HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Search Today's Posts Mark Forums Read

Reply
 
Thread Tools Display Modes
Old 04-26-2006, 05:48 AM   #1
juanita
Senior Member
 
juanita's Avatar
 
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
Is it possible for you to get a second opinion? Or to switch oncs? You have the right to get answers to all of your questions, in a language that you understand. I had problems with that with the first onc I had. So I switched.
juanita is offline   Reply With Quote
Old 04-26-2006, 08:50 AM   #2
saleboat
Senior Member
 
saleboat's Avatar
 
Join Date: Sep 2005
Location: NYC
Posts: 250
Chelee,

Oh no, the worries have you, don't they? We've all been there.

There is ONE very simple reason for why you did not have A/C. Your Onc, based on the NEW evidence that was presented (I sent you the link) believed that Carbo/Taxol/Herceptin would be the BEST treatment for you-- ie-- that this regimen would give results similar to the one with A/C WITHOUT any of the risks of heart damage. I predict that in the future, the chemo that you received will be the standard of care for many women. I know you don't like the fact that your Onc was a little wet behind the ears, but this probably led him to be more comfortable with the cutting-edge treatment that you received.

In other words, the reason that you see so many women on these boards who received A/C is that they, for the most part, were diagnosed before you. A/C is the chemo that most Oncs are familiar with (for early stage disease), and the first Herceptin studies for early-stage disease used this chemo. The second big Herceptin study (the link that I sent you) put the A/C chemo vs. your regimen head to head-- and found NO statistical differences between the outcomes.

ALL of these results need more time in order for the researchers to have a great deal of confidence in them, but so far, things look encouraging.

We all have our worries, and as I mentioned before, I was OBSESSED with why I did not receive Carbo as part of my treatment. Absolutely obsessed.

I hope you can find some peace.

As for tumor markers, I will not have these done until I'm finished with Herceptin-- that is the 'standard of care' at my treatment center for early-stage bc. What your new Onc said sounds exactly like what my Onc would say.

This disease can drive a person crazy and we all have to learn to live with a lot of unknowns. It isn't easy.

Deep breath,
Jen
__________________
dx 4/05 @ 34 y.o.
Stage IIIC, ER+ (90%)/PR+ (95%)/HER2+ (IHC 3+)
lumpectomy-- 2.5 cm 15+/37 nodes
(IVF in between surgery and chemo)
tx dd A/C, followed by dd Taxol & Herceptin
30 rads (or was it 35?)
Finished Herceptin on 7/24/06
Tamox
livingcured.blogspot.com

"Keep your face to the sunshine and you cannot see the shadow." -- Helen Keller
saleboat is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 06:46 AM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2026, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter