07-2006, 11:55 AM   #2
Susan2
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We'll keep praying that the wonderful preliminary results are borne out. It's always great to get good news.

Best of everything,
Susan
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Old 06-07-2006, 12:05 PM   #3
StephN
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Wink You are still lucid!

After more drugs with tongue-twister names. These posts could be very valuable for someone else who might someday join in your diagnosis. If it is rainy, it will be cooler there hopefully. At least the air conditioning always works in hospitals!
It struck me that here is the great value of the new targeted therapies and vaccines - this terrible side effect will not be there.
Wishing you peace, rest and a calm tummy.
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 06-07-2006, 12:28 PM   #4
tammymarie1971
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Still praying for you Maryann!!!!! Here's to clear fluid!!!!!!!!!!!!!!!!!!!
Chin up!!!You're doing it!!
Tammy
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Dx'd Dec'01 while 6mos preg. with #4. child (30yrsold)Mastectomy/AC chemo/radiation/ Recur:Mar'04 liver mets: 3 taxol/herceptin /liver resection/3 taxol/herceptin. Cured?
Recur: May'05 spine & Hip. New onc
treatment in Mexico Feb'06-Mar-06
back to Mexico June/July '06
Currently on herceptin/Zometa/Femara-recently added navelbine
Switched to arimidex Nov'06
ovaries removed June '07
ca15-3 in May'06 was 102
ca15-3 summer of '07 holding steady at 23!
ca15-3 slowly rising Dec & Jan 36, 38, 41 and Feb was 36
Feb '08 Liver, lung & Brain scan NED... bones are stable with even a couple spots gone. as compared with '06 scans
May '08 ca 15-3 is 55. Treatment is zometa, vinorelbine, herceptin and aromasin.
No signifcant changes.
Feb'09 Started Xeloda with herceptin..no more hormonals
Feb'09-June'09 tumor markers coming down again from 155 to 84
May'09 blood clots in lungs vena cava filter put in..Heparin shots daily for now.
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Old 06-07-2006, 01:02 PM   #5
Cynthia
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Maryann,

You are remarkable. Thank you for allowing all of us to be there with you.

We are all rooting hard for you.

Cynthia
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Old 06-07-2006, 01:13 PM   #6
Patty H
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I check every day for your posting. Please continue as long as you are able. You don't know how many people you are encouraging. Patty H
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Old 06-07-2006, 01:40 PM   #7
Barbara H.
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I ditto what Patty has to say. I am thinking of you everyday, Maryann. I am hoping for the best.
Barbara H.
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Old 06-07-2006, 01:44 PM   #8
Sherryg683
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Hi Maryanne, I have been thinking and praying for you a lot lately. You are such a beautiful lady, I'm sure you won't even miss your hair...stay strong...sherryg683
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Old 06-07-2006, 01:48 PM   #9
karenann
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Hi Maryanne,

I am praying and I know everybody else is, too. As a matter of fact...I bet you can feel all the love a prayers!!! I am very happy about the fluid from the lungs being clear and probably not from bc!.

Tons of love,

Karen
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Old 06-07-2006, 03:33 PM   #10
Les
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God bless you Maryanne You are so strong. Thanks for keeping us informed I am praying for you. Leslie
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Old 06-07-2006, 05:19 PM   #11
Lolly
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Maryanne, I'm really pulling for you, and and a big YEAH!!! that the lung fluid was clear
You are our hero.

<3 Lolly
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Old 06-07-2006, 05:25 PM   #12
Tom
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Prayers and good thoughts

Dear Maryann,

Thank you for keeping us so well informed on your progress. The posts are so detailed, I feel like I'm in the room watching and can almost smell that wonderful "hospital bouquet"...lol.

We will continue to pray for you as you bulldoze your way through this latest test of wills with the Beast. After reading one of your earlier posts, I finally decided to check into bone marrow donation, but was rebuffed because of herniated discs in my vertabrae. Who knew? I am still seeking an explanation for that exemption.

Be Good,
Tom
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Old 06-07-2006, 06:06 PM   #13
madubois63
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Thank you Tom for even looking in to donating. I am sorry about your herniated disc - not only for me, but mostly for you.

To everyone - your posts make me smile ... thank you!!!!
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Old 06-07-2006, 06:46 PM   #14
anne
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Hi Maryann,
I am glad you are well enough to keep us posted. Continued strength. God never gives us more than we can handle.

Hugs to you,
Anne
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Old 06-07-2006, 06:51 PM   #15
kareneg
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Maryann,
You are in my thoughts and prayer's too. Keep that positive attitude I believe it truely helps.
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Love and Hope
Karen

IDC
DX 1998 STAGE I ER+/ PR+
AC CHEMO TILL FEB 1999
Tamxofin till 2001
2001 exstensive liver mets and mets to lungs
Started weekly taxol
Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex
2005 Navelbine herceptin had RFA Then back on taxol with herceptin
April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin
Feb 2007 started Doxil
August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas
October 2007 Had to stop Carboplatin due to sever allergic reaction
Jan 2008
Stopped Taxotere due to progression now on Gemzar and Herceptin
March 2008 Starting Carboplatin, Abraxane, and Herceptin.
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Old 06-07-2006, 07:33 PM   #16
michele u
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Thinking of you Maryanne, you are so brave.
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Old 06-07-2006, 07:36 PM   #17
sherri
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Dear Mayann,

When I was at hospital for my surgery, a freind of mine with brain cancer told me she thinks about me the whole time and I should connect to her everytime I feel any pain or discomfort. I did this and I have to tell you that was the easiest surgery I had in my life, piece of cake. Everytime I was feeling a little pain, I connected my thoughts to her and the pain was gone in a second. I had a lot of energy, walking 4 hours after surgery and all the nurses were amazed and named me Superwoman!
Please do the same thing with our group and see if it works for you.
Lots of love and hugs,
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Old 06-07-2006, 07:39 PM   #18
Audrey
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Maryann, thanks for keeping us posted on your progress--sending up prayers for you and for no active BC cells...Hang in there! (((((hugs)))))
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Old 06-07-2006, 08:41 PM   #19
lisahammo
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How nice to know you have all this love being sent your way! Here's some more for you, too. My thoughts are with you. Hang tough.

Lots of love
Lisa
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Old 06-07-2006, 10:04 PM   #20
G. Ann
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Hi Maryann,

I'd like to join all the others sending their prayers, good wishes, and love to you. As many have said, you are a remarkable woman and all of us have benefitted from your updates. In the past you have given hope to many others. You are a gift to this group and I hope you feel the support. Thank you for sharing with honesty, grace, and humor.
My thoughts and prayers are with you-G.Ann
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