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Old 03-07-2006, 08:24 PM   #1
al from Canada
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Location: Ontario, Canada
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Dear Lani,

You missed the point, it wasn't about my wife, frustrations, Canada, Pompeii or Danish cartoons, as I as hoping for an intellectual exchange, but your subsequent post title "another useless post" was hurtful.

I did not disrespect you and didn't deserve this. I just don't get it but enough is enough. I think I'll follow others' lead and take some time off as the absolute last reason I post here is to piss people off.
Al
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Old 03-08-2006, 09:25 AM   #2
Lolly
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Misplaced Posts

Lani, regarding your comment in your response to Al;

"...There are many reasons people post on this board and many reasons people come to this board to read..."

I feel your postings of research articles, while always interesting, belong on the Articles of Interest page, unless of course you're responding to a specific request on this board.

Joe, correct me if I'm wrong, but I've always thought that's why the site has several different boards to serve the various purposes of this site.

<3 Lolly
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Old 03-08-2006, 11:40 AM   #3
Sheila
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Lani & Al
First to Lani, I would have to agree with Lolly that these articles belong on another section of the board....we are all looking for that magic cure...I enjoy reading new info, but am always cautious until there is proof...guess that is the nurse coming out in me...nonetheless, I read all i can on what may be promising to me in the future...so keep posting as a FYI to let others know when you find something like this...if nothing else, it keeps my brain active reading it.

Al,
You really need to reconsider...I for one would miss your info and encouragement to others....Linda is very lucky to have you fighting for her....many women on this board, including myself are somewhat in this alone...married or single, doesn't matter...they go to the Dr's alone, get treatments alone, get the test results alone...it isn't fun...many on this board are envious of the caregiver Linda has...and you are more knowledgeable than many of us BC survivors because you are always researching. I for one appreciate that from you, and anyone else who takes the time to help us find a way to calm our fears, find that hope, get us to NED! There are many days that this board is the only place I can go and talk to others....others who are living this nightmare with me. Everyone on this board has given me something, knowledge, coping skills, hope, and food for thought...even the kind that I disagree with. Please Reconsider....we need your support!
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"Be kinder than necessary, for everyone you meet
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Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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