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Hi Steph,
I kind of thought it might be necrosis, but I didn't want have your hopes dashed. When I found out that mine was necrosis, it was like waking up from a bad dream. I still think that it's good that it's out. I'm sorry that you are having so much trouble with your neck. In some ways the surgery was easier for me than the radiation. I'm so glad that you are NED. You will heal, and you are probably a little down from coming off the Decadron.
I have been waiting for your post all day. Just know that you are in my thoughts. We are leaving on Friday for NH for a week. Next week is school vacation in New England so I won't be on the internet much and won't be able to post.
Best wishes,
Barbara H.
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