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About two weeks ago, I started a thread where I was asking if we could start some form of database that coudl be supplied to users here and in case docs or firms wanted to find out information on this herceptin stuff.
So it appears that you are as frustrated as I am.
The oncs shrug away everytime I mention anything. Or they say, it's not in the literature, or rare. I'm scared to metion anything because then I'd be doing mri and pet scan on a weekly basis. I also keep hearing and reading here and other places that there's no musch info on side effects and we are writing the "book" on them.
Well, we should then! let's start some form of database where all these are gathered. I know we have a search button and I know that it's not a substitution for medical advice but there's a got to be a place where doctors can be provided with this information and not just form me.
I HEAR YA SISTER!
MCS (maria)
dx 7/2005. mast on right side
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