Confused about being taken off Herceptin

[jojo]

I have been on weekly Herceptin from the beginng -- that was 3 summers ago. At first, it was actually off-label, only good for just one year. But I got mets that year later. So, ever since then, I have been on maintenance Herceptin 00 for how long, I don't know, just indefinitely for now.

So, I recurred to a malignant lymph node (officially by biopsy) & also brain mets down the road, I was never taken off the Herceptin. My onc just put me on hormonal therapy first for about 1.5 years -- until they stopped working -- along with the Herceptin. Then I was put on Xeloda & Abraxane, in that order.

Though, my onc does not believe in the mix of chemo's & hormonal therapy at the same time, just because she would not be able to tell which kind of med (chemo vs blocker) would not be effective in a patient's case.

Christine, for some reason you cannot to get to stay on your Herceptin, I would seek a 2nd, even 3rd opinion.

Please keep us posted on your developments. Good luck!