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I agree there is no official "concensus" regarding what to do for Stage I...
Yet this website is enough concensus for me. We all have a common denominator regardless of our Stages. With the unpredictability of Her2 and cancer itself, I see no reason why anyone would not take advantage of the technology available for our treatment. Even if someone is NED, it makes sense to follow-up with whatever regimen of tests necessary. All us Stage I and II fought for Herceptin when we were not sure of its effects on non-metastatic bc. Risking whatever we needed to in order to stay on the drug...
In may case, after all the nasty chemo, surgery and radiation and reading the posts on this site -I decided to get a brain MRI just to have a baseline (while I knew it was going to be clean). Kind of like the PET - a baseline is helpful IF mets do decide to invade. To date, as most of us have- I now have a bone scan, PET , CT of chest, CT of brain and breast MRI's. All are clean, and all are my baselines. If I ever need them for future reference- there they are!
Plus- I sure do sleep better knowing that I do not have cancer ANYWHERE!
Get the brain scan!
Maria
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